dans le recherche – Centre d'Innovation du partenariat avec les patients et le public (CI3P)

Cette espace met à disposition une bibliographie par catégories :

En premier lieu, vous trouverez les publications du CI3P sur le partenariat de soin avec le patient
en second lieu apparait la bibliographie publiée sur le partenariat de soin en partenariat avec le patient selon le modèle de Montréal
En troisième lieu vous est proposé une bibliographie conséquente sur l’implication des patients dont est issu le partenariat de soin avec le patient tels que développés par le Centre d’Innovation du partenariat avec les patients et le Public et le Centre d’Innovation du Partenariat avec les Patients et le Public.

Bibliographie produite par le CI3P et ses membres

Flora L. (2023). « Savoirs expérientiels en santé et expertises patients ». dans Troubles dans le monde du bénévolat, (Dir. Ferrand-Bechmann D.), Paris : Chroniques sociales, pp.60-67.

Lunel A., Flora L. (2023) » Avant propos. » Le Journal de droit de la santé et de l’assurance maladie, N° 36, p. 9.

Flora L. (2023). » La place des patients au 21ème siècle : l’exemple de l’implication des patients partenaires avec le CI3P dans l’environnement numérique. » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 10-18..

Rubinstein S. (2023). » L’e-santé mentale : miroir aux alouettes ou futur des soins psychiatriques ? » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 25-33.

Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2022). « Innover par l’aide à la décision dans la relation médecin-patient d’application mobiles : la recherche ApiAppS ». Le partenariat de soin avec le patient : analyses, Université Côte d’azur, N° 4, pp. 73-94.

Flora L., Koenig M.(2021). « La question du rétablissement et du patient partenaire », in Manuel de la psychiatrie » 4ème édition. (coord. Luc Mallet, Julien Guelfi, Frédéric Rouillon), Paris : Edition Elsevier Masson, pp. 779-782.

Bonardi C., Karcher B., Collazzo G., Barbaroux A., Balez E., Faure S., Halloy A., Flora L. (2021). « Partenariat avec les patients : les leçons d’une pandémie », Neuropsychologie, 13 (2), pp. 116-120.

Pomey M.-P., Clavel N., Normandin L. Del Grande C. Ghadiri D. P., Fernandez-McAuley I., Boivin A., Flora L., Janvier A., Karazivan P., Pelletier J.-F., Fernandez N., Paquette J. Dumez V. (2021) « Assessing and promoting partnership between patients and healthcare professionals : co-construction of the CADICEE tool for patients and their relatives » Health Expectations. Vol. 24, Issue 4, pp.1230-1241

Barchewitz M., Charels M., Flora L., Gueroult-Accolas, L., Honoré S., Allenet .B, Hache G.(2021). »Connaissances et représentations sur le partenariat patient : enquête auprès des pharmaciens. » Le Pharmacien Hospitalier et Clinicien

Pétré B., Louis G., Voz B., Berkesse A., Flora L. (2020). »Patient partenaire : de la pratique à la recherche. » Santé publique, Vol. 32, N° 4, Juillet-août, pp. 371-374

Faure S., Halloy A., Karcher B., Flora L., Colazzo G., Barbaroux A., Balez E., Bonardi C. (2020). « Polyphonies sur les enjeux du partenariat patient au temps du COVID-19, Revue de Neuropsychologie, Neurosciences Cognitives et Cliniques, V. 12, N° 2, Avril-mai-juin 2020, pp. 232-237.

Carayol-Ravot M. (2020). Covid-19 : crise sanitaire, confinement et maladies chroniques. Impact du confinement sur l’expérience patient et le partenariat entre patients et professionnels de santé. Mémoire de Master de santé publique. Université Aix Marseille.

Flora L., Darmon D. Benattar J.-M. (Coord.).(2019), Contribution à l’état de l’art : Retour sur le 1er colloque International en France sur le partenariat de soin avec le patient à partir des communications et écoévaluations. Centre d’Innovation du Partenariat avec les Patients et le Public (CI3P), Université côte d’azur.

Bibliographie sur le partenariat de soin avec les patients dans la recherche

Hatfield .D (2023). Conceptualising patient and public engagement and involvement (PPEI) for commissioning and designing health and care services as situated learning. Brighton University. DOI : https://doi.org/10.17033/DATA.00000303

Loubière, S., Loundou, A., Auquier, P., Tinland, A. (2023). Psychiatric advance directives facilitated by peer workers among people with mental illness: Economic evaluation of a randomized controlled trial (DAiP study). Epidemiology and Psychiatric Sciences, 32, E27. doi:10.1017/S2045796023000197

Nielssen, I., Ahmed, S., Zelinsky, S., Dompe, B., Fairie, P., Santana, M. J. (2023). Co-building a training programme to facilitate patient, family and community partnership on research grants : A patient-oriented research project. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. https://doi.org/10.1111/hex.13763

Riches, L., Ridgway, L., Edwards, L. (2023). Co-learning commentary : A patient partner perspective in mental health care research. Research Involvement and Engagement, 9(1), 24. https://doi.org/10.1186/s40900-023-00435-4

Yous, M.-L., Ganann, R., Ploeg, J., Markle-Reid, M., Northwood, M., Fisher, K., Valaitis, R., Chambers, T., Montelpare, W., Légaré, F., Beleno, R., Gaudet, G., Giacometti, L., Levely, D., Lindsay, C., Morrison, A., Tang, F. (2023). Older adults’ experiences and perceived impacts of the Aging, Community and Health Research Unit-Community Partnership Program (ACHRU-CPP) for diabetes self-management in Canada : A qualitative descriptive study. BMJ Open, 13(4), e068694. https://doi.org/10.1136/bmjopen-2022-068694

Gaschignard M. (2023). «La perception des patients du partenariat-patient dans les pratiques orthophoniques en France». Rééducation Orthophonique. N° 293/294 – mars/juin, pp.367-372.

Fiand-Fontaine E. (2023). «Passer au partenariat patient : en pratique, comment faire ? De la perte de sens à la renaissance : témoignage personnel». Rééducation Orthophonique. N° 293/294 – mars/juin, pp.191-196.

Emerson G. (2023). Évaluation du logiciel ApiAppS, outil d’aide à la prescription mobile de santé . Thèse de médecine générale, faculté de médecine, Université Côte d’Azur.

Elliott, M. J., McCarron, T. L., Schick-Makaroff, K., Getchell, L., Manns, B., Fernandez, N. (2023). The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network : Perspectives of researchers and patient partners. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy.
https://doi.org/10.1111/hex.13716

Fouladi, N., Tchangalova, N., Ajayi, D., Millwee, E., Lovett, C., Del Sordi, A., Liggett, S., De Silva, M., Bonilla, L., Nkwonta, A., Ramnarine, L., Munoz, A., Frazer, K., Kroll, T. (2023). COVID-19 Public Health Measures and Patient and Public Involvement in Health and Social Care Research : An Umbrella Review. International Journal of Environmental Research and Public Health, 20(6). https://doi.org/10.3390/ijerph20064887

Abdou Oumarou M., Las Vergnas O., Messaadi N. (2022). Comment la réflexivité des malades est-elle envisagée par les professionnels de santé dans le cadre de l’accompagnement médical, Le partenariat de soin avec le patient : Analyses, N°5, pp. 9-38

Beer L. (2022). Patient partenaire et transfert dans le soin. Le partenariat de soin avec le patient : Analyses, N°5, pp. 39-44

Prebeg M., Patton M., Desai R., Smith M., Krause K., Butcher N., Monga S. (2022). From participants to partners: reconceptualising authentic patient engagement roles in youth mental health research. The Lancet Psychiatry online 13 December :https://doi.org/10.1016/S2215-0366(22)00428-X

Van Eeghen C., Hitt J. R., Pomeroy D. J., Reynolds P., Rose G. L., O’Rourke Lavoie J. (2022). Co-creating the Patient Partner Guide by a Multiple Chronic Conditions Team of Patients, Clinicians, and Researchers : Observational Report. Journal of General Internal Medicine, 37(Suppl 1), 73‑79. https://doi.org/10.1007/s11606-021-07308-0

Zannad, F., Chauhan, C., Gee, P. O., Hartshorne-Evans, N., Hernandez, A. F., Mann, M. K., Martinez, R., Mehran, R. (2022). Patient partnership in cardiovascular clinical trials. European Heart Journal, 43(14), 1432‑1437. https://doi.org/10.1093/eurheartj/ehab835

Werba I., Brejon-Lamartinière N. (2021). « Le partenariat-patient dans la pratique orthophonique en France : état des lieux et perspectives », Glossa, n° 130, pp. 58-77

Bonardi C., Karcher B., Collazzo G., Barbaroux A., Balez E., Faure S., Halloy A., Flora L. (2021). « Partenariat avec les patients : les leçons d’une pandémie », Neuropsychologie, 13 (2), pp. 116-120.

Codsi M.-P., Karazivan P., Rouly G., Leclaire M., Boivin A. (2021). « Changing relationships: how does patient involvement transform professional identity? An ethnographic study« , British Medical Journal Open, 2021;11:e045520. doi: 10.1136/bmjopen-2020-045520

Bouabida K., Pomey M.-P., Cyr G., Aho-Glele U., Gomes Chaves B. (2021).
« The paradoxical injunctions of partnership in care: Patient engagement and partnership between issues and challenges », Patient Experience Journal : Vol. 8: Iss. 1, article 2. DOI: 10.35680 / 2372-0247.1538

Barchewitz M., Charels M., Flora L., Gueroult-Accolas, L., Honoré S., Allenet .B, Hache G.(2021). »Connaissances et représentations sur le partenariat patient : enquête auprès des pharmaciens. » Le Pharmacien Hospitalier et Clinicien

Pomey M.-P., Bush P. L., Demers-Payette O., L’Espérance A., Lochhead L., Ganache I., Roy D. (2020) « Developing recommendations for the diagnosis and treatment of Lyme disease: the role of the patient’s perspective in a controversial environment« . International Journal of Technology Assessment in Health Care. Publié en ligne par Cambridge University Press: 23 December 2020

Pétré B., Louis G., Voz B., Berkesse A., Flora L.(2020). »Patient partenaire : de la pratique à la recherche. » Santé publique, Vol. 32, N° 4, Juillet-août, pp. 371-374

Codsi M.-P. (2020). Les coulisses du partenariat patient : Comment le partenariat avec les patients change l’identité des professionnels de la santé ? Département de psychopédagogie et d’andragogie. Faculté des sciences de l’éducation / Faculté de médecine, Université de Montréal

Martineau J.-T., Minyaoui A., Boivin A. (2020). « Partnering with patients in healthcare research: a scoping review of ethical issues, challenges, and recommendations for practice« . BMC Med Ethics 21, 34 https://doi.org/10.1186/s12910-020-0460-0

Flora L. (2019). « Quand l’épreuve singulière de la vie avec la maladie devient processus de transformation d’un système de santé », in Chemins de la formation, Hors série, Vivre la maladie, entre épreuves, récits et histoire, Paris : L’Harmattan, Université de Tours, pp.116-129.

Pétré B. (2019). « Patient partenaire: de la pratique à la recherche. Un regard de santé publique sur les tendances en matière de recherche sur le patient partenaire. », in, Contribution à l’état de l’art : Retour sur le 1er colloque International en France sur le partenariat de soin avec le patient à partir des communications et écoévaluations. Centre d’Innovation du Partenariat avec les Patients et le Public (CI3P), Université côte d’azur, pp. 312-334.

Ballesteros Gallego F., Martin C., Allard J., Anthony S. J., Dumez V., Hartell D., Hébert M.-J., Knoll F., West J. W, Wright L., Fortin M.-C. (2018). » Defining Future Research Priorities in Donation and Organ and Stem Cell Transplantation With Patients, Families, Caregivers, Healthcare Providers and Researchers Within the Canadian National Transplant Research Program ». Transplantation Direct;4: e360; doi: 10.1097/TXD.0000000000000791

Boivin A., Flora L., Dumez V., L’Espérance A., Berkesse A., Gauvin F.-P. (2017). « Transformer la santé en partenariat avec les patients et le public : historique, approche et impacts du “modèle de Montréal”», In « La participation des patients » « vol. 2017, Paris : Editions Dalloz, pp. 11-24.

Ghadiri D. P. S., Flora L., Pomey M.-P. (2017). « Le virage patient partenaire de soins au Québec. Reconfiguration de l’exercice du pouvoir médical et lutte pour de nouvelles subjectivités« . In « La participation des patients« , Paris : Editions Dalloz, pp. 25-36.

Boivin, A., F.-P. Gauvin, P. Lehoux, I. Marcoux, Néron A, G. Baril and M. Flon (2017). Que doit-on savoir sur l’aide médicale à mourir? Comprendre les besoins d’information et les enjeux du partenariat avec les patients, les proches aidants et les professionnels de la santé, Centre d’excellence sur le partenariat avec les patients et le public: 46.

Boivin, A., V. Dumez, C. Loignon, M.-P. Gagnon, P. L. Bush, I. Ganache, F. Laverdière, M. Fournier, M. Menear, J. Légaré and J. Caron-Malenfant (2015). Soutenir la recherche en partenariat avec les patients et le public: stratégie d’engagement pour l’Unité de SOUTIEN-SRAP Quebec: 22.

Flora L. (2014). « Des patients réflexifs, au potentiel de transformation des systèmes de santé. » dans l’ouvrage Les métiers de la santé face aux industries pharmaceutique, agroalimentaires et chimiques, (Dir. Scheffer P.), Paris : L’harmattan.

Bibliographie sur l’implication des patients dans la recherche et la recherche sur l’implication des patients

Loubière, S., Loundou, A., Auquier, P., & Tinland, A. (2023). Psychiatric advance directives facilitated by peer workers among people with mental illness: Economic evaluation of a randomized controlled trial (DAiP study). Epidemiology and Psychiatric Sciences, 32, E27. doi:10.1017/S2045796023000197

Dodd, S., Gorst, S. L., Young, A., Lucas, S. W., Williamson, P. R. (2023). Patient participation impacts outcome domain selection in core outcome sets for research : An updated systematic review. Journal of Clinical Epidemiology, S0895-4356(23)00073-2. https://doi.org/10.1016/j.jclinepi.2023.03.022

Pratte, M.-M., Audette-Chapdelaine, S., Auger, A.-M., Wilhelmy, C., Brodeur, M. (2023). Researchers’ experiences with patient engagement in health research : A scoping review and thematic synthesis. Research Involvement and Engagement, 9(1), 22. https://doi.org/10.1186/s40900-023-00431-8

Evans, M. (2023). Diversity in Programmatic Features, Peer Support Strategies, Potential Mechanisms, and Outcomes. In: Peer Support Services Reaching People with Schizophrenia. Springer, Cham. https://doi.org/
10.1007/978-3-031-29042-8_7

Gonzalez, M., Ogourtsova, T., Zerbo, A., Lalonde, C., Spurway, A., Gavin, F., Shikako, K., Weiss, J. A., Majnemer, A. (2023). Patient engagement in a national research network : Barriers, facilitators, and impacts. Research Involvement and Engagement, 9(1), 7. https://doi.org/10.1186/s40900-023-00418-5

McVey, L., Frost, T., Issa, B., Davison, E., Abdulkader, J., Randell, R., Alvarado, N., Zaman, H., Hardiker, N., Cheong, V.-L., Woodcock, D. (2023). Working together : Reflections on how to make public involvement in research work. Research Involvement and Engagement, 9(1), 14. https://doi.org/10.1186/s40900-023-00427-4

Routen, A., O’Mahoney, L., Aiyegbusi, O. L., Alder, Y., Banerjee, A., Buckland, L., Brightling, C., Calvert, M., Camaradou, J., Chaturvedi, N., Chong, A., Dalrymple, E., Eggo, R. M., Elliott, P., Evans, R. A., Gibson, A., Haroon, S., Herrett, E., Houchen-Wolloff, L., Khunti, K. (2023). Patient and public involvement within epidemiological studies of long COVID in the UK. Nature Medicine. https://doi.org/10.1038/s41591-023-02251-5

Arumugam, A., Phillips, L. R., Moore, A., Kumaran, S. D., Sampath, K. K., Migliorini, F., Maffulli, N., Ranganadhababu, B. N., Hegazy, F., Botto-van Bemden, A. (2023). Patient and public involvement in research : A review of practical resources for young investigators. BMC Rheumatology, 7(1), 2. https://doi.org/10.1186/s41927-023-00327-w

Capobianco, L., Faija, C., Cooper, B., Brown, L., McPhillips, R., Shields, G., Wells, A. (2023). A framework for implementing Patient and Public Involvement in mental health research : The PATHWAY research programme benchmarked against NIHR standards. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(2), 640‑650. https://doi.org/10.1111/hex.13676

De Simoni, A., Jackson, T., Inglis Humphrey, W., Preston, J., Mah, H., Wood, H. E., Kinley, E., Gonzalez Rienda, L., Porteous, C. (2023). Patient and public involvement in research : The need for budgeting PPI staff costs in funding applications. Research Involvement and Engagement, 9(1), 16. https://doi.org/10.1186/s40900-023-00424-7

Marcu, A., McGregor, F., Egan, B., Hill C., Cook T., Arbr A. (2023). Developing sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations. Res Involv Engagem 9, 15. https://doi.org/10.1186/s40900-023-00426-5

Marcu, A., McGregor, F., Egan, B., Hill, K., Cook, T., Arber, A. (2023). Developing sustainable patient and public involvement in mesothelioma research : Multi-method exploration with researchers, patients, carers, and patient organisations. Research Involvement and Engagement, 9(1), 15. https://doi.org/10.1186/s40900-023-00426-5

Teela, L., Verhagen, L. E., van Oers, H. A., Kramer, E. E. W., Daams, J. G., Gruppen, M. P., Santana, M. J., Grootenhuis, M. A., Haverman, L. (2023). Pediatric patient engagement in clinical care, research and intervention development : A scoping review. Journal of Patient-Reported Outcomes, 7(1), 32. https://doi.org/10.1186/s41687-023-00566-y

Zannad, F., Alikhaani, J., Alikhaani, S., Butler, J., Gordon, J., Jensen, K., Khatib, R., Mantovani, L., Martinez, R., Moore, W. F., Murakami, M., Roessig, L., Stockbridge, N., Van Spall, H. G. C., Yancy, C., Spertus, J. A. (2023). Patient-reported outcome measures and patient engagement in heart failure clinical trials : Multi-stakeholder perspectives. European Journal of Heart Failure. https://doi.org/10.1002/ejhf.2828

Gross O. (2023). « Nouveau paradigme de la relation de soin au 21e siècleet nouveaux défis». Rééducation Orthophonique. N° 293/294 – mars/juin, pp.11-22.

O’Hanlon C. E., Giannitrapani K. F., Gamboa R. C., Walling A.-M., Lindvall C., Garrido M., Asch S. M., Lorenz K. A. (2023)Integrating Patient and Expert Perspectives to Conceptualize High-Quality Palliative Cancer Care for Symptoms in the US Veterans Health Administration: A Qualitative Study. INQUIRY: The Journal of Health Care Organization, doi/10.1177/00469580231160374

Buckley, C., Treweek, S., Laidlaw, L., Shiely, F. (2023). Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials. Trials, 24(1), 93. https://doi.org/10.1186/s13063-022-06980-9

Estrup, S., Barot, E., Mortensen, C. B., Anthon, C. T., Crescioli, E., Kjaer, M.-B. N., Vesterlund, G. K., Bruun, C. R. L., Collet, M. O., Rasmussen, B. S., Sivapalan, P., Poulsen, L. M., Møller, M. H., Perner, A., & Granholm, A. (2023). Patient and public involvement in contemporary large intensive care trials : A meta-epidemiological study. Acta Anaesthesiologica Scandinavica, 67(3), 256‑263. https://doi.org/10.1111/aas.14183

McKenna, V. B., Sixsmith, J., Byrne, N. (2023). Patient public involvement (PPI) in health literacy research : Engagement of adults with literacy needs in the co-creation of a hospital-based health literacy plan. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. https://doi.org/10.1111/hex.13736

Schoemaker, C. G., Richards, D. P., de Wit, M. (2023). Matching researchers’ needs and patients’ contributions : Practical tips for meaningful patient engagement from the field of rheumatology. Annals of the Rheumatic Diseases, 82(3), 312‑315. https://doi.org/10.1136/ard-2022-223561

Schuster, A. L. R., Hampel, H., Paskett, E. D., Bridges, J. F. P. (2023). Rethinking Patient Engagement in Cancer Research. The Patient, 16(2), 89‑93. https://doi.org/10.1007/s40271-022-00604-9

Bergin, R. J., Short, C. E., Davis, N., Marker, J., Dawson, M. T., Milton, S., McNamara, M., Druce, P., Milley, K., Karnchanachari, N., Skaczkowski, G. (2023). The nature and impact of patient and public involvement in cancer prevention, screening and early detection research : A systematic review. Preventive Medicine, 167, 107412. https://doi.org/10.1016/j.ypmed.2022.107412

Blaylock, R. (2023). Patient and Public Involvement (PPI) in abortion research : An exploratory survey. BMJ Sexual & Reproductive Health, 49(1), 69. https://doi.org/10.1136/bmjsrh-2022-201648

Crowther, D., McCulloch, H., Wong, H., Mackay, R., Johnson, C., Chorney, J., Ritchie, K., Lawrence, L., Bishop, A., Helwig, M., Curran, J. (2023). Children, young people and parent engagement in health intervention design and implementation : A scoping review. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(1), 1‑15. https://doi.org/10.1111/hex.13572

Loria-Rebolledo, L. E., Watson, V., Hassan, S., Gabbay, M., Tahir, N., Hossain, M., Goodall, M., Frith, L. (2023). Public contributors’ preferences for the organization of remote public involvement meetings in health and social care : A discrete choice experiment study. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(1), 146‑159. https://doi.org/10.1111/hex.13641

Özdemir, V. (2023). Public Engagement and Global Governance of Science : Beyond Instrumentalism. Omics : A Journal of Integrative Biology. https://doi.org/10.1089/omi.2022.0190

Prebeg, M., Patton, M., Desai, R., Smith, M., Krause, K., Butcher, N., Monga, S. (2023). From participants to partners : Reconceptualising authentic patient engagement roles in youth mental health research. The Lancet. Psychiatry, 10(2), 139‑145. https://doi.org/10.1016/S2215-0366(22)00377-7

Røssvoll, T. B., Hanssen, T. A., Rosenvinge, J. H., Liabo, K., Pettersen, G. (2023). Patient and Public Involvement in Occupational Therapy Health Research : A Scoping Review. OTJR : Occupation, Participation and Health, 43(1), 119‑126. https://doi.org/10.1177/15394492221096058

Schoemaker, C. G., Richards, D. P., de Wit, M. (2023). Matching researchers’ needs and patients’ contributions : Practical tips for meaningful patient engagement from the field of rheumatology. Annals of the Rheumatic Diseases, ard-2022-223561. https://doi.org/10.1136/ard-2022-223561

Staley, A. (2023). Transforming patient engagement in clinical trials : Moving from a transactional relationship to human-centered care. Drug Discovery Today, 103509. https://doi.org/10.1016/j.drudis.2023.103509

Høgh Egmose C., Heinsvig Poulsen C., Hjorthøj C., Skriver Mundy S.,
Hellström L., Nørgaard Nielsen M., Korsbek L., Rasmussen K., Falgaard Eplov L. (2023) The Effectiveness of Peer Support in Personal and Clinical Recovery—Systematic Review and Meta-Analysis. https://doi.org/10.1176/appi.ps.202100138

Burgher T., Shepherd V., Nollett C. (2023). Effective approaches to public involvement in care home research: a systematic review and narrative synthesis. Research Square : https://doi.org/10.21203/rs.3.rs-2500865/v1

Del Grande C., Kaczorowski J., Pomey M-P. (2023). What are the top priorities of patients and clinicians for the organization of primary cardiovascular care in Quebec? A modified e-Delphi study. PLoS ONE 18(1): e0280051. https://doi.org/10.1371/journal.pone.0280051

Shankland M., Amaryllis Ferrand A., Ganache I., Côté M.-A., Pomey M.-P. (2023). Ethical Foundations of the Accompanying Patient’s Role for an Enhanced Patient Experience: A Scoping Review. J. Pers. Med. 13, 77

Schoemaker C. G., Richards D. P., de Wit M. (2023). Matching researchers’ needs and patients’ contributions: practical tips for meaningful patient
engagement from the field of rheumatology, BMJ Ann Rheum Dis, 2023;0:1–4. doi:10.1136/ard-2022-223561

Gladman J. R.F., Phillips B., Frost K., Webster R., Stocks J., Horobin A., Wragg A., Mundey M., Humes D., Woodcock R., Braybrooke R., Junor A., Hendy C., Morgan K., Prior M. (2022). Patient and Public Involvement and Engagement for PhD Students. East Midlands Research into Ageing Network (EMRAN). Issue 49, December

Ali, A. Z., Wright, B., Curran, J. A., Newton, A. S. (2022). Review : Patient engagement in child, adolescent, and youth mental health care research—A scoping review. Child and Adolescent Mental Health.
https://doi.org/10.1111/camh.12615

Bertorello, D., Brichetto, G., Folkvord, F., Theben, A., Zaratin, P. (2022a). A Systematic Review of Patient Engagement Experiences in Brain Disorders. Patient Related Outcome Measures, 13, 259‑272.
https://doi.org/10.2147/PROM.S256396

Dawes, P., Arru, P., Corry, R., McDermott, J. H., Garlick, J., Guest, H., Howlett, E., Jackson, I., James, R., Keane, A., Murray, C., Newman, W., Visram, A., Munro, K. J. (2022). Patient and public involvement in hearing research : Opportunities, impact and reflections with case studies from the Manchester Centre for Audiology and Deafness. International Journal of Audiology, 1‑9. https://doi.org/10.1080/14992027.2022.2155881

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Schandl A., Mälberg K., Haglund L., Arnberg L., Lagergren P. (2022). « Patient and public involvement in oesophageal cancer survivorship research« . Acta Oncologica (Stockholm, Sweden), 61(3), pp. 371‑377. https://doi.org/10.1080/0284186X.2021.2016950

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Aguayo G. A., Goetzinger C., Scibilia R., Fischer A., Seuring T., Tran V.-T., Ravaud P., Bereczky T., Huiart L., Fagherazzi G. (2021). « Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research : Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study« . Journal of Medical Internet Research, 23(12), e25743. https://doi.org/10.2196/25743

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