Cette espace met à disposition une bibliographie par catégories :
- En premier lieu, vous trouverez les publications du CI3P sur le partenariat de soin avec le patient
- en second lieu apparait la bibliographie publiée sur le partenariat de soin en partenariat avec le patient selon le modèle de Montréal
- En troisième lieu vous est proposé une bibliographie conséquente sur l’implication des patients dont est issu le partenariat de soin avec le patient tels que développés par le Centre d’Innovation du partenariat avec les patients et le Public et le Centre d’Innovation du Partenariat avec les Patients et le Public.
Bibliographie produite par le CI3P et ses membres
Flora L. (2023). « Savoirs expérientiels en santé et expertises patients ». dans Troubles dans le monde du bénévolat, (Dir. Ferrand-Bechmann D.), Paris : Chroniques sociales, pp.60-67.
Lunel A., Flora L. (2023) » Avant propos. » Le Journal de droit de la santé et de l’assurance maladie, N° 36, p. 9.
Flora L. (2023). » La place des patients au 21ème siècle : l’exemple de l’implication des patients partenaires avec le CI3P dans l’environnement numérique. » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 10-18..
Rubinstein S. (2023). » L’e-santé mentale : miroir aux alouettes ou futur des soins psychiatriques ? » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 25-33.
Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2022). « Innover par l’aide à la décision dans la relation médecin-patient d’application mobiles : la recherche ApiAppS ». Le partenariat de soin avec le patient : analyses, Université Côte d’azur, N° 4, pp. 73-94.
Flora L., Koenig M.(2021). « La question du rétablissement et du patient partenaire », in Manuel de la psychiatrie » 4ème édition. (coord. Luc Mallet, Julien Guelfi, Frédéric Rouillon), Paris : Edition Elsevier Masson, pp. 779-782.
Bonardi C., Karcher B., Collazzo G., Barbaroux A., Balez E., Faure S., Halloy A., Flora L. (2021). « Partenariat avec les patients : les leçons d’une pandémie », Neuropsychologie, 13 (2), pp. 116-120.
Pomey M.-P., Clavel N., Normandin L. Del Grande C. Ghadiri D. P., Fernandez-McAuley I., Boivin A., Flora L., Janvier A., Karazivan P., Pelletier J.-F., Fernandez N., Paquette J. Dumez V. (2021) « Assessing and promoting partnership between patients and healthcare professionals : co-construction of the CADICEE tool for patients and their relatives » Health Expectations. Vol. 24, Issue 4, pp.1230-1241
Barchewitz M., Charels M., Flora L., Gueroult-Accolas, L., Honoré S., Allenet .B, Hache G.(2021). »Connaissances et représentations sur le partenariat patient : enquête auprès des pharmaciens. » Le Pharmacien Hospitalier et Clinicien
Pétré B., Louis G., Voz B., Berkesse A., Flora L. (2020). »Patient partenaire : de la pratique à la recherche. » Santé publique, Vol. 32, N° 4, Juillet-août, pp. 371-374
Faure S., Halloy A., Karcher B., Flora L., Colazzo G., Barbaroux A., Balez E., Bonardi C. (2020). « Polyphonies sur les enjeux du partenariat patient au temps du COVID-19, Revue de Neuropsychologie, Neurosciences Cognitives et Cliniques, V. 12, N° 2, Avril-mai-juin 2020, pp. 232-237.
Carayol-Ravot M. (2020). Covid-19 : crise sanitaire, confinement et maladies chroniques. Impact du confinement sur l’expérience patient et le partenariat entre patients et professionnels de santé. Mémoire de Master de santé publique. Université Aix Marseille.
Flora L., Darmon D. Benattar J.-M. (Coord.).(2019), Contribution à l’état de l’art : Retour sur le 1er colloque International en France sur le partenariat de soin avec le patient à partir des communications et écoévaluations. Centre d’Innovation du Partenariat avec les Patients et le Public (CI3P), Université côte d’azur.
Bibliographie sur le partenariat de soin avec les patients dans la recherche
Hatfield .D (2023). Conceptualising patient and public engagement and involvement (PPEI) for commissioning and designing health and care services as situated learning. Brighton University. DOI : https://doi.org/10.17033/DATA.00000303
Loubière, S., Loundou, A., Auquier, P., Tinland, A. (2023). Psychiatric advance directives facilitated by peer workers among people with mental illness: Economic evaluation of a randomized controlled trial (DAiP study). Epidemiology and Psychiatric Sciences, 32, E27. doi:10.1017/S2045796023000197
Nielssen, I., Ahmed, S., Zelinsky, S., Dompe, B., Fairie, P., Santana, M. J. (2023). Co-building a training programme to facilitate patient, family and community partnership on research grants : A patient-oriented research project. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. https://doi.org/10.
Riches, L., Ridgway, L., Edwards, L. (2023). Co-learning commentary : A patient partner perspective in mental health care research. Research Involvement and Engagement, 9(1), 24. https://doi.org/10.1186/
Yous, M.-L., Ganann, R., Ploeg, J., Markle-Reid, M., Northwood, M., Fisher, K., Valaitis, R., Chambers, T., Montelpare, W., Légaré, F., Beleno, R., Gaudet, G., Giacometti, L., Levely, D., Lindsay, C., Morrison, A., Tang, F. (2023). Older adults’ experiences and perceived impacts of the Aging, Community and Health Research Unit-Community Partnership Program (ACHRU-CPP) for diabetes self-management in Canada : A qualitative descriptive study. BMJ Open, 13(4), e068694. https://doi.org/10.
Gaschignard M. (2023). «La perception des patients du partenariat-patient dans les pratiques orthophoniques en France». Rééducation Orthophonique. N° 293/294 – mars/juin, pp.367-372.
Fiand-Fontaine E. (2023). «Passer au partenariat patient : en pratique, comment faire ? De la perte de sens à la renaissance : témoignage personnel». Rééducation Orthophonique. N° 293/294 – mars/juin, pp.191-196.
Emerson G. (2023). Évaluation du logiciel ApiAppS, outil d’aide à la prescription mobile de santé . Thèse de médecine générale, faculté de médecine, Université Côte d’Azur.
Elliott, M. J., McCarron, T. L., Schick-Makaroff, K., Getchell, L., Manns, B., Fernandez, N. (2023). The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network : Perspectives of researchers and patient partners. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy.
https://doi.org/10.1111/hex.13716
Fouladi, N., Tchangalova, N., Ajayi, D., Millwee, E., Lovett, C., Del Sordi, A., Liggett, S., De Silva, M., Bonilla, L., Nkwonta, A., Ramnarine, L., Munoz, A., Frazer, K., Kroll, T. (2023). COVID-19 Public Health Measures and Patient and Public Involvement in Health and Social Care Research : An Umbrella Review. International Journal of Environmental Research and Public Health, 20(6). https://doi.org/10.3390/ijerph20064887
Abdou Oumarou M., Las Vergnas O., Messaadi N. (2022). Comment la réflexivité des malades est-elle envisagée par les professionnels de santé dans le cadre de l’accompagnement médical, Le partenariat de soin avec le patient : Analyses, N°5, pp. 9-38
Beer L. (2022). Patient partenaire et transfert dans le soin. Le partenariat de soin avec le patient : Analyses, N°5, pp. 39-44
Prebeg M., Patton M., Desai R., Smith M., Krause K., Butcher N., Monga S. (2022). From participants to partners: reconceptualising authentic patient engagement roles in youth mental health research. The Lancet Psychiatry online 13 December :https://doi.org/10.1016/S2215-0366(22)00428-X
Van Eeghen C., Hitt J. R., Pomeroy D. J., Reynolds P., Rose G. L., O’Rourke Lavoie J. (2022). Co-creating the Patient Partner Guide by a Multiple Chronic Conditions Team of Patients, Clinicians, and Researchers : Observational Report. Journal of General Internal Medicine, 37(Suppl 1), 73‑79. https://doi.org/10.1007/s11606-021-07308-0
Zannad, F., Chauhan, C., Gee, P. O., Hartshorne-Evans, N., Hernandez, A. F., Mann, M. K., Martinez, R., Mehran, R. (2022). Patient partnership in cardiovascular clinical trials. European Heart Journal, 43(14), 1432‑1437. https://doi.org/10.1093/eurheartj/ehab835
Werba I., Brejon-Lamartinière N. (2021). « Le partenariat-patient dans la pratique orthophonique en France : état des lieux et perspectives », Glossa, n° 130, pp. 58-77
Bonardi C., Karcher B., Collazzo G., Barbaroux A., Balez E., Faure S., Halloy A., Flora L. (2021). « Partenariat avec les patients : les leçons d’une pandémie », Neuropsychologie, 13 (2), pp. 116-120.
Codsi M.-P., Karazivan P., Rouly G., Leclaire M., Boivin A. (2021). « Changing relationships: how does patient involvement transform professional identity? An ethnographic study« , British Medical Journal Open, 2021;11:e045520. doi: 10.1136/bmjopen-2020-045520
Bouabida K., Pomey M.-P., Cyr G., Aho-Glele U., Gomes Chaves B. (2021).
« The paradoxical injunctions of partnership in care: Patient engagement and partnership between issues and challenges », Patient Experience Journal : Vol. 8: Iss. 1, article 2. DOI: 10.35680 / 2372-0247.1538
Barchewitz M., Charels M., Flora L., Gueroult-Accolas, L., Honoré S., Allenet .B, Hache G.(2021). »Connaissances et représentations sur le partenariat patient : enquête auprès des pharmaciens. » Le Pharmacien Hospitalier et Clinicien
Pomey M.-P., Bush P. L., Demers-Payette O., L’Espérance A., Lochhead L., Ganache I., Roy D. (2020) « Developing recommendations for the diagnosis and treatment of Lyme disease: the role of the patient’s perspective in a controversial environment« . International Journal of Technology Assessment in Health Care. Publié en ligne par Cambridge University Press: 23 December 2020
Pétré B., Louis G., Voz B., Berkesse A., Flora L.(2020). »Patient partenaire : de la pratique à la recherche. » Santé publique, Vol. 32, N° 4, Juillet-août, pp. 371-374
Codsi M.-P. (2020). Les coulisses du partenariat patient : Comment le partenariat avec les patients change l’identité des professionnels de la santé ? Département de psychopédagogie et d’andragogie. Faculté des sciences de l’éducation / Faculté de médecine, Université de Montréal
Martineau J.-T., Minyaoui A., Boivin A. (2020). « Partnering with patients in healthcare research: a scoping review of ethical issues, challenges, and recommendations for practice« . BMC Med Ethics 21, 34 https://doi.org/10.1186/s12910-020-0460-0
Flora L. (2019). « Quand l’épreuve singulière de la vie avec la maladie devient processus de transformation d’un système de santé », in Chemins de la formation, Hors série, Vivre la maladie, entre épreuves, récits et histoire, Paris : L’Harmattan, Université de Tours, pp.116-129.
Pétré B. (2019). « Patient partenaire: de la pratique à la recherche. Un regard de santé publique sur les tendances en matière de recherche sur le patient partenaire. », in, Contribution à l’état de l’art : Retour sur le 1er colloque International en France sur le partenariat de soin avec le patient à partir des communications et écoévaluations. Centre d’Innovation du Partenariat avec les Patients et le Public (CI3P), Université côte d’azur, pp. 312-334.
Ballesteros Gallego F., Martin C., Allard J., Anthony S. J., Dumez V., Hartell D., Hébert M.-J., Knoll F., West J. W, Wright L., Fortin M.-C. (2018). » Defining Future Research Priorities in Donation and Organ and Stem Cell Transplantation With Patients, Families, Caregivers, Healthcare Providers and Researchers Within the Canadian National Transplant Research Program ». Transplantation Direct;4: e360; doi: 10.1097/TXD.0000000000000791
Boivin A., Flora L., Dumez V., L’Espérance A., Berkesse A., Gauvin F.-P. (2017). « Transformer la santé en partenariat avec les patients et le public : historique, approche et impacts du “modèle de Montréal”», In « La participation des patients » « vol. 2017, Paris : Editions Dalloz, pp. 11-24.
Ghadiri D. P. S., Flora L., Pomey M.-P. (2017). « Le virage patient partenaire de soins au Québec. Reconfiguration de l’exercice du pouvoir médical et lutte pour de nouvelles subjectivités« . In « La participation des patients« , Paris : Editions Dalloz, pp. 25-36.
Boivin, A., F.-P. Gauvin, P. Lehoux, I. Marcoux, Néron A, G. Baril and M. Flon (2017). Que doit-on savoir sur l’aide médicale à mourir? Comprendre les besoins d’information et les enjeux du partenariat avec les patients, les proches aidants et les professionnels de la santé, Centre d’excellence sur le partenariat avec les patients et le public: 46.
Boivin, A., V. Dumez, C. Loignon, M.-P. Gagnon, P. L. Bush, I. Ganache, F. Laverdière, M. Fournier, M. Menear, J. Légaré and J. Caron-Malenfant (2015). Soutenir la recherche en partenariat avec les patients et le public: stratégie d’engagement pour l’Unité de SOUTIEN-SRAP Quebec: 22.
Flora L. (2014). « Des patients réflexifs, au potentiel de transformation des systèmes de santé. » dans l’ouvrage Les métiers de la santé face aux industries pharmaceutique, agroalimentaires et chimiques, (Dir. Scheffer P.), Paris : L’harmattan.
Bibliographie sur l’implication des patients dans la recherche et la recherche sur l’implication des patients
Loubière, S., Loundou, A., Auquier, P., & Tinland, A. (2023). Psychiatric advance directives facilitated by peer workers among people with mental illness: Economic evaluation of a randomized controlled trial (DAiP study). Epidemiology and Psychiatric Sciences, 32, E27. doi:10.1017/S2045796023000197
Dodd, S., Gorst, S. L., Young, A., Lucas, S. W., Williamson, P. R. (2023). Patient participation impacts outcome domain selection in core outcome sets for research : An updated systematic review. Journal of Clinical Epidemiology, S0895-4356(23)00073-2. https://doi.org/10.1016/j.jclinepi.2023.03.022
Pratte, M.-M., Audette-Chapdelaine, S., Auger, A.-M., Wilhelmy, C., Brodeur, M. (2023). Researchers’ experiences with patient engagement in health research : A scoping review and thematic synthesis. Research Involvement and Engagement, 9(1), 22. https://doi.org/10.1186/s40900-023-00431-8
Evans, M. (2023). Diversity in Programmatic Features, Peer Support Strategies, Potential Mechanisms, and Outcomes. In: Peer Support Services Reaching People with Schizophrenia. Springer, Cham. https://doi.org/
10.1007/978-3-031-29042-8_7
Gonzalez, M., Ogourtsova, T., Zerbo, A., Lalonde, C., Spurway, A., Gavin, F., Shikako, K., Weiss, J. A., Majnemer, A. (2023). Patient engagement in a national research network : Barriers, facilitators, and impacts. Research Involvement and Engagement, 9(1), 7. https://doi.org/10.1186/s40900-023-00418-5
McVey, L., Frost, T., Issa, B., Davison, E., Abdulkader, J., Randell, R., Alvarado, N., Zaman, H., Hardiker, N., Cheong, V.-L., Woodcock, D. (2023). Working together : Reflections on how to make public involvement in research work. Research Involvement and Engagement, 9(1), 14. https://doi.org/10.1186/s40900-023-00427-4
Routen, A., O’Mahoney, L., Aiyegbusi, O. L., Alder, Y., Banerjee, A., Buckland, L., Brightling, C., Calvert, M., Camaradou, J., Chaturvedi, N., Chong, A., Dalrymple, E., Eggo, R. M., Elliott, P., Evans, R. A., Gibson, A., Haroon, S., Herrett, E., Houchen-Wolloff, L., Khunti, K. (2023). Patient and public involvement within epidemiological studies of long COVID in the UK. Nature Medicine. https://doi.org/10.1038/s41591-023-02251-5
Arumugam, A., Phillips, L. R., Moore, A., Kumaran, S. D., Sampath, K. K., Migliorini, F., Maffulli, N., Ranganadhababu, B. N., Hegazy, F., Botto-van Bemden, A. (2023). Patient and public involvement in research : A review of practical resources for young investigators. BMC Rheumatology, 7(1), 2. https://doi.org/10.1186/s41927-023-00327-w
Capobianco, L., Faija, C., Cooper, B., Brown, L., McPhillips, R., Shields, G., Wells, A. (2023). A framework for implementing Patient and Public Involvement in mental health research : The PATHWAY research programme benchmarked against NIHR standards. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(2), 640‑650. https://doi.org/10.1111/hex.13676
De Simoni, A., Jackson, T., Inglis Humphrey, W., Preston, J., Mah, H., Wood, H. E., Kinley, E., Gonzalez Rienda, L., Porteous, C. (2023). Patient and public involvement in research : The need for budgeting PPI staff costs in funding applications. Research Involvement and Engagement, 9(1), 16. https://doi.org/10.1186/s40900-023-00424-7
Elliott, M. J., McCarron, T. L., Schick-Makaroff, K., Getchell, L., Manns, B., Fernandez, N. (2023). The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network : Perspectives of researchers and patient partners. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(2), 905‑918. https://doi.org/10.1111/hex.13716
Marcu, A., McGregor, F., Egan, B., Hill C., Cook T., Arbr A. (2023). Developing sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations. Res Involv Engagem 9, 15. https://doi.org/10.1186/s40900-023-00426-5
Marcu, A., McGregor, F., Egan, B., Hill, K., Cook, T., Arber, A. (2023). Developing sustainable patient and public involvement in mesothelioma research : Multi-method exploration with researchers, patients, carers, and patient organisations. Research Involvement and Engagement, 9(1), 15. https://doi.org/10.1186/s40900-023-00426-5
Teela, L., Verhagen, L. E., van Oers, H. A., Kramer, E. E. W., Daams, J. G., Gruppen, M. P., Santana, M. J., Grootenhuis, M. A., Haverman, L. (2023). Pediatric patient engagement in clinical care, research and intervention development : A scoping review. Journal of Patient-Reported Outcomes, 7(1), 32. https://doi.org/10.1186/s41687-023-00566-y
Zannad, F., Alikhaani, J., Alikhaani, S., Butler, J., Gordon, J., Jensen, K., Khatib, R., Mantovani, L., Martinez, R., Moore, W. F., Murakami, M., Roessig, L., Stockbridge, N., Van Spall, H. G. C., Yancy, C., Spertus, J. A. (2023). Patient-reported outcome measures and patient engagement in heart failure clinical trials : Multi-stakeholder perspectives. European Journal of Heart Failure. https://doi.org/10.1002/ejhf.2828
Arumugam, A., Phillips, L. R., Moore, A., Kumaran, S. D., Sampath, K. K., Migliorini, F., Maffulli, N., Ranganadhababu, B. N., Hegazy, F., Botto-van Bemden, A. (2023). Patient and public involvement in research : A review of practical resources for young investigators. BMC Rheumatology, 7(1), 2. https://doi.org/10.1186/s41927-023-00327-w
Capobianco, L., Faija, C., Cooper, B., Brown, L., McPhillips, R., Shields, G., Wells, A. (2023). A framework for implementing Patient and Public Involvement in mental health research : The PATHWAY research programme benchmarked against NIHR standards. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(2), 640‑650. https://doi.org/10.1111/hex.13676
De Simoni, A., Jackson, T., Inglis Humphrey, W., Preston, J., Mah, H., Wood, H. E., Kinley, E., Gonzalez Rienda, L., Porteous, C. (2023). Patient and public involvement in research : The need for budgeting PPI staff costs in funding applications. Research Involvement and Engagement, 9(1), 16. https://doi.org/10.1186/s40900-023-00424-7
Elliott, M. J., McCarron, T. L., Schick-Makaroff, K., Getchell, L., Manns, B., Fernandez, N. (2023). The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network : Perspectives of researchers and patient partners. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(2), 905‑918. https://doi.org/10.1111/hex.13716
Gross O. (2023). « Nouveau paradigme de la relation de soin au 21e siècleet nouveaux défis». Rééducation Orthophonique. N° 293/294 – mars/juin, pp.11-22.
O’Hanlon C. E., Giannitrapani K. F., Gamboa R. C., Walling A.-M., Lindvall C., Garrido M., Asch S. M., Lorenz K. A. (2023)Integrating Patient and Expert Perspectives to Conceptualize High-Quality Palliative Cancer Care for Symptoms in the US Veterans Health Administration: A Qualitative Study. INQUIRY: The Journal of Health Care Organization, doi/10.1177/00469580231160374
Buckley, C., Treweek, S., Laidlaw, L., Shiely, F. (2023). Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials. Trials, 24(1), 93. https://doi.org/10.1186/s13063-022-06980-9
Estrup, S., Barot, E., Mortensen, C. B., Anthon, C. T., Crescioli, E., Kjaer, M.-B. N., Vesterlund, G. K., Bruun, C. R. L., Collet, M. O., Rasmussen, B. S., Sivapalan, P., Poulsen, L. M., Møller, M. H., Perner, A., & Granholm, A. (2023). Patient and public involvement in contemporary large intensive care trials : A meta-epidemiological study. Acta Anaesthesiologica Scandinavica, 67(3), 256‑263. https://doi.org/10.1111/aas.14183
McKenna, V. B., Sixsmith, J., Byrne, N. (2023). Patient public involvement (PPI) in health literacy research : Engagement of adults with literacy needs in the co-creation of a hospital-based health literacy plan. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. https://doi.org/10.1111/hex.13736
Schoemaker, C. G., Richards, D. P., de Wit, M. (2023). Matching researchers’ needs and patients’ contributions : Practical tips for meaningful patient engagement from the field of rheumatology. Annals of the Rheumatic Diseases, 82(3), 312‑315. https://doi.org/10.1136/ard-2022-223561
Schuster, A. L. R., Hampel, H., Paskett, E. D., Bridges, J. F. P. (2023). Rethinking Patient Engagement in Cancer Research. The Patient, 16(2), 89‑93. https://doi.org/10.1007/s40271-022-00604-9
Bergin, R. J., Short, C. E., Davis, N., Marker, J., Dawson, M. T., Milton, S., McNamara, M., Druce, P., Milley, K., Karnchanachari, N., Skaczkowski, G. (2023). The nature and impact of patient and public involvement in cancer prevention, screening and early detection research : A systematic review. Preventive Medicine, 167, 107412. https://doi.org/10.1016/j.ypmed.2022.107412
Blaylock, R. (2023). Patient and Public Involvement (PPI) in abortion research : An exploratory survey. BMJ Sexual & Reproductive Health, 49(1), 69. https://doi.org/10.1136/bmjsrh-2022-201648
Capobianco, L., Faija, C., Cooper, B., Brown, L., McPhillips, R., Shields, G., Wells, A. (2023). A framework for implementing Patient and Public Involvement in mental health research : The PATHWAY research programme benchmarked against NIHR standards. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. https://doi.org/10.1111/hex.13676
Crowther, D., McCulloch, H., Wong, H., Mackay, R., Johnson, C., Chorney, J., Ritchie, K., Lawrence, L., Bishop, A., Helwig, M., Curran, J. (2023). Children, young people and parent engagement in health intervention design and implementation : A scoping review. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(1), 1‑15. https://doi.org/10.1111/hex.13572
Loria-Rebolledo, L. E., Watson, V., Hassan, S., Gabbay, M., Tahir, N., Hossain, M., Goodall, M., Frith, L. (2023). Public contributors’ preferences for the organization of remote public involvement meetings in health and social care : A discrete choice experiment study. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(1), 146‑159. https://doi.org/10.1111/hex.13641
Özdemir, V. (2023). Public Engagement and Global Governance of Science : Beyond Instrumentalism. Omics : A Journal of Integrative Biology. https://doi.org/10.1089/omi.2022.0190
Prebeg, M., Patton, M., Desai, R., Smith, M., Krause, K., Butcher, N., Monga, S. (2023). From participants to partners : Reconceptualising authentic patient engagement roles in youth mental health research. The Lancet. Psychiatry, 10(2), 139‑145. https://doi.org/10.1016/S2215-0366(22)00377-7
Røssvoll, T. B., Hanssen, T. A., Rosenvinge, J. H., Liabo, K., Pettersen, G. (2023). Patient and Public Involvement in Occupational Therapy Health Research : A Scoping Review. OTJR : Occupation, Participation and Health, 43(1), 119‑126. https://doi.org/10.1177/15394492221096058
Schoemaker, C. G., Richards, D. P., de Wit, M. (2023). Matching researchers’ needs and patients’ contributions : Practical tips for meaningful patient engagement from the field of rheumatology. Annals of the Rheumatic Diseases, ard-2022-223561. https://doi.org/10.1136/ard-2022-223561
Staley, A. (2023). Transforming patient engagement in clinical trials : Moving from a transactional relationship to human-centered care. Drug Discovery Today, 103509. https://doi.org/10.1016/j.drudis.2023.103509
Høgh Egmose C., Heinsvig Poulsen C., Hjorthøj C., Skriver Mundy S.,
Hellström L., Nørgaard Nielsen M., Korsbek L., Rasmussen K., Falgaard Eplov L. (2023) The Effectiveness of Peer Support in Personal and Clinical Recovery—Systematic Review and Meta-Analysis. https://doi.org/10.1176/appi.ps.202100138
Burgher T., Shepherd V., Nollett C. (2023). Effective approaches to public involvement in care home research: a systematic review and narrative synthesis. Research Square : https://doi.org/10.21203/rs.3.rs-2500865/v1
Del Grande C., Kaczorowski J., Pomey M-P. (2023). What are the top priorities of patients and clinicians for the organization of primary cardiovascular care in Quebec? A modified e-Delphi study. PLoS ONE 18(1): e0280051. https://doi.org/10.1371/journal.pone.0280051
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