dans le recherche – Centre d'Innovation du partenariat avec les patients et le public (CI3P)

Cette espace met à disposition une bibliographie par catégories :

En premier lieu, vous trouverez les publications du CI3P sur le partenariat de soin avec le patient
en second lieu apparait la bibliographie publiée sur le partenariat de soin en partenariat avec le patient selon le modèle de Montréal
En troisième lieu vous est proposé une bibliographie conséquente sur l’implication des patients dont est issu le partenariat de soin avec le patient tels que développés par le Centre d’Innovation du partenariat avec les patients et le Public et le Centre d’Innovation du Partenariat avec les Patients et le Public.

Bibliographie produite par le CI3P et ses membres

Goosse M., Willems S., Popescu C., Peeters L., Dans C., Munk S., Lovulo S., Flora L., Batala L., (2025). Immersion 360° Immersion-Simucare: guide méthodologique. Cofinancé par le programme Erasmus+ de l’Union européenne [21PCS0006 / 2021-1-BE01-KA220-HED-000032147 Période 01/02/22 au 31/01/25]

Goosse M., Willems S., Popescu C., Peeters L., Dans C., Munk S., Lovulo S., Batala L., Flora L., (2025). Référentiel de compétence communicationnelle pédiatrique. SIMUCARE-immersion. Résultat de recherche financé par l’Union Européenne, programme ERASMUS, (21PCS0006 / 2021-1-BE01-KA220-HED-000032147, Période 01/02/22 au 31/01/25).

Flora L. (2024). Le modèle de Montréal ou l’approche « patient-partenaire ». Revue de neuropsychologie. Vol. 16, N° 4, pp. 233-239.

Burel L. (2024). Le tandem partenariat médecin généraliste-patient partenaire : une expérience transformative. Thèse d’exercice de médecine, Faculté de médecine de Nice, Université Côte d’Azur.

Flora L. (2024). « 20 ans de démocratie sanitaire : état des lieux et impact de la pandémie ». Revue de la société française d’histoire des hôpitaux, pp. 41-46

Rubinstein S. (2024). « La place de l’usager en psychiatrie : l’exemple de l’hôpital Sainte-Marie de Nice (1860-1986) ». Revue de la société française d’histoire des hôpitaux, pp. 54-64.

Flora L., Grenier C., Ponsignon F.(dir.). (2024). « Experience in Health Innovation: Ephemeral Fashions or New Paradigm? – Crossed perspectives in the health ecosystem« , London :Editions Wiley.

Ravot M.,Flora L . (2024) A Brief History of Changes {in) the Medico-Social Sector over Recent Decades. Interview with Marielle Ravot in . « {Experience in Health Innovation: Ephemeral Fashions or New Paradigm? – Crossed perspectives in the health ecosystem} », London :Editions Wiley, pp 163-182.

Flora L, Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2024). Help with Prescribing Mobile Health Applications A Partnership Design in the Medico-Social Sector over Recent Decades. Interview with Marielle Ravot in . « {Experience in Health Innovation: Ephemeral Fashions or New Paradigm? – Crossed perspectives in the health ecosystem} », London :Editions Wiley, pp 227-237.

Flora L. (2023). « La question du patient et de ses données numériques dans un environnement de la santé en cours de digitalisation« . Le journal de la médecine légale, 2023/3, N° 3, pp 16-21.

Flora L., Darmon D., Darmoni S., Gorsjean J., Simon C., Hassanaly P., Dufour J.-C. (2023). « L’aide à la prescription d’application mobiles de santé : Une innovation dans et par la relation médecin patient », dans L’expérience dans l’Innovation en santé : modes éphémères ou nouveau paradigme ? – Regards croisés dans l’écosystème de la santé ». Londres : Iste.

Flora L., Casta C., Munck S., Fauré S., Gasperini F., Rubinstein S., Darmon D., Ravot M., Bouchez T. (2023). Attribuer un prix de thèse de médecine générale en partenariat avec les patients partenaires : une expérience démarche partenariale. Le partenariat de soin avec le patient: analyses : Université Côte d’azur, N°. 6 pp. 67-97.

Flora L. (2023). « Savoirs expérientiels en santé et expertises patients ». dans Troubles dans le monde du bénévolat, (Dir. Ferrand-Bechmann D.), Paris : Chroniques sociales, pp.60-67.

Lunel A., Flora L. (2023) » Avant propos. » Le Journal de droit de la santé et de l’assurance maladie, N° 36, p. 9.

Flora L. (2023). » La place des patients au 21ème siècle : l’exemple de l’implication des patients partenaires avec le CI3P dans l’environnement numérique. » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 10-18..

Rubinstein S. (2023). » L’e-santé mentale : miroir aux alouettes ou futur des soins psychiatriques ? » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 25-33. ( Ecouter l’émission sur la santé mentale et le numérique au sein duquel cet article et mentionner pour sa pertinence en cliquant ici)

Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2022). « Innover par l’aide à la décision dans la relation médecin-patient d’application mobiles : la recherche ApiAppS ». Le partenariat de soin avec le patient : analyses, Université Côte d’azur, N° 4, pp. 73-94.

Flora L., Koenig M.(2021). « La question du rétablissement et du patient partenaire », in Manuel de la psychiatrie » 4ème édition. (coord. Luc Mallet, Julien Guelfi, Frédéric Rouillon), Paris : Edition Elsevier Masson, pp. 779-782.

Bonardi C., Karcher B., Collazzo G., Barbaroux A., Balez E., Faure S., Halloy A., Flora L. (2021). « Partenariat avec les patients : les leçons d’une pandémie », Neuropsychologie, 13 (2), pp. 116-120.

Pomey M.-P., Clavel N., Normandin L. Del Grande C. Ghadiri D. P., Fernandez-McAuley I., Boivin A., Flora L., Janvier A., Karazivan P., Pelletier J.-F., Fernandez N., Paquette J. Dumez V. (2021) « Assessing and promoting partnership between patients and healthcare professionals : co-construction of the CADICEE tool for patients and their relatives » Health Expectations. Vol. 24, Issue 4, pp.1230-1241

Barchewitz M., Charels M., Flora L., Gueroult-Accolas, L., Honoré S., Allenet .B, Hache G.(2021). »Connaissances et représentations sur le partenariat patient : enquête auprès des pharmaciens. » Le Pharmacien Hospitalier et Clinicien. Volume 56, Issue 4, pp. 345-354

Pétré B., Louis G., Voz B., Berkesse A., Flora L. (2020). »Patient partenaire : de la pratique à la recherche. » Santé publique, Vol. 32, N° 4, Juillet-août, pp. 371-374

Faure S., Halloy A., Karcher B., Flora L., Colazzo G., Barbaroux A., Balez E., Bonardi C. (2020). « Polyphonies sur les enjeux du partenariat patient au temps du COVID-19, Revue de Neuropsychologie, Neurosciences Cognitives et Cliniques, V. 12, N° 2, Avril-mai-juin 2020, pp. 232-237.

Carayol-Ravot M. (2020). Covid-19 : crise sanitaire, confinement et maladies chroniques. Impact du confinement sur l’expérience patient et le partenariat entre patients et professionnels de santé. Mémoire de Master de santé publique. Université Aix Marseille.

Flora L., Darmon D. Benattar J.-M. (Coord.).(2019), Contribution à l’état de l’art : Retour sur le 1er colloque International en France sur le partenariat de soin avec le patient à partir des communications et écoévaluations. Centre d’Innovation du Partenariat avec les Patients et le Public (CI3P), Université côte d’azur.

Bibliographie sur le partenariat de soin avec les patients dans la recherche

Tobiano, G., Gillespie, B. M., Carlini, J., Muir, R., Rasiah, J., Wan, C. S., McCarron, T. L., Moffat, K., Jahandideh, S., Chaboyer, W. (2024). Establishing patient partners’ roles on research teams : A scoping review. Research Involvement and Engagement, 10(1), 129. https://doi.org/10.1186/s40900-024-00664-1

Burel L. (2024). Le tandem de partenariat médecin généraliste-patient partenaire : une expérience transformatrice. Thèse d’exercice de médecine. Université côte d’azur.

Loughhead, M., Hodges, E., McIntyre, H., Procter, N., Barbara, A., Bickley, B., Martinez, L., Albrecht, L., Huber, L. (2024). Pathways for Strengthening Lived Experience Leadership for Transformative Systems Change : Reflections on Research and Collective Change Strategies. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(5), e70048. https://doi.org/10.1111/hex.70048

McPherson, A., Paudyal, V., Lowrie, R., Heath, H., Moir, J., Allen, N., Barnes, N., Hill, H., Araf, A., Lombard, C., Ross, S., Tearne, S., Jagpal, P., Cheed, V., Akhtar, S., Provan, G., Williamson, A., Mair, F. S. (2024). Patient and Public Involvement in Research Evaluating Integrated Care for People Experiencing Homelessness : Findings From the PHOENIx Community Pharmacy Pilot Randomised-Controlled Trial. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(5), e70070. https://doi.org/10.1111/hex.70070

Richards DP, Poirier S, Mohabir V, Proulx L, Robins S, Smith J. Reflections on patient engagement by patient partners: how it can go wrong. Res Involv Engagem. 2023 Jun 12;9(1):41. doi: 10.1186/s40900-023-00454-1. PMID: 37308922; PMCID: PMC10262483.

Dumez, V., L’Espérance, A. (2024). Beyond experiential knowledge: a classification of patient knowledge. Soc Theory Health (2024). https://doi.org/10.1057/s41285-024-00208-3

Côté, C.I. (2024). A critical and systematic literature review of epistemic justice applied to healthcare: recommendations for a patient partnership approach. Med Health Care and Philos. https://doi.org/10.1007/s11019-024-10210-1

Psiuk T. (2024 ).Le concept du patient partenaire, de l’implicite vers l’explicite. journal de médecine légale. Fév 14;3(3):3-6.

Montiel C, Jackson M, Clovin T, Bogdanova E, Côté C, Descoteaux A, Wong C, Dumez V, Pomey MP, Hanna D. (2024). Patient Learning Pathway: Identifying Patient Competencies in Teledermatology for Effective Management of Dermatological Conditions. J Cutan Med Surg. 2024 Mar 19:12034754241238716.

Dhamanaskar R, Tripp L, Vanstone M, Canfield C, Levasseur MA, Abelson J. (2024). Patient partner perspectives on compensation: Insights from the Canadian Patient Partner Survey. Health Expect. Jan 15;27(1):e13971.doi: 10.1111/hex.13971.

Scholz B., Kirk L., Warner T., O’Brien L. , Kecskes Z., Mitchell I. (2024) From a Single Voice to Diversity: Reframing ‘Representation’ in Patient Engagement. Qualitative Health Research, doi/pdf/10.1177/10497323231221674

Pomey, M., Pelaez, S., Le Roux, E., Demers‐Payette, O., Sirois, M., Lochhead, L., Ganache, I., Normandin, L., L’Espérance, A., De Guise, M. (2024). How to mobilise users’ experiential knowledge in the evaluation of advanced technologies and practices in Quebec? The example of the permanent users’ and relatives’ panel. Health Expectations, 27(1), e13964. https://doi.org/10.1111/hex.13964

Blackburn, S., Clinch, M., de Wit, M., Moser, A., Primdahl, J., van Vliet, E., Walker, C., Stevenson, F. (2023). Series : Public engagement with research. Part 1 : The fundamentals of public engagement with research. The European Journal of General Practice, 29(1), 2232111. https://doi.org/10.1080/13814788.2023.2232111

Swaithes, L., Campbell, L., Anthierens, S., Skrybant, M., Schiphof, D., French, H., de Wit, M., Blackburn, S., Dziedzic, K. (2023). Series : Public engagement with research. Part 4 : Maximising the benefits of involving the public in research implementation. The European Journal of General Practice, 29(1), 2243037. https://doi.org/10.1080/13814788.2023.2243037

Sergent L. (2023). Patient pantin ou partenaire : une étude de la participation à l’hôpital pendant la crise Covid. Connexions, n° 118, pp.81-93

Zaratin, P., Khan, U., Graffigna, G. (2023). Comment on « Reflections on patient engagement by patient partners : How it can go wrong ». Research Involvement and Engagement, 9(1), 122. https://doi.org/10.1186/s40900-023-00534-2

Christiansen, M. G., Pappot, H., Hamilton, C., Lund-Jacobsen, T., Kristensen, A. W., Nordentoft, S., Høeg, B. L., Bidstrup, P., Nielsen, I. H., Ulstrup, J., Trip, A. K., Jarden, M., Piil, K. (2023). Patient Engagement in Research Scale (PEIRS-22) : Danish translation, applicability, and user experiences. Research Involvement and Engagement, 9(1), 115. https://doi.org/10.1186/s40900-023-00526-2

Harman, N. L., McGiveron, K., Tudur Smith, C., Williamson, P. R., Barrington, H. (2023). Opening up ideas : An advent calendar for patient and public engagement in clinical trials research. Research Involvement and Engagement, 9(1), 118. https://doi.org/10.1186/s40900-023-00530-6

Nohová, I., Andrews, J., Votan, B., Miller, A., Sehouli, J., Berger, R. (2023). Patient involvement in research within the Gynecological Cancer InterGroup : A call to action for a systematic approach : Results from a survey. Health Science Reports, 6(12), e1735. https://doi.org/10.1002/hsr2.1735

Røssvoll, T. B., Rosenvinge, J. H., Liabo, K., Hanssen, T. A., Pettersen, G. (2023). Patient and public involvement in health research from researchers’ perspective. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(6), 2525‑2531. https://doi.org/10.1111/hex.13853

Vanderhout, S., Richards, D. P., Butcher, N., Courtney, K., Nicholls, S. G., Fergusson, D. A., Potter, B. K., Bhalla, M., Nevins, P., Fox, G., Ly, V., Taljaard, M., Macarthur, C. (2023). Prevalence of patient partner authorship and acknowledgment in child health research publications : An umbrella review. Journal of Clinical Epidemiology, 164, 35‑44. https://doi.org/10.1016/j.jclinepi.2023.10.012

Chudyk A. M., Stoddard R., McCleary N., Duhamel T. A., Shimmin C., Hickes S., Schultz A. pancanadian conselors group patients and public (2023). Exploring patient and caregiver perceptions of the meaning of the patient partner role: a qualitative study Research Involvement Engagement 9 , 106 (2023). https://doi.org/10.1186/s40900-023-00511-9

Fox, G., Lalu, M. M., Sabloff, T., Nicholls, S. G., Smith, M., Stacey, D., Almoli, F., Fergusson, D. A. (2023). Recognizing patient partner contributions to health research : A systematic review of reported practices. Research Involvement and Engagement, 9(1), 80.
https://doi.org/10.1186/s40900-023-00488-5

Pogorzelski D., Wells J. L.J., Marvel D.; Palmer J., Mullins C. D., Medeiros M., Gallant J. L., Spicer E., Bergin P., Gitajn, I. L., Mullin D. S., Gaski G., Hymes R., Bzovsky S., Slobogean G. P., Sprague S. and the PREP-IT Investigators. (2023). Pragmatic design and inclusion of patient–partner representatives improves participant experience in clinical research.

Jackson M., Clovin T., Montiel C., Bogdanova E., Côté C., Descoteaux A., Wong C., Dumez V., Pomey M.-P (2023). Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept. journal Preproof: https://doi.org/10.1016/j.pecinn.2023.100223

Nielssen, I., Ahmed, S., Zelinsky, S., Dompe, B., Fairie, P., Santana, M. J. (2023). Co-building a training programme to facilitate patient, family and community partnership on research grants : A patient-oriented research project. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. https://doi.org/10.1111/hex.13763

Riches, L., Ridgway, L., Edwards, L. (2023). Co-learning commentary : A patient partner perspective in mental health care research. Research Involvement and Engagement, 9(1), 24. https://doi.org/10.1186/s40900-023-00435-4

Yous, M.-L., Ganann, R., Ploeg, J., Markle-Reid, M., Northwood, M., Fisher, K., Valaitis, R., Chambers, T., Montelpare, W., Légaré, F., Beleno, R., Gaudet, G., Giacometti, L., Levely, D., Lindsay, C., Morrison, A., Tang, F. (2023). Older adults’ experiences and perceived impacts of the Aging, Community and Health Research Unit-Community Partnership Program (ACHRU-CPP) for diabetes self-management in Canada : A qualitative descriptive study. BMJ Open, 13(4), e068694. https://doi.org/10.1136/bmjopen-2022-068694

Rubin, M. R. (2023). The Role of the Patient Partnership in Designing Research on Neuropsychiatric Issues in Hypoparathyroidism. Journal of the Endocrine Society, 7(7), bvad068. https://doi.org/10.1210/jendso/bvad068

Boivin A., Flora L., Dumez V., L’Espérance A., Berkesse A., Gauvin F.-P. (2017). « Transformer la santé en partenariat avec les patients et le public : historique, approche et impacts du “modèle de Montréal”», In « La participation des patients » « vol. 2017, Paris : Editions Dalloz, pp. 11-24.

Ghadiri D. P. S., Flora L., Pomey M.-P. (2017). « Le virage patient partenaire de soins au Québec. Reconfiguration de l’exercice du pouvoir médical et lutte pour de nouvelles subjectivités« . In « La participation des patients« , Paris : Editions Dalloz, pp. 25-36.

Boivin, A., F.-P. Gauvin, P. Lehoux, I. Marcoux, Néron A, G. Baril and M. Flon (2017). Que doit-on savoir sur l’aide médicale à mourir? Comprendre les besoins d’information et les enjeux du partenariat avec les patients, les proches aidants et les professionnels de la santé, Centre d’excellence sur le partenariat avec les patients et le public: 46.

Boivin, A., V. Dumez, C. Loignon, M.-P. Gagnon, P. L. Bush, I. Ganache, F. Laverdière, M. Fournier, M. Menear, J. Légaré and J. Caron-Malenfant (2015). Soutenir la recherche en partenariat avec les patients et le public: stratégie d’engagement pour l’Unité de SOUTIEN-SRAP Quebec: 22.

Flora L. (2014). « Des patients réflexifs, au potentiel de transformation des systèmes de santé. » dans l’ouvrage Les métiers de la santé face aux industries pharmaceutique, agroalimentaires et chimiques, (Dir. Scheffer P.), Paris : L’harmattan.

Bibliographie sur l’implication des patients dans et sur la recherche

Bjerregaard, M., Poulsen, I., Carlsen, E., Esparza, A., Smith, J., Brødsgaard, A. (2025). Patient and public involvement in neonatal research—Experiences and insights from parents and researchers. Research Involvement and Engagement, 11(1), 1. https://doi.org/10.1186/s40900-024-00670-3

Boden-Albala, B. (2025). Roadmap for Health Equity : Understanding the Importance of Community-Engaged Research. Stroke, 56(1), 239‑250. https://doi.org/10.1161/STROKEAHA.124.046958

Genovesi, E., Grant, S., Kifle, T. H., Li, J., Shand, A. J., Hoekstra, R. A. (2025). Community involvement in PhD students’ autism research projects : Challenges and opportunities. Autism : The International Journal of Research and Practice, 29(1), 3‑7. https://doi.org/10.1177/13623613241300683

Johnson, B. (2025). How citizen scientists and community engagement boost the impact of health research. Nature Medicine.
https://doi.org/10.1038/d41591-025-00003-1

Julie, R., Yael, B., Anaïs, H., Anne, T., Julie, H., Marie, V. (2025). Patient and Public Involvement in Pharmacoepidemiological Research : An Environmental Scan of an Emerging Area. Pharmacoepidemiology and Drug Safety, 34(1), e70080. https://doi.org/10.1002/pds.70080

Kernan, L. M., Pearl, M. B., Harri, A., Lambourne, C. A., Schlegel, R., Evarts, C. M., Crummer, M. B., Persels, C., Mullen, N., Pellegrini, V. D. J. (2025). The impact of a patient advisory board on a clinical comparative effectiveness trial : A comparison of patient and researcher perspectives. Journal of Comparative Effectiveness Research, e240050. https://doi.org/10.57264/cer-2024-0050

Klein, B., Perfetto, E. M., Oehrlein, E. M., Weston, F., Lobban, T. C. A., Boutin, M. (2025). Measuring and Demonstrating the Value of Patient Engagement Across the Medicines Lifecycle : A Patient Engagement Impact Measurement Framework. The Patient, 18(1), 3‑18. https://doi.org/10.1007/s40271-024-00713-7

Richards, D. P. (2025). Dear sceptics of patient engagement in research. BMJ (Clinical Research Ed.), 388, r133. https://doi.org/10.1136/bmj.r133

Lynch, E., Earle-Bandaralage, L., Eley, S., Gancia, A., Larcombe, S., Muthuralingam, S., Townsin, L., Wardill, H., Corsini, N. (2025). Credit where it’s due : Recognising lived experience in research authorship. Patient Education and Counseling, 130, 108472. https://doi.org/10.1016/j.pec.2024.108472

Sangong, S., Saah, F. I., Bain, L. E. (2025). Effective community engagement in one health research in Sub-Saharan Africa : A systematic review. One Health Outlook, 7(1), 4. https://doi.org/10.1186/s42522-024-00126-4

Spellecy, R., Nencka, A. (2025). Addressing Risk in Data Centric Research via Community Engagement. The American Journal of Bioethics : AJOB, 25(2), 85‑87. https://doi.org/10.1080/15265161.2024.2441698

Suliman, S., Agyei, L., Afzal, S. A., Williams, S. (2025). Leveraging community engagement to shape biomedical research priorities. Trends in Immunology, S1471-4906(24)00306-5. https://doi.org/10.1016/j.it.2024.12.004

Younan, E., McIntyre, S., Garrity, N., Karim, T., Wallace, M., Gross, P., Goldsmith, S. (2025). Involving people with lived experience when setting cerebral palsy research priorities : A scoping review. Developmental Medicine and Child Neurology. https://doi.org/10.1111/dmcn.16219

DelDot M., Lau E., Rayner N., Spinks J., Kelly F., Nissen L. (2024). Consumer Involvement in the Design and Development of Medication Safety Interventions or Services in Primary Care : A Scoping Review. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(6), e70092. https://doi.org/10.1111/hex.70092

Drinkwater J., Farr M., Hickey G., Van Vliet E., Söderholm Werkö S., Klingmann I., Blackburn S. (2024). Series : Public engagement with research. Part 3 : Sharing power and building trust through partnering with communities in primary care research. The European Journal of General Practice, 30(1), 2328707. https://doi.org/10.1080/13814788.2024.2328707

Fitzpatrick, S. J., Lamb, H., Oldman, E., Giugni, M., Chakouch, C., Morse, A. R., Gulliver, A., Stewart, E., Oni, H. T., Miller, B., Edwards, B., Stewart, K., Bliokas, V., Ellis, L. A., Shand, F., Calear, A. L., & Banfield, M. (2024). Co-Creation in Research : Further Reflections From the « Co-Creating Safe Spaces » Project. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(6), e70103. https://doi.org/10.1111/hex.70103

Atfeh J, Guerre P, Berkesse A, Thual G, Pozzi M, Huot L. (2°24). Involving Patients in Hospital-Based Health Technology Assessment of Innovative Medical Devices: Adapting to a Specific Local Context and Lessons Learned From the Assessment of an Ex Vivo Perfusion System of Human Donor Hearts. Health Expectation. Dec;27(6):e70119. doi: 10.1111/hex.70119. PMID: 39660693; PMCID: PMC11632624.

Francis, A., Le, A., Adams-Leask, K., Procter, N. (2024). Utilising co-design to develop a lived experience informed personal safety tool within a mental health community rehabilitation setting. Australian Occupational Therapy Journal, 71(6), 1076‑1088. https://doi.org/10.1111/1440-1630.12988

Gaber, S. N., Guerrero, M., Rosenberg, L. (2024). Participatory research approaches in long-term care facilities for older adults : A meta-ethnography. International Journal of Qualitative Studies on Health and Well-Being, 19(1), 2431449. https://doi.org/10.1080/17482631.2024.2431449

Hawke L. D., Quilty L., Agic B., Courtney D. B., Liddell G., Sibille E., Jennings S., Orson J., Harris H., McKee S., Sullivan C., Soklaridis S., Rajji T. K., Sockalingam S. (2024). Lived Experience and Family Engagement in Mental Health and Substance use Health Research : Case Profiles of Five Studies. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(6), e70087. https://doi.org/10.1111/hex.70087

Healey M., Craig J., Thomas S., Tizzard J., Puddister K., McGowan E. L., Twells L. K., Wadden K. P. (2024). Co-creation of a qualitative fertility research study to understand waiting time experiences through patient engagement. Research Involvement and Engagement, 10(1), 131. https://doi.org/10.1186/s40900-024-00665-0

Hennessy, M., Dennehy, R., O’Leary, H., & O’Donoghue, K. (2024). Involving Knowledge Users in Health Services Research : Collective Reflections and Learning From a National Evaluation of Recurrent Miscarriage Services. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(6), e70125. https://doi.org/10.1111/hex.70125

Kakoulidou, M., Pavlopoulou, G., Chandler, S., Lukito, S., Matejko, M., Jackson, I., Balwani, B., Boyens, T., Poulton, D., Harvey-Nguyen, L., Glen, Z., Wilson, A., Ly, E., Macauley, E., Baker, S., Bullen, G., Sonuga-Barke, E. J. S. (2024). Deepening the participation of neurodivergent youth in qualitative mental health research : Co-development of a general approach and the evaluation of its implementation in a study on emotion. JCPP Advances, 4(4), e12287. https://doi.org/10.1002/jcv2.12287

Michail,M. (2024). Shining a spotlight on youth involvement in mental health research : Challenges and innovations. JCPP Advances, 4(4), e12285. https://doi.org/10.1002/jcv2.12285

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Trimmel, M., Renner, A., Mossaheb, N., Friedrich, F., Kaltenboeck, A., Baumgartner, J. S., Kaisler, R. E., Litvan, Z., Voice Consortium, T., Hinterbuchinger, B. (2024). Exploring the subjective experience of researchers and co-researchers with lived experience of psychosis high risk states : A qualitative analysis within a participatory research process. BMC Psychiatry, 24(1), 899. https://doi.org/10.1186/s12888-024-06367-x

Wiehe, S. E., Nelson, T. L., Hawryluk, B., Andres, U. M., Aalsma, M. C., Rosenman, M. B., Butler, M. S., Harris, M., Moore, K., Scott, C. D., Gharbi, S., Parks, L., Lynch, D., Silverman, R. D., Fortenberry, J. D. (2024). Unlocking success : Community engagement for enhanced HIV care outcomes. Research Involvement and Engagement, 10(1), 127. https://doi.org/10.1186/s40900-024-00657-0

Wilkinson, C., Gibson, A., Biddle, M., Hobbs, L. (2024). Public involvement and public engagement : An example of convergent evolution ? Findings from a conceptual qualitative review of patient and public involvement, and public engagement, in health and scientific research. PEC Innovation, 4, 100281. https://doi.org/10.1016/j.pecinn.2024.100281

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Bartnick, C., Christiansen, H., & Schneider, S. (2024). Giving children a voice : Concept development and foundation of the first Children’s council « mental health » in Germany. JCPP Advances, 4(4), e12293. https://doi.org/10.1002/jcv2.12293

Bauquier, C., Pannard, M., Andrin, A., Biaudet, J., Parnalland, S., Dabakuyo, S., Guillemin, F., Paret, G., Jacob, G., & Préau, M. (2024). Fostering patients’ participation in oncology research by developing psychological empowerment and a sense of community. Journal of Epidemiology and Population Health, 72(6), 202781. https://doi.org/10.1016/j.jeph.2024.202781

Boydell, N., & Blaylock, R. (2024). Reflections and future directions for patient and public involvement and engagement (PPIE) in abortion research and service improvement. BMJ Sexual & Reproductive Health, bmjsrh-2024-202441. https://doi.org/10.1136/bmjsrh-2024-202441

Bullock, G. S., Fallowfield, J., Fisher, B., Whittaker, J. L., Gafari, O., & Bilzon, J. L. J. (2024). Prioritizing Knowledge User Engagement : Engaging Patients and the Public in Creating Enduring Musculoskeletal Rehabilitation Research. The Journal of Orthopaedic and Sports Physical Therapy, 54(12), 1‑5. https://doi.org/10.2519/jospt.2024.12668

Christie-de Jong, F., Eberhardt, J., Ling, J., Kotzur, M., Oyeniyi, O. S., Nnyanzi, L., Kabuye, J., Kalemba, M., & Robb, K. A. (2024). The PROCAN-B study protocol : Early diagnosis of PROstate CANcer for Black men-a community-centred participatory approach in Scotland and the North-East of England. PloS One, 19(12), e0315288. https://doi.org/10.1371/journal.pone.0315288

Cockcroft, E., Bassi, V., Mok, P. L. H., Adams, A., Claro, A. A., Trafford, A. M., Carr, M. J., Ashcroft, D. M., Garavini, E., Temple, R., Webb, R. T., Garg, S., & Chew-Graham, C. A. (2024). Involving People With Lived Experience in Electronic Health Record Database Studies Reflections and Learning From the CHOOSE Study. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(6), e70131. https://doi.org/10.1111/hex.70131

Voz, B., Pétré, B., Orianne, J.-F. (2024). Improving the hospital or immunizing its organization ? Patient and public involvement at the service of quality. Frontiers in Sociology, 9, 1444955. https://doi.org/10.3389/fsoc.2024.1444955

Bauquier, C., Pannard, M., Andrin, A., Biaudet, J., Parnalland, S., Dabakuyo, S., Guillemin, F., Paret, G., Jacob, G., Préau, M. (2024). Fostering patients’ participation in oncology research by developing psychological empowerment and a sense of community. Journal of Epidemiology and Population Health, 72(6), 202781. https://doi.org/10.1016/j.jeph.2024.202781

Elonge, E., Cooke, C. E., Lee, M., Tang, V., Haynes, J.-A., Wang, S., Genuit, A., Isetts, B., Pellegrin, K., Mikami, J., Price, D., Brandt, N. (2024). Co-designing Medication Optimization Patient-Centered Outcomes Research With Older People and Caregivers as Research Partners. The Senior Care Pharmacist, 39(11), 425‑431. https://doi.org/10.4140/TCP.n.2024.425

Gaber, S. N., Guerrero, M., Rosenberg, L. (2024). Participatory research approaches in long-term care facilities for older adults : A meta-ethnography. International Journal of Qualitative Studies on Health and Well-Being, 19(1), 2431449. https://doi.org/10.1080/17482631.2024.2431449

Jackson-Perry, D., Cart-Richter, E., Haerry, D., Ahmeti, L., Bieri, A., Calmy, A., Ballif, M., Pasin, C., Notter, J., Amstutz, A. (2024). Patient and public involvement in HIV research : A mapping review and development of an online evidence map. Journal of the International AIDS Society, 27(11), e26385. https://doi.org/10.1002/jia2.26385

Johnson E., Uteh, C. O., Belilios, E., Pearson, F. (2024). Reporting of Patient and Public Involvement in Technology Appraisal and Assessment Reports : A Rapid Scoping Review. The Patient. https://doi.org/10.1007/s40271-024-00721-7

Owrid, O., Richardson, L., Allan, S., Grant, A., Gogan, S., Hamilton, N., Yanga, F., Sirey, N., Syrett, S., Garety, P., Craig, T., Clancy, M., Pinfold, V., Miller, L., Ward, T., Edwards, C. (2024). « There’s no us vs. Them, it’s just us » : A creative approach to centring lived experience within the AVATAR2 trial. BMC Psychiatry, 24(1), 807. https://doi.org/10.1186/s12888-024-06268-z

Pyne, E., Joyce, R., Dwyer, C. P., Hynes, S. M. (2024). Evaluating public and patient involvement in interventional research-A newly developed checklist (EPPIIC). PloS One, 19(11), e0301314. https://doi.org/10.1371/journal.pone.0301314

Wallcook, S., Dohrn, I.-M., Dahlkvist, U., Domeij, Y., Green, K., Isaksson, G., Goliath, I. (2024). Outputs from a model of co-research with older care-experienced people in Sweden to advance eldercare services. Research Involvement and Engagement, 10(1), 121. https://doi.org/10.1186/s40900-024-00650-7

Ferguson, C., William, S., Allida, S. M., Fulcher, J., Jenkins, A. J., Lattimore, J.-D., Loch, L.-J., Keech, A. (2024). A co-design case study of the development of heart failure e-TIPS to support self-management. JMIR Cardio. https://doi.org/10.2196/57328

Fischer, A., Aguayo, G., Pinker, I., Oustric, P., Lachaise, T., Wilmes, P., Larché, J., Benoy, C., Fagherazzi, G. (2024). Co-design of a voice-based app to monitor long COVID symptoms with its end-users : A mixed-method study. Digital Health, 10, 20552076241272671. https://doi.org/10.1177/20552076241272671

Quilter, E. E. V., Downes, S., Deighan, M. T., Stuart, L., Charles, R., Tittensor, P., Junges, L., Kissack, P., Qureshi, Y., Kamaraj, A. K., Brigden, A. (2024). A Digital Intervention for Capturing the Real-Time Health Data Needed for Epilepsy Seizure Forecasting : Protocol for a Formative Co-Design and Usability Study (The ATMOSPHERE Study). JMIR Research Protocols, 13, e60129. https://doi.org/10.2196/60129

Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2024). Help with Prescribing Mobile Health Applications A Partnership Design. in « Experience in Health Innovation : Ephemeral Fashions or New Paradigm ? – Crossed perspectives in the health ecosystem« , London :Editions Wiley, pp 227-237.

da Cruz Peniche, P., de Morais Faria, C. D. C., Hall, P., Fingleton, C., McPhillips, L., Gaetz, R., Roche, A., McCann, L., O’Beaglaoich, P., Murphy, D., Hickey, J., Lennon, O. (2024). A scoping review of patient and public involvement in empirical stroke research. International Journal of Stroke : Official Journal of the International Stroke Society, 17474930241262638. https://doi.org/10.1177/17474930241262638

Peters, S., Guccione, L., Francis, J., Best, S., Tavender, E., Curran, J., Davies, K., Rowe, S., Palmer, V. J., Klaic, M. (2024). Evaluation of research co-design in health : A systematic overview of reviews and development of a framework. Implementation Science : IS, 19(1), 63. https://doi.org/10.1186/s13012-024-01394-4

Schilling, I., Gerhardus, A. (2024). Is this really Empowerment ? Enhancing our understanding of empowerment in patient and public involvement within clinical research. BMC Medical Research Methodology, 24(1), 205.
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Vervoort, J. P. M., Konijn, W. S., Jansen, D. E. M. C., Boersma, C., de Zeeuw, J., Ho-Dac-Pannekeet, M. M., Gansevoort, R. T., Messchendorp, A. L., Sanders, J. S. F., de Wildt-Liesveld, R. (2024). Patient engagement as a collaborative process in a large Dutch COVID-19 vaccination study (RECOVAC)—Insight into the contribution of patient engagement and learnings for the future. Research Involvement and Engagement, 10(1), 96. https://doi.org/10.1186/s40900-024-00622-x

Man, C., Liu, T., Yan, S., Xie, Q., Liu, H. (2024). Research status and hotspots of patient engagement : A bibliometric analysis. Patient Education and Counseling, 125, 108306. https://doi.org/10.1016/j.pec.2024.108306

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Rabi, S., Patton, M., Santana, M.-J., Tang, K. L. (2024). Patient engagement in the development and implementation of navigation services : A scoping review protocol. BMJ Open, 14(8), e082666. https://doi.org/10.1136/bmjopen-2023-082666

Carroll, P., Smith, É., Dervan, A., McCarthy, C., Woods, I., Beirne, C., Harte, G., O’Flynn, D., Quinlan, J., O’Brien, F. J., Flood, M., Moriarty, F. (2024). The Development of Principles for Patient and Public Involvement (PPI) in Preclinical Spinal Cord Research : A Modified Delphi Study. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(4), e14130. https://doi.org/10.1111/hex.14130

Robert, G., Donetto, S., Masterson, D., Kjellström, S. (2024). Applying models of co-production in the context of health and wellbeing. A narrative review to guide future practice. International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care, mzae077. https://doi.org/10.1093/intqhc/mzae077

Padden-Modi, M., Rush, H., Abdel-Aty, H., Matheson, D., Millman, R., Williams, P., Tombal, B., James, N. (2024). How Can Participant Experience of Quality-of-Life Research Be Improved in Cancer Research : Views of the Patient and Public Involvement Representatives from the STAMPEDE2 Prostate Cancer Trial. European Urology Oncology, S2588-9311(24)00185-8. https://doi.org/10.1016/j.euo.2024.07.012

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Griffiths, S., Robertson, M., Kaviraj, C., Davies, F., McDevitt, M., Richards, A., Russell, M. (2024). Reflections on co-production : Developing a dementia research funding application with a diverse lived experience group. Dementia (London, England), 23(5), 709‑723.

Keij, S. M., Lie, H. C., Laidsaar-Powell, R., Kunneman, M., de Boer, J. E., Moaddine, S., Stiggelbout, A. M., & Pieterse, A. H. (2024). Corrigendum to « Patient-related characteristics considered to affect patient involvement in shared decision making about treatment : A scoping review of the qualitative literature » Patient Education and Counseling 111 (2023) 107677. Patient Education and Counseling, 124, 108257.

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J., Moayyedi, P., Bryan, S. (2024). Studying How Patient Engagement Influences Research : A Mixed Methods Study. The Patient, 17(4), 379‑395.

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Rodriguez, A., Shambhunath, S., Wijesiri, T. I. D., Biazus-Dalcin, C., Mc Goldrick, N. (2024). Co-design of health educational materials with people experiencing homelessness and support workers : A scoping review. Frontiers in Oral Health, 5, 1355349. https://doi.org/10.3389/froh.2024.1355349

Visser, M., ’t Hart, N., de Mul, M., Weggelaar-Jansen, A. M. (2024). The Perspectives of Healthcare Professionals and Managers on Patient Involvement in Care Pathway Development : A Discourse Analysis. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(3), e14101. https://doi.org/10.1111/hex.14101

Alrayshouni, Z., Dayekh, A., El-Tassi, A., Pakai, A. (2024). Rationalizing the Influence of Co-Design on Distress, Clinical Decision-Making and Disease Self-Management of Cancer Patients-as-Partners : A Quasi-Experimental Study. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(3), e14113. https://doi.org/10.1111/hex.14113

Beresford, C. J., Rahman, M., Gray, Y., Ramshaw, S., Gelling, L., Baron, S., Dominey, J. (2024). Embedding Public Involvement in a PhD Research Project With People Affected by Advanced Liver Disease. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(3), e14097. https://doi.org/10.1111/hex.14097

de Alcântara Mendes, J. A., Lucassen, M., Adams, A., Martin, L., Aicardi, C., Woodcock, R., Nielsen, E., Townsend, E., Jirotka, M. (2024). Patient and Public Involvement (PPI) and Responsible Research and Innovation (RRI) approaches in mental health projects involving young people : A scoping review protocol. Research Involvement and Engagement, 10(1), 60. https://doi.org/10.1186/s40900-024-00591-1

Lammons, W., Nobility, L., Markham, S., Saloniki, E.-C. (2024). PPIE in a technical research study : Using public involvement to refine the concept and understanding and move towards a multidimensional concept of disability. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(3), e14072. https://doi.org/10.1111/hex.14072

Peniche, P., de Morais Faria, C. D. C., Hall, P., Fingleton, C., McPhillips, L., Gaetz, R., Roche, A., McCann, L., O’Beaglaoich, P., Murphy, D., Hickey, J., Lennon, O. (2024). A Scoping Review of Patient and Public Involvement (PPI) in Empirical Stroke Research. International Journal of Stroke : Official Journal of the International Stroke Society,17474930241262638.
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Brown, P., Singh, H., Su, E., Sirisegaram, L., Munce, S. E. P., Eaton, A. D., Zhabokritsky, A., McKinlay, S., Kokorelias, K. M. (2024). Understanding the use of co-design methods for research involving older adults living with HIV: A scoping review protocol. PloS One, 19(5), e0303580.
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Benz, C., Scott-Jeffs, W., McKercher, K. A., Welsh, M., Norman, R., Hendrie, D., Locantro, M., Robinson, S. (2024). Community-based participatory-research through co-design : Supporting collaboration from all sides of disability. Research Involvement and Engagement, 10(1), 47. https://doi.org/10.1186/s40900-024-00573-3

Moult, A., Aries, A., Bailey, P., Paskins, Z. (2024). Reflecting on activities which support public involvement within an evaluation of public involvement reports from facilities funded by the national institute for health and care research : A co-produced commentary. Research Involvement and Engagement, 10(1), 46. https://doi.org/10.1186/s40900-024-00579-x

Doughty, J., Preston, J., Paisi, M., Hudson, A., Burns, F., Porter, S. R., Watt, R. G. (2024). Embedding patient and public involvement into a doctoral study : Developing a point-of-care HIV testing intervention for dental settings. Frontiers in Oral Health, 5, 1359132.
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Haroutounian, S., Holzer, K. J., Kerns, R. D., Veasley, C., Dworkin, R. H., Turk, D. C., Carman, K. L., Chambers, C. T., Cowan, P., Edwards, R. R., Eisenach, J. C., Farrar, J. T., Ferguson, M., Forsythe, L. P., Freeman, R., Gewandter, J. S., Gilron, I., Goertz, C., Grol-Prokopczyk, H., … Vollert, J. (2024). Patient engagement in designing, conducting, and disseminating clinical pain research : IMMPACT recommended considerations. Pain, 165(5), 1013‑1028.
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Phillips, O. R., Harries, C., Leonardi-Bee, J., Knight, H., Sherar, L. B., Varela-Mato, V., Morling, J. R. (2024). What are the strengths and limitations to utilising creative methods in public and patient involvement in health and social care research ? A qualitative systematic review. Research Involvement and Engagement, 10(1), 48. https://doi.org/10.1186/s40900-024-00580-4

wska, M., Kelly, C., Gunn, B., Meiksin, R., Scott, R. H., Palmer, M. J., Wellings, K., Lohr, P. A., French, R. S., N/A, T. S. S. T. (2024). Patient and public involvement in abortion research : Reflections from the Shaping Abortion for Change (SACHA) Study. BMJ Sexual & Reproductive Health, 50(2), 142‑145. https://doi.org/10.1136/bmjsrh-2023-202018

Carroll, P., Dervan, A., McCarthy, C., Woods, I., Beirne, C., Harte, G., O’Flynn, D., O’Connor, C., McGuire, T., Leahy, L. M., Gonzalez, J. G., Stasiewicz, M., Maughan, J., Quinlan, J., Smith, É., Moriarty, F., O’Brien, F. J., Flood, M. (2024). The role of Patient and public involvement (PPI) in pre-clinical spinal cord research : An interview study. PloS One, 19(4), e0301626. https://doi.org/10.1371/journal.pone.0301626

Elsolh, K., Li, A., Hu, M., Seleq, S., Neary, E., Gimpaya, N., Scaffidi, M. A., Kishibe, T., Khan, R., Grover, S. C. (2024). Patient and Public Involvement in Inflammatory Bowel Disease Research-A Scoping Review. Journal of the Canadian Association of Gastroenterology, 7(2), 137‑148. https://doi.org/10.1093/jcag/gwad054

Erwin, J., Burns, L., Devalia, U., Witton, R., Shawe, J., Wheat, H., Axford, N., Doughty, J., Kaddour, S., Nelder, A., Brocklehurst, P., Boswell, S., Paisi, M. (2024). Co-production of health and social science research with vulnerable children and young people : A rapid review. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(2), e13991. https://doi.org/10.1111/hex.13991

Hammoud, S., Alsabek, L., Rogers, L., McAuliffe, E. (2024). Systematic review on the frequency and quality of reporting patient and public involvement in patient safety research. BMC Health Services Research, 24(1), 532. https://doi.org/10.1186/s12913-024-11021-z

Hilton, A., Megson, M., Aryankhesal, A., Blake, J., Rook, G., Irvine, A., Um, J., Killett, A., Maidment, I., Loke, Y., van Horik, J., Fox, C. (2024). What really is nontokenistic fully inclusive patient and public involvement/engagement in research? Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(2), e14012. https://doi.org/10.1111/hex.14012

Hough, K., Grasmeder, M., Parsons, H., Jones, W. B., Smith, S., Satchwell, C., Hobday, I., Taylor, S., Newman, T. (2024). Patient and public involvement and engagement (PPIE) : How valuable and how hard ? An evaluation of ALL_EARS@UoS PPIE group, 18 months on. Research Involvement and Engagement, 10(1), 38. https://doi.org/10.1186/s40900-024-00567-1

Janssens, N., Van Wilder, L., Van Hecke, A., Van Hoorenbeeck, K., Vanden Wyngaert, K., De Smedt, D., Goossens, E. (2024). COCCOS study : Developing a transition program for adolescents with chronic conditions using Experience-Based Co-Design. A study protocol. PloS One, 19(4), e0298571. https://doi.org/10.1371/journal.pone.0298571

Karlsson, A. W., Kragh-Sørensen, A., Børgesen, K., Behrens, K. E., Andersen, T., Maglekær, K. M., Rothmann, M. J., Ketelaar, M., Petersen, E. N., Janssens, A. (2024). Wider institutional research cultures and their influence on patient and public involvement and engagement in health research—An institutional ethnography. Social Science & Medicine (1982), 347, 116773.
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Campbell, C. I., Chen, C.-H., Adams, S. R., Asyyed, A., Athale, N. R., Does, M. B., Hassanpour, S., Hichborn, E., Jackson-Morris, M., Jacobson, N. C., Jones, H. K., Kotz, D., Lambert-Harris, C. A., Li, Z., McLeman, B., Mishra, V., Stanger, C., Subramaniam, G., Wu, W., … Marsch, L. A. (2023). Patient Engagement in a Multimodal Digital Phenotyping Study of Opioid Use Disorder. Journal of Medical Internet Research, 25, e45556. https://doi.org/10.2196/45556

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Frith, L. (2023). Democratic Justifications for Patient Public Involvement and Engagement in Health Research : An Exploration of the Theoretical Debates and Practical Challenges. The Journal of Medicine and Philosophy, 48(4), 400‑412. https://doi.org/10.1093/jmp/jhad024

Hinton, E. C., Fenwick, C., Hall, M., Bell, M., Hamilton-Shield, J. P., & Gibson, A. (2023). Evaluating the benefit of early patient and public involvement for product development and testing with small companies. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(3), 1159‑1169. https://doi.org/10.1111/hex.13731

Husson, M., Dechartres, A., Ramdjee, B., Diverres, M., Zejli, T., L’henaff, M., Jehanno, E., Tubach, F., Caille, A. (2023). Patient and public involvement is suboptimal in randomized controlled trials addressing a chronic condition. Journal of Clinical Epidemiology, S0895-4356(23)00159-2. https://doi.org/10.1016/j.jclinepi.2023.06.012

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McKenna, V. B., Sixsmith, J., Byrne, N. (2023). Patient public involvement (PPI) in health literacy research : Engagement of adults with literacy needs in the co-creation of a hospital-based health literacy plan. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(3), 1213‑1220. https://doi.org/10.1111/hex.13736

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Pomey M.-P., Bush P. L., Demers-Payette O., L’Espérance A., Lochhead L., Ganache I., Roy D. (2020) « Developing recommendations for the diagnosis and treatment of Lyme disease: the role of the patient’s perspective in a controversial environment« . International Journal of Technology Assessment in Health Care. Publié en ligne par Cambridge University Press: 23 December 2020

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Ballesteros Gallego F., Martin C., Allard J., Anthony S. J., Dumez V., Hartell D., Hébert M.-J., Knoll F., West J. W, Wright L., Fortin M.-C. (2018). » Defining Future Research Priorities in Donation and Organ and Stem Cell Transplantation With Patients, Families, Caregivers, Healthcare Providers and Researchers Within the Canadian National Transplant Research Program ». Transplantation Direct;4: e360; doi: 10.1097/TXD.0000000000000791

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van Schelven, F., van Weele, M., van der Meulen, E., Wessels, E., Boeije, H. (2024). Patient and public involvement in the development of the digital tool MyBoT to support communication between young people with a chronic condition and care providers. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(2), e14003. https://doi.org/10.1111/hex.14003

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Khanal, V., Shaw, T., Wills, E., Wakerman, J., Russell, D. J. (2024). Co-design of digital health technologies in Australian First Nations communities. The Lancet. Digital Health, 6(2), e90. https://doi.org/10.1016/S2589-7500(23)00251-0

Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2023). « L’aide à la prescription d’application mobiles de santé : Une innovation dans et par la relation médecin patient », dans L’expérience dans l’Innovation en santé : modes éphémères ou nouveau paradigme ? – Regards croisés dans l’écosystème de la santé ». Londres : Iste.

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Keogh, A., Mc Ardle, R., Diaconu, M. G., Ammour, N., Arnera, V., Balzani, F., Brittain, G., Buckley, E., Buttery, S., Cantu, A., Corriol-Rohou, S., Delgado-Ortiz, L., Duysens, J., Forman-Hardy, T., Gur-Arieh, T., Hamerlijnck, D., Linnell, J., Leocani, L., McQuillan, T., Neatour I ?, Polhémus A., Remmele W., Saraiva I., Scott K., Sutton N., Van den Brande K., Vereijken B., Wohlrab M., Rochester, L. (2023). Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions : Tutorial. Journal of Medical Internet Research, 25, e44206. https://doi.org/10.2196/44206

Lammons, W., Silkens, M., Hunter, J., Shah, S., Stavropoulou, C. (2023). Centering Public Perceptions on Translating AI Into Clinical Practice : Patient and Public Involvement and Engagement Consultation Focus Group Study. Journal of Medical Internet Research, 25, e49303. https://doi.org/10.2196/49303

Voorheis, P., Petch, J., Pham, Q., Kuluski, K. (2023). Maximizing the value of patient and public involvement in the digital health co-design process : A qualitative descriptive study with design leaders and patient-public partners. PLOS Digital Health, 2(10), e0000213.
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Dalko, K., Kraft, B., Jahn, P., Schildmann, J., Hofstetter, S. (2023). Cocreation of Assistive Technologies for Patients With Long COVID: Qualitative Analysis of a Literature Review on the Challenges of Patient Involvement in Health and Nursing Sciences. Journal of Medical Internet Research, 25, e46297. https://doi.org/10.2196/46297

King-Mullins, E., McElroy, I. E. (2023). Social media for patient engagement. Surgery, S0039-6060(23)00432-4. https://doi.org/10.1016/j.surg.2023.07.005

Jakab, I., Dimitrova, M., Houÿez, F., Bereczky, T., Fövényes, M., Maravic, Z., Belina, I., Andriciuc, C., Tóth, K., Piniazhko, O., Hren, R., Gutierrez-Ibarluzea, I., Czech, M., Tesar, T., Niewada, M., Lorenzovici, L., Kamusheva, M., Manova, M., Savova, A., … Kaló, Z. (2023). Recommendations for patient involvement in health technology assessment in Central and Eastern European countries. Frontiers in Public Health, 11, 1176200. https://doi.org/10.3389/fpubh.2023.1176200

Sá-Sousa, A., Rodrigues, T., Fernandes, S., Santos, A. M., Garcia-Lema, I., Costa, E. D., Chaves Loureiro, C., Boechat, J. L., Baía Reis, A., Figueiredo, D., Fonseca, J. A., Neves, A. L., Jácome, C. (2023). ConectAR: Collaborative network of patients with asthma and carers actively involved in health research : A protocol for patient and public involvement. European Annals of Allergy and Clinical Immunology, 55(4), 180‑188. https://doi.org/10.23822/EurAnnACI.1764-1489.249

Almutairi, N., Vlahu-Gjorgievska, E., Win, K. T. (2023). Persuasive features for patient engagement through mHealth applications in managing chronic conditions : A systematic literature review and meta-analysis. Informatics for Health & Social Care, 48(3), 267‑291. https://doi.org/10.1080/17538157.2023.2165083

Chee, A., Abdel-Rasoul, M., Zoretich, K., Diaz, K., Noria, S. F. (2023). Bariatric Patient Engagement in a Pre-surgery Virtual Patient Navigation Platform (VPNP). Obesity Surgery. https://doi.org/10.1007/s11695-023-06558-7

Vallis M., Ryan H., Berard L., Cosson E., Kristensen F. B., Levrat-Guillen F., Nicolas Naiditch, Rabasa-Lhoret R., Polonsky W. ( 2023). How Continuous Glucose Monitoring Can Motivate Self-management: Can Motivation Follow Behaviour? Canadian Journal of Diabetes, Vol. 47, Issue 5, pp. 435-444. Bavngaard, M. V., Lüchau, E. C., Hvidt, E. A., Grønning, A. (2023). Exploring patient participation during video consultations : A qualitative study. Digital Health, 9, 20552076231180680. https://doi.org/10.1177/20552076231180682

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Turner, J. H. (2023). Cancer Care by Committee to be Superseded by Personal Physician-Patient Partnership Informed by Artificial Intelligence. Cancer Biotherapy & Radiopharmaceuticals.
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Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2022). « Innover par l’aide à la décision dans la relation médecin-patient d’application mobiles : la recherche ApiAppS ». Le partenariat de soin avec le patient : analyses : Université Côte d’azur, N° 4, pp. 73-94.

Banerjee S., Alsop P., Jones L., Cardinal R. N. (2022). Patient and public involvement to build trust in artificial intelligence : A framework, tools, and case studies. Patterns (New York, N.Y.), 3(6), 100506.

Pinho-Gomes A.-C., Stone J., Shaw T., Heath A., Cowl J., Norburn L., Thomas V., Scott S. (2022). Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development : A scoping review. International Journal of Technology Assessment in Health Care, 38(1), e46.

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Harrington K., Craven M.-P. , Wilson M. L. , Landowska A. (2022). « Perceptions of Cognitive Training Games and Assessment Technologies for Dementia: Acceptability Study With Patient and Public Involvement Workshops ». JMIR Serious Games 2022;10(2):e32489, doi: 10.2196/32489

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Smithson M., McLeod M. C., Theiss L., Shao C., Kennedy G., Hollis R., Chu D. I., Hardiman K. M. (2022). « Ileostomy Patients Using Patient Engagement Technology Experience Decreased Length of Stay« . Journal of Gastrointestinal Surgery : Official Journal of the Society for Surgery of the Alimentary Tract, 26(3), pp. 635‑642. https://doi.org/10.1007/s11605-021-05158-z

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Knowles S. E., Allen D., Donnelly A., Flynn J., Gallacher K., Lewis A., McCorkle G., Mistry M., Walkington P., Brunton L. (2022). « Participatory codesign of patient involvement in a Learning Health System : How can data-driven care be patient-driven care? » Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 25(1), pp.103‑115. https://doi.org/10.1111/hex.13345

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