dans le recherche

Cette espace met à disposition une bibliographie par catégories :

  • En premier lieu, vous trouverez les publications du CI3P sur le partenariat de soin avec le patient
  • en second lieu apparait la bibliographie publiée sur le partenariat de soin en partenariat avec le patient selon le modèle de Montréal
  • En troisième lieu vous est proposé une bibliographie conséquente sur l’implication des patients dont est issu le partenariat de soin avec le patient tels que développés par le Centre d’Innovation du partenariat avec les patients et le Public et le Centre d’Innovation du Partenariat avec les Patients et le Public.

Bibliographie produite par le CI3P et ses membres

Flora L. (2023). « Savoirs expérientiels en santé et expertises patients ». dans Troubles dans le monde du bénévolat, (Dir. Ferrand-Bechmann D.), Paris : Chroniques sociales, pp.60-67.

 Lunel A., Flora L. (2023) » Avant propos. » Le Journal de droit de la santé et de l’assurance maladie, N° 36, p. 9.

Flora L. (2023).  » La place des patients au 21ème siècle : l’exemple de l’implication des patients partenaires avec le CI3P dans l’environnement numérique. » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 10-18..

Rubinstein S. (2023).  » L’e-santé mentale : miroir aux alouettes ou futur des soins psychiatriques ? » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 25-33.

Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2022). « Innover par l’aide à la décision dans la relation médecin-patient d’application mobiles : la recherche ApiAppS ». Le partenariat de soin avec le patient : analyses, Université Côte d’azur, N° 4, pp. 73-94.

Flora L., Koenig M.(2021). « La question du rétablissement et du patient partenaire », in Manuel de la psychiatrie » 4ème édition. (coord. Luc Mallet, Julien Guelfi, Frédéric Rouillon), Paris : Edition Elsevier Masson, pp. 779-782.

Bonardi C., Karcher B., Collazzo G., Barbaroux A., Balez E., Faure S., Halloy A., Flora L. (2021). « Partenariat avec les patients : les leçons d’une pandémie », Neuropsychologie, 13 (2), pp. 116-120.

Pomey M.-P., Clavel N., Normandin L. Del Grande C. Ghadiri D. P., Fernandez-McAuley I., Boivin A., Flora L., Janvier A., Karazivan P., Pelletier J.-F., Fernandez N., Paquette J. Dumez V. (2021) « Assessing and promoting partnership between patients and healthcare professionals : co-construction of the CADICEE tool for patients and their relatives » Health Expectations. Vol. 24, Issue 4, pp.1230-1241

Barchewitz M., Charels M., Flora L., Gueroult-Accolas, L., Honoré S., Allenet .B, Hache G.(2021). »Connaissances et représentations sur le partenariat patient : enquête auprès des pharmaciens. » Le Pharmacien Hospitalier et Clinicien

Pétré B., Louis G., Voz B., Berkesse A., Flora L. (2020). »Patient partenaire : de la pratique à la recherche. » Santé publique, Vol. 32, N° 4, Juillet-août, pp. 371-374

Faure S., Halloy A., Karcher B., Flora L., Colazzo G., Barbaroux A., Balez E., Bonardi C. (2020). « Polyphonies sur les enjeux du partenariat patient au temps du COVID-19, Revue de Neuropsychologie, Neurosciences Cognitives et Cliniques, V. 12, N° 2, Avril-mai-juin 2020, pp. 232-237.

Carayol-Ravot M. (2020). Covid-19 : crise sanitaire, confinement et maladies chroniques. Impact du confinement sur l’expérience patient et le partenariat entre patients et professionnels de santé. Mémoire de Master de santé publique. Université Aix Marseille.

Flora L., Darmon D. Benattar J.-M. (Coord.).(2019), Contribution à l’état de l’art : Retour sur le 1er colloque International en France sur le partenariat de soin avec le patient à partir des communications et écoévaluations. Centre d’Innovation du Partenariat avec les Patients et le Public (CI3P), Université côte d’azur.

Bibliographie sur le partenariat de soin avec les patients dans la recherche

 Hatfield .D (2023). Conceptualising patient and public engagement and involvement (PPEI) for commissioning and designing health and care services as situated learning. Brighton University. DOI : https://doi.org/10.17033/DATA.00000303

Loubière, S., Loundou, A., Auquier, P., Tinland, A. (2023). Psychiatric advance directives facilitated by peer workers among people with mental illness: Economic evaluation of a randomized controlled trial (DAiP study). Epidemiology and Psychiatric Sciences, 32, E27. doi:10.1017/S2045796023000197

Nielssen, I., Ahmed, S., Zelinsky, S., Dompe, B., Fairie, P., Santana, M. J. (2023). Co-building a training programme to facilitate patient, family and community partnership on research grants : A patient-oriented research project. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. https://doi.org/10.1111/hex.13763

Riches, L., Ridgway, L., Edwards, L. (2023). Co-learning commentary : A patient partner perspective in mental health care research. Research Involvement and Engagement, 9(1), 24. https://doi.org/10.1186/s40900-023-00435-4

Yous, M.-L., Ganann, R., Ploeg, J., Markle-Reid, M., Northwood, M., Fisher, K., Valaitis, R., Chambers, T., Montelpare, W., Légaré, F., Beleno, R., Gaudet, G., Giacometti, L., Levely, D., Lindsay, C., Morrison, A., Tang, F. (2023). Older adults’ experiences and perceived impacts of the Aging, Community and Health Research Unit-Community Partnership Program (ACHRU-CPP) for diabetes  self-management in Canada : A qualitative descriptive study. BMJ Open, 13(4), e068694. https://doi.org/10.1136/bmjopen-2022-068694

Gaschignard M. (2023). «La perception des patients du partenariat-patient dans les pratiques orthophoniques en France». Rééducation Orthophonique. N° 293/294 – mars/juin, pp.367-372.

Fiand-Fontaine E. (2023). «Passer au partenariat patient : en pratique, comment faire ? De la perte de sens à la renaissance : témoignage personnel». Rééducation Orthophonique. N° 293/294 – mars/juin, pp.191-196.

Emerson G. (2023).  Évaluation du logiciel ApiAppS, outil d’aide à la prescription mobile de santé . Thèse de médecine générale, faculté de médecine, Université Côte d’Azur.

Elliott, M. J., McCarron, T. L., Schick-Makaroff, K., Getchell, L., Manns, B., Fernandez, N. (2023). The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network : Perspectives of researchers and patient partners. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy.
 https://doi.org/10.1111/hex.13716

Fouladi, N., Tchangalova, N., Ajayi, D., Millwee, E., Lovett, C., Del Sordi, A., Liggett, S., De Silva, M., Bonilla, L., Nkwonta, A., Ramnarine, L., Munoz, A., Frazer, K., Kroll, T. (2023). COVID-19 Public Health Measures and Patient and Public Involvement in Health and Social Care Research : An Umbrella Review. International Journal of Environmental Research and Public Health20(6). https://doi.org/10.3390/ijerph20064887

Abdou Oumarou M., Las Vergnas O., Messaadi N. (2022). Comment la réflexivité des malades est-elle envisagée par les professionnels de santé dans le cadre de l’accompagnement médical, Le partenariat de soin avec le patient : Analyses, N°5, pp. 9-38

Beer L. (2022). Patient partenaire et transfert dans le soin. Le partenariat de soin avec le patient : Analyses, N°5, pp. 39-44

Prebeg M., Patton M., Desai R., Smith M., Krause K., Butcher N., Monga S. (2022). From participants to partners: reconceptualising authentic patient engagement roles in youth mental health research. The Lancet Psychiatry online 13 December :https://doi.org/10.1016/S2215-0366(22)00428-X

Van Eeghen C., Hitt J. R., Pomeroy D. J., Reynolds P., Rose G. L., O’Rourke Lavoie J. (2022). Co-creating the Patient Partner Guide by a Multiple Chronic Conditions Team of Patients, Clinicians, and Researchers : Observational ReportJournal of General Internal Medicine37(Suppl 1), 73‑79. https://doi.org/10.1007/s11606-021-07308-0

Zannad, F., Chauhan, C., Gee, P. O., Hartshorne-Evans, N., Hernandez, A. F., Mann, M. K., Martinez, R., Mehran, R. (2022). Patient partnership in cardiovascular clinical trialsEuropean Heart Journal43(14), 1432‑1437. https://doi.org/10.1093/eurheartj/ehab835

Werba I., Brejon-Lamartinière N. (2021). « Le partenariat-patient dans la pratique orthophonique en France : état des lieux et perspectives », Glossa, n° 130, pp. 58-77

Bonardi C., Karcher B., Collazzo G., Barbaroux A., Balez E., Faure S., Halloy A., Flora L. (2021). « Partenariat avec les patients : les leçons d’une pandémie », Neuropsychologie, 13 (2), pp. 116-120.

Codsi M.-P., Karazivan P., Rouly G., Leclaire M., Boivin A. (2021). « Changing relationships: how does patient involvement transform professional identity? An ethnographic study« , British Medical Journal Open, 2021;11:e045520. doi: 10.1136/bmjopen-2020-045520

Bouabida K., Pomey M.-P., Cyr G., Aho-Glele U., Gomes Chaves B. (2021).
« The paradoxical injunctions of partnership in care: Patient engagement and partnership between issues and challenges »,  Patient Experience Journal : Vol. 8: Iss. 1, article 2. DOI: 10.35680 / 2372-0247.1538

Barchewitz M., Charels M., Flora L., Gueroult-Accolas, L., Honoré S., Allenet .B, Hache G.(2021). »Connaissances et représentations sur le partenariat patient : enquête auprès des pharmaciens. » Le Pharmacien Hospitalier et Clinicien

Pomey M.-P., Bush P. L., Demers-Payette O., L’Espérance A., Lochhead L., Ganache I., Roy D. (2020) « Developing recommendations for the diagnosis and treatment of Lyme disease: the role of the patient’s perspective in a controversial environment« . International Journal of Technology Assessment in Health Care. Publié en ligne par Cambridge University Press:  23 December 2020

Pétré B., Louis G., Voz B., Berkesse A., Flora L.(2020). »Patient partenaire : de la pratique à la recherche. » Santé publique, Vol. 32, N° 4, Juillet-août, pp. 371-374

Codsi M.-P. (2020). Les coulisses du partenariat patient : Comment le partenariat avec les patients change l’identité des professionnels de la santé ? Département de psychopédagogie et d’andragogie. Faculté des sciences de l’éducation / Faculté de médecine, Université de Montréal

Martineau J.-T., Minyaoui A., Boivin A. (2020). « Partnering with patients in healthcare research: a scoping review of ethical issues, challenges, and recommendations for practice« . BMC Med Ethics 21, 34  https://doi.org/10.1186/s12910-020-0460-0

Flora L. (2019). « Quand l’épreuve singulière de la vie avec la maladie devient processus de transformation d’un système de santé », in Chemins de la formation, Hors série, Vivre la maladie, entre épreuves, récits et histoire, Paris : L’Harmattan, Université de Tours, pp.116-129.

Pétré B. (2019). « Patient partenaire: de la pratique à la recherche. Un regard de santé publique sur les tendances en matière de recherche sur le patient partenaire. », in, Contribution à l’état de l’art : Retour sur le 1er colloque International en France sur le partenariat de soin avec le patient à partir des communications et écoévaluations. Centre d’Innovation du Partenariat avec les Patients et le Public (CI3P), Université côte d’azur, pp. 312-334.

Ballesteros Gallego F., Martin C., Allard J., Anthony S. J., Dumez V., Hartell D., Hébert M.-J., Knoll F., West J. W, Wright L., Fortin M.-C. (2018). » Defining Future Research Priorities in Donation and Organ and Stem Cell Transplantation With Patients, Families, Caregivers, Healthcare Providers and Researchers Within the Canadian National Transplant Research Program ». Transplantation Direct;4: e360; doi: 10.1097/TXD.0000000000000791

Boivin A., Flora L., Dumez V., L’Espérance A., Berkesse A., Gauvin F.-P. (2017). « Transformer la santé en partenariat avec les patients et le public : historique, approche et impacts du “modèle de Montréal”», In « La participation des patients » « vol. 2017, Paris : Editions Dalloz, pp. 11-24.

Ghadiri D. P. S., Flora L., Pomey M.-P. (2017). « Le virage patient partenaire de soins au Québec. Reconfiguration de l’exercice du pouvoir médical et lutte pour de nouvelles subjectivités« . In « La participation des patients« , Paris : Editions Dalloz, pp. 25-36.

Boivin, A., F.-P. Gauvin, P. Lehoux, I. Marcoux, Néron A, G. Baril and M. Flon (2017). Que doit-on savoir sur l’aide médicale à mourir? Comprendre les besoins d’information et les enjeux du partenariat avec les patients, les proches aidants et les professionnels de la santé, Centre d’excellence sur le partenariat avec les patients et le public: 46.

Boivin, A., V. Dumez, C. Loignon, M.-P. Gagnon, P. L. Bush, I. Ganache, F. Laverdière, M. Fournier, M. Menear, J. Légaré and J. Caron-Malenfant (2015). Soutenir la recherche en partenariat avec les patients et le public: stratégie d’engagement pour l’Unité de SOUTIEN-SRAP Quebec: 22.

Flora L. (2014). « Des patients réflexifs, au potentiel de transformation des systèmes de santé. » dans l’ouvrage Les métiers de la santé face aux industries pharmaceutique, agroalimentaires et chimiques, (Dir. Scheffer P.), Paris : L’harmattan.

Bibliographie sur l’implication des patients dans la recherche et la recherche sur l’implication des patients

Loubière, S., Loundou, A., Auquier, P., & Tinland, A. (2023). Psychiatric advance directives facilitated by peer workers among people with mental illness: Economic evaluation of a randomized controlled trial (DAiP study). Epidemiology and Psychiatric Sciences, 32, E27. doi:10.1017/S2045796023000197

Dodd, S., Gorst, S. L., Young, A., Lucas, S. W., Williamson, P. R. (2023). Patient participation impacts outcome domain selection in core outcome sets for research : An updated systematic review. Journal of Clinical Epidemiology, S0895-4356(23)00073-2. https://doi.org/10.1016/j.jclinepi.2023.03.022

Pratte, M.-M., Audette-Chapdelaine, S., Auger, A.-M., Wilhelmy, C., Brodeur, M. (2023). Researchers’ experiences with patient engagement in health research : A scoping review and thematic synthesis. Research Involvement and Engagement, 9(1), 22. https://doi.org/10.1186/s40900-023-00431-8

Evans, M. (2023). Diversity in Programmatic Features, Peer Support Strategies, Potential Mechanisms, and Outcomes. In: Peer Support Services Reaching People with Schizophrenia. Springer, Cham. https://doi.org/
10.1007/978-3-031-29042-8_7

Gonzalez, M., Ogourtsova, T., Zerbo, A., Lalonde, C., Spurway, A., Gavin, F., Shikako, K., Weiss, J. A., Majnemer, A. (2023). Patient engagement in a national research network : Barriers, facilitators, and impacts. Research Involvement and Engagement9(1), 7. https://doi.org/10.1186/s40900-023-00418-5

McVey, L., Frost, T., Issa, B., Davison, E., Abdulkader, J., Randell, R., Alvarado, N., Zaman, H., Hardiker, N., Cheong, V.-L., Woodcock, D. (2023). Working together : Reflections on how to make public involvement in research work. Research Involvement and Engagement9(1), 14. https://doi.org/10.1186/s40900-023-00427-4

Routen, A., O’Mahoney, L., Aiyegbusi, O. L., Alder, Y., Banerjee, A., Buckland, L., Brightling, C., Calvert, M., Camaradou, J., Chaturvedi, N., Chong, A., Dalrymple, E., Eggo, R. M., Elliott, P., Evans, R. A., Gibson, A., Haroon, S., Herrett, E., Houchen-Wolloff, L., Khunti, K. (2023). Patient and public involvement within epidemiological studies of long COVID in the UK. Nature Medicinehttps://doi.org/10.1038/s41591-023-02251-5

Arumugam, A., Phillips, L. R., Moore, A., Kumaran, S. D., Sampath, K. K., Migliorini, F., Maffulli, N., Ranganadhababu, B. N., Hegazy, F., Botto-van Bemden, A. (2023). Patient and public involvement in research : A review of practical resources for young investigators. BMC Rheumatology7(1), 2. https://doi.org/10.1186/s41927-023-00327-w

Capobianco, L., Faija, C., Cooper, B., Brown, L., McPhillips, R., Shields, G., Wells, A. (2023). A framework for implementing Patient and Public Involvement in mental health research : The PATHWAY research programme benchmarked against NIHR standards. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy26(2), 640‑650. https://doi.org/10.1111/hex.13676

De Simoni, A., Jackson, T., Inglis Humphrey, W., Preston, J., Mah, H., Wood, H. E., Kinley, E., Gonzalez Rienda, L., Porteous, C. (2023). Patient and public involvement in research : The need for budgeting PPI staff costs in funding applications. Research Involvement and Engagement9(1), 16. https://doi.org/10.1186/s40900-023-00424-7

Elliott, M. J., McCarron, T. L., Schick-Makaroff, K., Getchell, L., Manns, B., Fernandez, N. (2023). The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network : Perspectives of researchers and patient partners. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy26(2), 905‑918. https://doi.org/10.1111/hex.13716

Marcu, A., McGregor, F., Egan, B., Hill C., Cook T.,  Arbr A. (2023). Developing sustainable patient and public involvement in mesothelioma research: multi-method exploration with researchers, patients, carers, and patient organisations. Res Involv Engagem 9, 15. https://doi.org/10.1186/s40900-023-00426-5

Marcu, A., McGregor, F., Egan, B., Hill, K., Cook, T., Arber, A. (2023). Developing sustainable patient and public involvement in mesothelioma research : Multi-method exploration with researchers, patients, carers, and patient organisations. Research Involvement and Engagement9(1), 15. https://doi.org/10.1186/s40900-023-00426-5

Teela, L., Verhagen, L. E., van Oers, H. A., Kramer, E. E. W., Daams, J. G., Gruppen, M. P., Santana, M. J., Grootenhuis, M. A., Haverman, L. (2023). Pediatric patient engagement in clinical care, research and intervention development : A scoping review. Journal of Patient-Reported Outcomes7(1), 32. https://doi.org/10.1186/s41687-023-00566-y

Zannad, F., Alikhaani, J., Alikhaani, S., Butler, J., Gordon, J., Jensen, K., Khatib, R., Mantovani, L., Martinez, R., Moore, W. F., Murakami, M., Roessig, L., Stockbridge, N., Van Spall, H. G. C., Yancy, C., Spertus, J. A. (2023). Patient-reported outcome measures and patient engagement in heart failure clinical trials : Multi-stakeholder perspectives. European Journal of Heart Failurehttps://doi.org/10.1002/ejhf.2828

Arumugam, A., Phillips, L. R., Moore, A., Kumaran, S. D., Sampath, K. K., Migliorini, F., Maffulli, N., Ranganadhababu, B. N., Hegazy, F., Botto-van Bemden, A. (2023). Patient and public involvement in research : A review of practical resources for young investigators. BMC Rheumatology7(1), 2. https://doi.org/10.1186/s41927-023-00327-w

Capobianco, L., Faija, C., Cooper, B., Brown, L., McPhillips, R., Shields, G., Wells, A. (2023). A framework for implementing Patient and Public Involvement in mental health research : The PATHWAY research programme benchmarked against NIHR standards. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy26(2), 640‑650. https://doi.org/10.1111/hex.13676

De Simoni, A., Jackson, T., Inglis Humphrey, W., Preston, J., Mah, H., Wood, H. E., Kinley, E., Gonzalez Rienda, L., Porteous, C. (2023). Patient and public involvement in research : The need for budgeting PPI staff costs in funding applications. Research Involvement and Engagement9(1), 16. https://doi.org/10.1186/s40900-023-00424-7

Elliott, M. J., McCarron, T. L., Schick-Makaroff, K., Getchell, L., Manns, B., Fernandez, N. (2023). The dynamic nature of patient engagement within a Canadian patient-oriented kidney health research network : Perspectives of researchers and patient partners. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy26(2), 905‑918. https://doi.org/10.1111/hex.13716

Gross O. (2023). « Nouveau paradigme de la relation de soin au 21e siècleet nouveaux défis». Rééducation Orthophonique. N° 293/294 – mars/juin, pp.11-22.

O’Hanlon C. E., Giannitrapani K. F., Gamboa R. C., Walling A.-M., Lindvall C., Garrido M., Asch S. M., Lorenz K. A. (2023)Integrating Patient and Expert Perspectives to Conceptualize High-Quality Palliative Cancer Care for Symptoms in the US Veterans Health Administration: A Qualitative Study. INQUIRY: The Journal of Health Care Organization, doi/10.1177/00469580231160374

Buckley, C., Treweek, S., Laidlaw, L., Shiely, F. (2023). Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials. Trials24(1), 93. https://doi.org/10.1186/s13063-022-06980-9

Estrup, S., Barot, E., Mortensen, C. B., Anthon, C. T., Crescioli, E., Kjaer, M.-B. N., Vesterlund, G. K., Bruun, C. R. L., Collet, M. O., Rasmussen, B. S., Sivapalan, P., Poulsen, L. M., Møller, M. H., Perner, A., & Granholm, A. (2023). Patient and public involvement in contemporary large intensive care trials : A meta-epidemiological study. Acta Anaesthesiologica Scandinavica67(3), 256‑263. https://doi.org/10.1111/aas.14183

McKenna, V. B., Sixsmith, J., Byrne, N. (2023). Patient public involvement (PPI) in health literacy research : Engagement of adults with literacy needs in the co-creation of a hospital-based health literacy plan. Health Expectations : An International Journal of Public Participation in Health Care and Health Policyhttps://doi.org/10.1111/hex.13736

Schoemaker, C. G., Richards, D. P., de Wit, M. (2023). Matching researchers’ needs and patients’ contributions : Practical tips for meaningful patient engagement from the field of rheumatology. Annals of the Rheumatic Diseases82(3), 312‑315. https://doi.org/10.1136/ard-2022-223561

Schuster, A. L. R., Hampel, H., Paskett, E. D., Bridges, J. F. P. (2023). Rethinking Patient Engagement in Cancer Research. The Patient16(2), 89‑93. https://doi.org/10.1007/s40271-022-00604-9

Bergin, R. J., Short, C. E., Davis, N., Marker, J., Dawson, M. T., Milton, S., McNamara, M., Druce, P., Milley, K., Karnchanachari, N., Skaczkowski, G. (2023). The nature and impact of patient and public involvement in cancer prevention, screening and early detection research : A systematic review. Preventive Medicine167, 107412. https://doi.org/10.1016/j.ypmed.2022.107412

Blaylock, R. (2023). Patient and Public Involvement (PPI) in abortion research : An exploratory survey. BMJ Sexual & Reproductive Health49(1), 69. https://doi.org/10.1136/bmjsrh-2022-201648

Capobianco, L., Faija, C., Cooper, B., Brown, L., McPhillips, R., Shields, G., Wells, A. (2023). A framework for implementing Patient and Public Involvement in mental health research : The PATHWAY research programme benchmarked against NIHR standards. Health Expectations : An International Journal of Public Participation in Health Care and Health Policyhttps://doi.org/10.1111/hex.13676

Crowther, D., McCulloch, H., Wong, H., Mackay, R., Johnson, C., Chorney, J., Ritchie, K., Lawrence, L., Bishop, A., Helwig, M., Curran, J. (2023). Children, young people and parent engagement in health intervention design and implementation : A scoping review. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy26(1), 1‑15. https://doi.org/10.1111/hex.13572

Loria-Rebolledo, L. E., Watson, V., Hassan, S., Gabbay, M., Tahir, N., Hossain, M., Goodall, M., Frith, L. (2023). Public contributors’ preferences for the organization of remote public involvement meetings in health and social care : A discrete choice experiment study. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy26(1), 146‑159. https://doi.org/10.1111/hex.13641

Özdemir, V. (2023). Public Engagement and Global Governance of Science : Beyond Instrumentalism. Omics : A Journal of Integrative Biologyhttps://doi.org/10.1089/omi.2022.0190

Prebeg, M., Patton, M., Desai, R., Smith, M., Krause, K., Butcher, N., Monga, S. (2023). From participants to partners : Reconceptualising authentic patient engagement roles in youth mental health research. The Lancet. Psychiatry10(2), 139‑145. https://doi.org/10.1016/S2215-0366(22)00377-7

Røssvoll, T. B., Hanssen, T. A., Rosenvinge, J. H., Liabo, K., Pettersen, G. (2023). Patient and Public Involvement in Occupational Therapy Health Research : A Scoping Review. OTJR : Occupation, Participation and Health43(1), 119‑126. https://doi.org/10.1177/15394492221096058

Schoemaker, C. G., Richards, D. P., de Wit, M. (2023). Matching researchers’ needs and patients’ contributions : Practical tips for meaningful patient engagement from the field of rheumatology. Annals of the Rheumatic Diseases, ard-2022-223561. https://doi.org/10.1136/ard-2022-223561

Staley, A. (2023). Transforming patient engagement in clinical trials : Moving from a transactional relationship to human-centered care. Drug Discovery Today, 103509. https://doi.org/10.1016/j.drudis.2023.103509

Høgh Egmose C., Heinsvig Poulsen C., Hjorthøj C., Skriver Mundy S., 
Hellström L., Nørgaard Nielsen M., Korsbek L., Rasmussen K., Falgaard Eplov L. (2023) The Effectiveness of Peer Support in Personal and Clinical Recovery—Systematic Review and Meta-Analysis. https://doi.org/10.1176/appi.ps.202100138

Burgher T., Shepherd V., Nollett C. (2023). Effective approaches to public involvement in care home research: a systematic review and narrative synthesis. Research Square : https://doi.org/10.21203/rs.3.rs-2500865/v1

Del Grande C., Kaczorowski J., Pomey M-P. (2023). What are the top priorities of patients and clinicians for the organization of primary cardiovascular care in Quebec? A modified e-Delphi study. PLoS ONE 18(1): e0280051. https://doi.org/10.1371/journal.pone.0280051

Shankland M., Amaryllis Ferrand A., Ganache I., Côté M.-A., Pomey M.-P. (2023). Ethical Foundations of the Accompanying Patient’s Role for an Enhanced Patient Experience: A Scoping Review. J. Pers. Med. 13, 77

Shankland M., Amaryllis Ferrand A., Ganache I., Côté M.-A., Pomey M.-P. (2023). Ethical Foundations of the Accompanying Patient’s Role for an Enhanced Patient Experience: A Scoping Review. J. Pers. Med. 13, 77

Schoemaker C. G., Richards D. P., de Wit M. (2023). Matching researchers’ needs and patients’ contributions: practical tips for meaningful patient
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Gladman J. R.F., Phillips B., Frost K., Webster R., Stocks J., Horobin A., Wragg A., Mundey M., Humes D., Woodcock R., Braybrooke R., Junor A., Hendy C., Morgan K., Prior M. (2022). Patient and Public Involvement and Engagement for PhD Students. East Midlands Research into Ageing Network (EMRAN). Issue 49, December

Ali, A. Z., Wright, B., Curran, J. A., Newton, A. S. (2022). Review : Patient engagement in child, adolescent, and youth mental health care research—A scoping review. Child and Adolescent Mental Health
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Bertorello, D., Brichetto, G., Folkvord, F., Theben, A., Zaratin, P. (2022a). A Systematic Review of Patient Engagement Experiences in Brain Disorders. Patient Related Outcome Measures13, 259‑272. 
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Dawes, P., Arru, P., Corry, R., McDermott, J. H., Garlick, J., Guest, H., Howlett, E., Jackson, I., James, R., Keane, A., Murray, C., Newman, W., Visram, A., Munro, K. J. (2022). Patient and public involvement in hearing research : Opportunities, impact and reflections with case studies from the Manchester Centre for Audiology and Deafness. International Journal of Audiology, 1‑9. https://doi.org/10.1080/14992027.2022.2155881

Estrup, S., Barot, E., Mortensen, C. B., Anthon, C. T., Crescioli, E., Kjaer, M.-B. N., Vesterlund, G. K., Bruun, C. R. L., Collet, M. O., Rasmussen, B. S., Sivapalan, P., Poulsen, L. M., Møller, M. H., Perner, A., Granholm, A. (2022). Patient and public involvement in contemporary large intensive care trials : A meta-epidemiological study. Acta Anaesthesiologica Scandinavica.
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Sieck, C. J., Nicks, S. E., Salem, J., DeVos, T., Thatcher, E., Hefner, J. L. (2022). Addressing Equity and Social Needs : The New Frontier of Patient Engagement Research. Advances in Health Care Management
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Hards, A., Cameron, A., Sullivan, E., Lornelsen J. (2022). Actualizing community–academic partnerships in research: a case study on rural perinatal peer support. Res Involvment Engagement 8, 73. https://doi.org/10.1186/s40900-022-00407-0 . 

Jerofke-Owen T. A., Tobiano G., Eldh A. C. (2022). « Patient engagement, involvement, or participation—entrapping concepts in nurse‐patient interactions: A critical discussionncepts in nurse‐patient interactions: A critical discussion« . Nursing Inquiry, 24/07 : https://doi.org/10.1111/nin.12513

Fowler Davies S., Woodward C., Greenfield B., Homer C., Williams K., Hameed W., Riley B., Roberts D., Bryan G. 2022). « Bringing lived experience into research: good practices for public involvement in research ». Perspectives in Public Health. Vol 142 No 4 l, pp. 205-208. DOI: 10.1177/17579139221102229

Beresford-Dent J., Sprange K., Mountain G., Mason C., Wright J., Craig C., Birt L. (2022). Embedding patient and public involvement in dementia research : Reflections from experiences during the « Journeying through Dementia » randomised controlled trialDementia (London, England), 14713012221106816. https://doi.org/10.1177/14713012221106816

Bharadia T., Vandercappellen J., Chitnis T., Eelen P., Bauer B., Brichetto G., Lloyd A., Schmidt H., King M., Fitzgerald J., Hach T., Hobart J. (2022). Patient-reported outcome measures in MS: Do development processes and patient involvement support valid quantification of clinically important variables? Multiple Sclerosis Journal – Experimental, Translational and Clinical8(2),20552173221105640. 

Fox G., Fergusson D. A., Nicholls S. G., Smith M., Stacey D., Lalu, M. M. (2022). Recognizing patient partner contributions to health research : A mixed methods research protocolResearch Involvement and Engagement8(1), 24. https://doi.org/10.1186/s40900-022-00354-w

Gibbins K. J., Lo J. O. (2022). What Matters to Whom : Patient and Public Involvement in ResearchClinical Obstetrics and Gynecology65(2), 268‑276. https://doi.org/10.1097/GRF.0000000000000694

Mc Menamin R., Isaksen J., Manning M., Tierney E. (2022). Distinctions and blurred boundaries between qualitative approaches and public and patient involvement (PPI) in researchInternational Journal of Speech-Language Pathology, 1‑12. https://doi.org/10.1080/17549507.2022.2075465

Mores B., Drossart I., Jennings C., Moons, P. (2022). Patient involvement in scientific journals : A new road for the European Journal of Cardiovascular NursingEuropean Journal of Cardiovascular Nursing21(4), 295‑296. https://doi.org/10.1093/eurjcn/zvac025

Polanco A., Al-Saadi R., Tugnait S., Scobie N., Pritchard-Jones K. (2022). Setting international standards for patient and parent involvement and engagement in childhood, adolescent and young adult cancer research : A report from a European Collaborative Workshop. Cancer Reports (Hoboken, N.J.)5(6), e1523. https://doi.org/10.1002/cnr2.1523

Vanderhout S., Nicholls S., Monfaredi Z., Hampel C., Ashdown L., Bilodeau M., Rich S., Shea B., Fergusson D. (2022). Facilitating and supporting the engagement of patients, families and caregivers in research : The « Ottawa model » for patient engagement in researchResearch Involvement and Engagement8(1), 25. https://doi.org/10.1186/s40900-022-00350-0

Wind A., van der Linden C., Hartman E., Siesling S., Van Harten W. (2022). Patient involvement in clinical pathway development, implementation and evaluation—A scoping review of international literaturePatient Education and Counseling105(6), 1441‑1448. https://doi.org/10.1016/j.pec.2021.10.007

Yamaguchi S., Abe M., Kawaguchi T., Igarashi M., Shiozawa T., Ogawa M., Yasuma N., Sato S., Miyamoto Y., Fujii C. (2022). Multiple stakeholders’ perspectives on patient and public involvement in community mental health services research : A qualitative analysisHealth Expectations : An International Journal of Public Participation in Health Care and Health Policyhttps://doi.org/10.1111/hex.13529

Youssef E., Mellor D., Walkerly S., Wright D. J. (2022). Enhancing pharmacy practice doctoral research with patient and public involvementThe International Journal of Pharmacy Practice30(3), 288‑291. https://doi.org/10.1093/ijpp/riac014

Zvonareva O., Craveț C., Richards D. P. (2022). Practices of patient engagement in drug development : A systematic scoping reviewResearch Involvement and Engagement8(1), 29. https://doi.org/10.1186/s40900-022-00364-8

Carlson L. E., Karim S,  Labelle L.. E. (2022). The ACTION Centre as a Model for Patient Engagement and Knowledge Translation in Integrative Oncology Practice, Training, and Research. Integrative Cancer Therapies , Volume 21: 1–4 : https://doi.org/10.1177/15347354221103277

Leba I., Magnin S., Boeker M., Pro H.-U (2022). Classification of Patient Portals Described in Evaluation Studies Using the TOPCOP Taxonomy. Healthcare of the Future 2022. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0). doi:10.3233/SHTI220315

Fox, G., Fergusson, D.A., Nicholls G., Smith M., StaceyD., Lalu. M. M. (2022). Recognizing patient partner contributions to health research: a mixed methods research protocol. Res Involv Engagem 8, 24 (2022). https://doi.org/10.1186/s40900-022-00354-w

Vanderhout, S., Nicholls, S., Monfaredi, Z., Hampel C., Hashdown L., Bilodeau M., Rich S., Shea B., Fergusson D. (2022). Facilitating and supporting the engagement of patients, families and caregivers in research: the “Ottawa model” for patient engagement in researchRes Involv Engagem 8, 25 (2022). https://doi.org/10.1186/s40900-022-00350-0

Green J., Leadbitter K., Ellis C., et al. (2022). An adapted social communication intervention at home and education to promote social communication change in children with severe autism: the PACT-G RCT. Southampton (UK): National Institute for Health and Care Research. (Efficacy and Mechanism Evaluation, No. 9.3.) Chapter 6, Patient and public involvement. Available from: https://www.ncbi.nlm.nih.gov/books/NBK580572/

Béland S. , Lambert M., Delahunty-Pike A. , Howse D. , Schwarz C. , Chouinard M.-C. , Aubrey-Bassler K. , Burge F. , Doucet S. ,  Danish A. , Dumont-Samson O. , Bisson M. , Luke A. , Macdonald M. , Gaudreau A., Porter J. , Rubenstein D. , Sabourin V. , Scott C., Warren M. , Wilhelm L. , Hudon C. (2022). « Patient and researcher experiences of patient engagement in primary care health care research: a participatory qualitative study », Health Expectations. doi: 10.1111/hex.13542

Usher S., Denis J.-L. (2022). Exploring expectations and assumptions in the public and patient engagement literature : A meta-narrative reviewPatient Education and Counseling, S0738-3991(22)00147-1. https://doi.org/10.1016/j.pec.2022.04.001

Adeyemi I., Sanders C., Ong B. N., Howells K., Quinlivan L., Gorman L., Giles S., Amp M., Monaghan E., Naseem S., Pearson A., Cheraghi-Sohi S. (2022). Challenges and adaptations to public involvement with marginalised groups during the COVID-19 pandemic : Commentary with illustrative case studies in the context of patient safety researchResearch Involvement and Engagement8(1), 13. https://doi.org/10.1186/s40900-022-00345-x

Boyd J. L., Sugarman J. (2022). Toward Responsible Public Engagement in Neuroethics. AJOB Neuroscience13(2), 103‑106. https://doi.org/10.1080/21507740.2022.2048736

Carlton J., Peasgood T., Mukuria C., Johnson J., Ogden M., Tovey W. (2022). The role of patient and public involvement and engagement (PPIE) within the development of the EQ Health and Wellbeing (EQ-HWB)Journal of Patient-Reported Outcomes6(1), 35. https://doi.org/10.1186/s41687-022-00437-y

Derksen-Lazet N. D., Parmentier C. E. J., Wildenbeest J. G., Bont L. J. (2022). Patient Involvement in RSV Research : Towards Patients Setting the Research AgendaThe Journal of Infectious Diseases, jiac110. https://doi.org/10.1093/infdis/jiac110

Etchegary H., Pike A., Patey A. M., Gionet E., Johnston B., Goold S., Francis V., Grimshaw J., Hall A. (2022). Operationalizing a patient engagement plan for health research : Sharing a codesigned planning template from a national clinical trial. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy25(2), 697‑711. https://doi.org/10.1111/hex.13417

Fox G., Fergusson D. A., Foster M., Hawrysh T., Dupont S., Walling D. J., Irwin M., Kekre N., Presseau J., Castillo G., Montroy J., Lalu M. M. (2022). Building a Platform for Meaningful Patient Partnership to Accelerate « Bench-to-Bedside » Translation of Promising New TherapiesHealthcare Quarterly (Toronto, Ont.)24(SP), 74‑79. https://doi.org/10.12927/hcq.2022.26770

Freebairn L., Song Y. J. C., Occhipinti J.-A., Huntley S., Dudgeon P., Robotham J., Lee G. Y., Hockey S., Gallop G., Hickie I. B. (2022). Applying systems approaches to stakeholder and community engagement and knowledge mobilisation in youth mental health system modellingInternational Journal of Mental Health Systems16(1), 20. https://doi.org/10.1186/s13033-022-00530-1

Gusset N. (2022). Importance of Patient Involvement in the Value Assessment Process : On the Way Towards Personalised TreatmentsPharmacoEconomics40(Suppl 1), 7‑10. https://doi.org/10.1007/s40273-021-01122-6

Klingler C., Wiese L., Arnason G., Ranisch R. (2022). Public Engagement With Brain Organoid Research and Application : Lessons From Genome Editing. AJOB Neuroscience13(2), 98‑100. https://doi.org/10.1080/21507740.2022.2048733

Leese J., Garraway L., Li L., Oelke N., MacLeod M. (2022). Adapting patient and public involvement in patient-oriented methods research : Reflections in a Canadian setting during COVID-19Health Expectations : An International Journal of Public Participation in Health Care and Health Policy25(2), 477‑481. https://doi.org/10.1111/hex.13387

Merker V. L., Hyde J. K., Herbst A., Solch A. K., Mohr D. C., Gaj L., Dvorin K., Dryden E. M. (2022). Evaluating the Impacts of Patient Engagement on Health Services Research Teams : Lessons from the Veteran Consulting NetworkJournal of General Internal Medicine37(Suppl 1), 33‑41. https://doi.org/10.1007/s11606-021-06987-z

Pan R. Y., Zhang K., Sivakumar A., Choi D., Wang A. H., Wijeyesekera P., Yu C. H. (2022). Evaluation of Experiences and Impact of Patient Engagement on e-Health Research : A Qualitative StudyHealthcare Quarterly (Toronto, Ont.)24(SP), 44‑48. https://doi.org/10.12927/hcq.2022.26775

Price A., Clarke M., Staniszewska S., Chu L., Tembo D., Kirkpatrick M., Nelken Y. (2022). Patient and Public Involvement in research : A journey to co-production. Patient Education and Counseling105(4), 1041‑1047. https://doi.org/10.1016/j.pec.2021.07.021

Ristevski I., Kiew J., Hendry M., Prunier M., Noronha R., Al-Hammadi M., Flegg K., Gallie B. L., Paton K., Dimaras H. (2022). The Retinoblastoma Research Booklet : A Catalyst for Patient Involvement in Retinoblastoma ResearchHealthcare Quarterly (Toronto, Ont.)24(SP), 61‑68. https://doi.org/10.12927/hcq.2022.26772

Ryf C., Hofstetter L., Clack L., Puhan M. A., Hincapié C. A. (2022). Involving patients and clinicians in a pilot randomised clinical trial of spinal manual therapy versus nerve root injection for lumbar radiculopathy : Protocol of a patient and public involvement projectBMJ Open12(4), e057881. https://doi.org/10.1136/bmjopen-2021-057881

Tingley K., Smith M., Pallone N., Chakraborty P., Potter B. K. (2022). Patient Engagement in a Multi-Stakeholder Workshop to Plan the Collection of Patient-Oriented Outcomes for Children with Inherited Metabolic Diseases. Healthcare Quarterly (Toronto, Ont.)24(SP), 81‑85. https://doi.org/10.12927/hcq.2022.26769

Vanderhout S. M., Birken C. S., Wong P. D., Weir S., Batten J., Maguire J. L. (2022). Parent Engagement in a COVID-19 Cohort Study of Children and Families : Successes, Challenges and Next StepsHealthcare Quarterly (Toronto, Ont.)24(SP), 31‑34. https://doi.org/10.12927/hcq.2022.26777

van Schelven F., Boeije H., Rademakers J. (2022). Evaluating meaningful impact of Patient and Public Involvement : A Q methodology study among researchers and young people with a chronic conditionHealth Expectations : An International Journal of Public Participation in Health Care and Health Policy25(2), 712‑720. https://doi.org/10.1111/hex.13418

Henry-Noel N., Paton M., Wong R., Dawdy K., Karim A., Soliman H., Di Prospero L., Harnett N., DeAngelis C., Desai C., Wiljer D., Harth T., Akkila S., Szumacher E. (2022), « Patient engagement in the Continuing Professional Development programs within the department of radiation oncology at the University of Toronto (UTDRO): A qualitative study« , Journal of Medical Imaging and Radiation Sciences : https://doi.org/10.1016/j.jmir.2022.03.003.

Backman, C. L., Davidson, E., Martini, R. (2022). « Advancing Patient and Community Engagement in Occupational Therapy Research« . Canadian Journal of Occupational Therapy. Revue Canadienne d’ergotherapie89(1),
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Parry M., Ceroni T., Wells D., Richards D. P., Toupin-April K., Ansari H., Bjørnnes A. K., Burnside H., Cavallo S., Day A., Ellis A., Feldman D., Gilron I., Najam A., Zulfiqar Z., Marlin S. (2022). « Patient engagement partnerships in clinical trials (PEP-CT) : Protocol for the systematic development and testing of patient partner and investigator decision aids« . BMJ Open12(2), e060267. https://doi.org/10.1136/bmjopen-2021-060267

Preston J., Nafria B., Ohmer A., Gaillard S., Dicks P., West L., Turner M. A. (2022). « Developing a More Tailored Approach to Patient and Public Involvement with Children and Families in Pediatric Clinical Research : Lessons Learned« . Therapeutic Innovation & Regulatory Science, 1‑16. https://doi.org/10.1007/s43441-022-00382-4

Colomer-Lahiguera, S., Corbière, T., Reeb-Landry, F., Ninane, F., Addeo, A., Eicher, M. (2022). « Patient involvement in oncology research—Development of a reference framework in French-speaking Switzerland« . Revue medicale suisse18 (775), pp. 621‑625. https://doi.org/10.53738/REVMED.2022.18.775.621

Condon, L., Curejova, J., Leeanne Morgan, D., Miles, G., Barry, D., Fenlon, D. (2022). « Public involvement in participatory research : The experiences of peer interviewers from Roma, Gypsy and Traveller communities« . Nurse Researcher30(1), 17‑23. https://doi.org/10.7748/nr.2022.e1818

Cooper, L., Ahmed, S., Bibeau, C., Buckley, N., Crowe, L., Decoste, J., Keely, E., McCutcheon, T., Singer, A. G., Visca, R., Liddy, C. (2022). « Impact of patient partner co-design on survey development in primary care research : Case study« . Canadian Family Physician Medecin de Famille Canadien68(3), pp. 235‑236. https://doi.org/10.46747/cfp.6803235

Farrell, M., Wilkinson, C. (2022). « A reappraisal of public engagement in Oxford during the pandemic : Three case studies« . Research Involvement and Engagement8(1), 10. https://doi.org/10.1186/s40900-022-00343-z

Gorelick, P. B. (2022). « Community Engagement : Lessons Learned From the AAASPS and SDBA« . Stroke53(3), pp. 654‑662. https://doi.org/10.1161/STROKEAHA.121.034554

Groot, B., Abma, T. (2022). « Ethics framework for citizen science and public and patient participation in research« . BMC Medical Ethics23(1), 23. https://doi.org/10.1186/s12910-022-00761-4

Heague, M., Ray, C., Bowers, J., Guckian, J., Arents, B. W. M., Layton, A. (2022). « Patient and Public Involvement in Dermatology Research : A Review« . American Journal of Clinical Dermatology, 1‑11. https://doi.org/10.1007/s40257-022-00680-5

Greenwood K., Robertson S., Vogel E., Vella C., Ward T., McGourty A., Sacadura C., Hardy A., Rus-Calafell M., Collett N., Emsley R., Freeman D., Fowler D., Kuipers E., Bebbington P., Dunn G., Garety P. (2022). « The impact of Patient and Public Involvement in the SlowMo study : Reflections on peer innovation« . Health Expectations : An International Journal of Public Participation in Health Care and Health Policy25(1), pp. 191‑202.
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Jensen, A. M., Jensen, E. A., Duca, E., Daly, J., Mundow, N., Roche, J. (2022). « How does moving public engagement with research online change audience diversity ? Comparing inclusion indicators for 2019 & 2020 European Researchers’ night events« . PloS One17(3), e0262834. https://doi.org/10.1371/journal.pone.0262834

Merker, V. L., Hyde, J. K., Herbst, A., Solch, A. K., Mohr, D. C., Gaj, L., Dvorin, K., Dryden, E. M. (2022). « Evaluating the Impacts of Patient Engagement on Health Services Research Teams : Lessons from the Veteran Consulting Network« . Journal of General Internal Medicinehttps://doi.org/10.1007/s11606-021-06987-z

Mew, L., Heaslip, V., Immins, T., Wainwright, T. W. (2022). « A Patient and Public Involvement Study to Explore the Need for Further Research into the Experience of Younger Patients Undergoing Total Hip Arthroplasty« . Journal of Patient Experience9, 23743735221083170. https://doi.org/10.1177/23743735221083166

Sá-Sousa, A., Rodrigues, T., Fernandes, S., Santos, A. M., Garcia-Lema, I., Costa, E. D., Chaves Loureiro, C., Boechat, J. L., Baía Reis, A., Figueiredo, D., Fonseca, J. A., Neves, A. L., Jácome, C. (2022). « ConectAR: Collaborative network of patients with asthma and carers actively involved in health research. A protocol for patient and public involvement« . European Annals of Allergy and Clinical Immunologyhttps://doi.org/10.23822/EurAnnACI.1764-1489.249

Schandl, A., Mälberg, K., Haglund, L., Arnberg, L., Lagergren, P. (2022). « Patient and public involvement in oesophageal cancer survivorship research« . Acta Oncologica (Stockholm, Sweden)61(3), pp. 371‑377. https://doi.org/10.1080/0284186X.2021.2016950

Sousa, V., Moaven, H., Yogarajah, A., Betancur, D., Beltrán, V., Lara-Pompa, N., Nanayakkara, L., Donos, N. (2022). « Public involvement in research : Exploring periodontal and peri-implant health and disease in partnership with Perio@RLH patient forum members« . British Dental Journal232(6),
pp. 371‑374. https://doi.org/10.1038/s41415-022-3989-0

Taflan, S. S., Esatoglu, S. N., Ozguler, Y., Yurttas, B., Melikoglu, M., Hatemi, G. (2022). « Challenges in optimising patient participation in research : Do patients participating in meetings represent the actual patient population with Behçet’s syndrome? » Annals of the Rheumatic Diseases81(3),
pp. 448‑450. https://doi.org/10.1136/annrheumdis-2021-221654

Tan, R. K. J., Wu, D., Day, S., Zhao, Y., Larson, H. J., Sylvia, S., Tang, W., Tucker, J. D. (2022). « Digital approaches to enhancing community engagement in clinical trials« . NPJ Digital Medicine5(1), 37. https://doi.org/10.1038/s41746-022-00581-1

van Eeghen, C., Hitt, J. R., Pomeroy, D. J., Reynolds, P., Rose, G. L., O’Rourke Lavoie, J. (2022). « Co-creating the Patient Partner Guide by a Multiple Chronic Conditions Team of Patients, Clinicians, and Researchers : Observational Report« . Journal of General Internal Medicine, 1‑7. https://doi.org/10.1007/s11606-021-07308-0

Youssef E., Mellor D., Walkerly S., Wright D. J. (2022). “Enhancing pharmacy practice doctoral research with patient and public involvement”. International Journal of Pharmacy Practice, riac014, 09 March, https://doi.org/10.1093/ijpp/riac014

Biggane, A.M., Young, B., Williamson, P.R. et al. (2022) Enhancing patient and public contribution in health outcome selection during clinical guideline development: an ethnographic study. BMC Health Serv Res 22, 361 . https://doi.org/10.1186/s12913-022-07736-6.

Bartel, R., Hoel, S., Mckinley, L., Baubie, K., Keating, J. A., afdar, N. (2022). « The patient engagement in education and research (PEER) healthcare-associated infection prevention project : A patient perspective« . American Journal of Infection Control50(2), pp. 233‑234. https://doi.org/10.1016/j.ajic.2021.10.011

Buchanan, F., Peasgood, A., Easton, M., Haas, K., Narayanan, U. (2022). » The Research Family Advisory Committee : The patient and family view of implementing a research-focused patient engagement strategy« . Research Involvement and Engagement8(1), 2. https://doi.org/10.1186/s40900-022-00335-z

Condon L., Curejova J., Morgan D. L., Miles G., Barry D., Fenlon D. (2022). « Public involvement in participatory research : The experiences of peer interviewers from Roma, Gypsy and Traveller communities« . Nurse Researcherhttps://doi.org/10.7748/nr.2022.e1818

Del Gaizo V., Kohlheim M. (2022). « Patient Engagement in Pediatric Rheumatology Research ». Rheumatic Diseases Clinics of North America48(1), 1‑13. https://doi.org/10.1016/j.rdc.2021.09.013

Dember, L. M. (2022). What Patients Teach Us About Patient Engagement in ResearchClinical Journal of the American Society of Nephrology : CJASN17(2), pp. 176‑178. https://doi.org/10.2215/CJN.16561221

Richards D. P., Cobey K. D., Proulx L., Dawson S., de Wit M., Toupin-April K. (2022). « Identifying potential barriers and solutions to patient partner compensation (payment) in research« . Research Involvement and Engagement8(1), 7. https://doi.org/10.1186/s40900-022-00341-1

Roberts J. C., Recht M., Gonzales S. E., Stanley J., Denne M., Caicedo J., Rockwood K. (2022). « Incorporating the patient voice and patient engagement in GOAL-Hēm : Advancing patient-centric hemophilia care« . Research and Practice in Thrombosis and Haemostasis6(1), e12655. https://doi.org/10.1002/rth2.12655

Schandl A., Mälberg K., Haglund L., Arnberg L., Lagergren P. (2022). « Patient and public involvement in oesophageal cancer survivorship research« . Acta Oncologica (Stockholm, Sweden)61(3), pp. 371‑377. https://doi.org/10.1080/0284186X.2021.2016950

Van der Wouden P., Hilverda F., Van der Heijden G., Shemesh H., Pittens C. (2022). « Establishing the research agenda for oral healthcare using the Dialogue Model-patient involvement in a joint research agenda with practitioners« . European Journal of Oral Sciences130 (1),e12842. https://doi.org/10.1111/eos.12842

Cluley V., Ziemann A., Feeley C., Olander E. K., Shamah S., Stavropoulou C. (2022). « Mapping the role of patient and public involvement during the different stages of healthcare innovation : A scoping review« . Health Expectations : An International Journal of Public Participation in Health Care and Health Policyhttps://doi.org/10.1111/hex.13437

Miller-Rosales C., Miake-Lye I. M., Brewster A. L., Shortell S. M., Rodriguez H. P. (2022). « Pathways for Primary Care Practice Adoption of Patient Engagement Strategies« . Health Services Researchhttps://doi.org/10.1111/1475-6773.13959

Del Gaizo V., Kohlheim M. (2022). « Patient Engagement in Pediatric Rheumatology Research« . Rheumatic Diseases Clinics of North America48 (1), pp. 1‑13. https://doi.org/10.1016/j.rdc.2021.09.013

De Weger E., Baan C., Bos C., Luijkx K., Drewes H. (2022). « They need to ask me first ». Community engagement with low-income citizens. A realist qualitative case-study ». Health Expectations : An International Journal of Public Participation in Health Care and Health Policyhttps://doi.org/10.1111/hex.13415

Loignon C., Dupéré S., Leblanc C., Truchon K., Bouchard A., Arsenault J., Pinheiro Carvalho J., Boudreault-Fournier A., Marcotte S. A. (2021). « Equity and inclusivity in research : Co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills ». Research Involvement and Engagement7(1), 70. https://doi.org/10.1186/s40900-021-00313-x

Aguayo G. A., Goetzinger C., Scibilia R., Fischer A., Seuring T., Tran V.-T., Ravaud P., Bereczky T., Huiart L., Fagherazzi G. (2021). « Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research : Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study« . Journal of Medical Internet Research23(12), e25743. https://doi.org/10.2196/25743

Merle R, Pison C, Logerot S, Deschaux C., Arnol N., Roustit M., Tamisier R., Pépin J.-L., Bore J. C. (2021). Peer-driven intervention to help patients resume CPAP therapy following discontinuation: a multicentre, randomised clinical trial with patient involvement. BMJ Open 2021;11:e053996. doi:10.1136/

Ellis, U., Kitchin, V., Vis-Dunbar, M. (2021). Identification and Reporting of Patient and Public Partner Authorship on Knowledge Syntheses : Rapid Review. Journal of Participatory Medicine13(2), e27141. https://doi.org/10.2196/27141

Aries A. M., Bailey P., Hunter S. M. (2021). « The mutual benefits of patient and public involvement in research : An example from a feasibility study (MoTaStim-Foot)« . Research Involvement and Engagement7(1), 87. https://doi.org/10.1186/s40900-021-00330-w

Bradshaw E., Whale K., Burston A., Wylde V., Gooberman-Hill R. (2021). « Value, transparency, and inclusion : A values-based study of patient involvement in musculoskeletal research« . PloS One16(12), e0260617. https://doi.org/10.1371/journal.pone.0260617

Etchegary H., Pike A., Patey A. M., Gionet E., Johnston B., Goold S., Francis V., Grimshaw J., Hall A. (2021). « Operationalizing a patient engagement plan for health research : Sharing a codesigned planning template from a national clinical trial« . Health Expectations : An International Journal of Public Participation in Health Care and Health Policyhttps://doi.org/10.1111/hex.13417

Fletcher J., Swift A., Hewison M., C Cooper S. (2021). « Patient and public involvement in research design and oversight« . Nurse Researcher29(4),
pp. 11‑18. https://doi.org/10.7748/nr.2021.e1786

Gray R., Brasier C., Zirnsak T.-M., Ng A. H. (2021). « Reporting of patient and public involvement and engagement (PPIE) in clinical trials published in nursing science journals : A descriptive study« . Research Involvement and Engagement7(1), 88. https://doi.org/10.1186/s40900-021-00331-9

Schandl A., Mälberg K., Haglund L., Arnberg L., Lagergren P. (2021). « Patient and public involvement in oesophageal cancer survivorship research« . Acta Oncologica (Stockholm, Sweden), 1‑7. https://doi.org/10.1080/0284186X.2021.2016950

Pétré B., Margat A., Crozet C. (2021).  » Un appel aux recommandations pour l’enseignement de l’ETP en formation initiale des professionnels de santé : regards croisés entre exploration de la littérature et avis des acteurs européens de l’ETP« . Educ Ther Patient/Ther Patient Educ, 13, 10202, 28 mai 2021

Lohse, B., Cunningham-Sabo, L. (2021). Quantifying parent engagement in the randomized Fuel for Fun impact study identified design considerations and BMI relationships. BMC Medical Research Methodology21(1), 205. https://doi.org/10.1186/s12874-021-01398-4

Ormstad, H., Jamtvedt, G., Svege, I., Crowe, S. (2021). The Bridge Building Model : Connecting evidence-based practice, evidence-based research, public involvement and needs led research. Research Involvement and Engagement7(1), 77. https://doi.org/10.1186/s40900-021-00320-y

Rodriguez-Diaz, C. E., Davis, W., Ellis, M. V., Cameron, M. S., Donastorg, Y., Bowleg, L., Greenberg, A., Kerrigan, D. (2021). Disrupting the Systems : Opportunities to Enhance Methodological Approaches to Address Socio-Structural Determinants of HIV and End the Epidemic Through Effective Community Engagement. AIDS and Behavior25(Suppl 2), 225‑231. https://doi.org/10.1007/s10461-021-03475-7

Selman, L. E., Clement, C., Douglas, M., Douglas, K., Taylor, J., Metcalfe, C., Lane, J. A., Horwood, J. (2021). Patient and public involvement in randomised clinical trials : A mixed-methods study of a clinical trials unit to identify good practice, barriers and facilitators. Trials22(1), 735. https://doi.org/10.1186/s13063-021-05701-y

Pickering, E. C., Hanley, B., Bell, P., Gath, J., Hanlon, P., Oldroyd, R., Stephens, R., Tweed, C. D. (2021). Formalising the induction of patient and public involvement contributors on trial oversight committees. Research Involvement and Engagement7(1), 42. https://doi.org/10.1186/s40900-021-00269-y

Papoulias, S. C., & Callard, F. (2021). ’A limpet on a ship’ : Spatio-temporal dynamics of patient and public involvement in research. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy24(3), 810‑818. https://doi.org/10.1111/hex.13215

Yu, Q. J., & Pun, J. (2021). Promoting Patient Engagement in Medical Informed Consent—A Qualitative Study of Chinese Doctors’ Communication Strategies. Health Communication, 1‑9. https://doi.org/10.1080/10410236.2021.1932287

Rouncefield-Swales, A., Harris, J., Carter, B., Bray, L., Bewley, T., & Martin, R. (2021). Children and young people’s contributions to public involvement and engagement activities in health-related research : A scoping review. PloS One16(6), e0252774. https://doi.org/10.1371/journal.pone.0252774

Sine, S., de Bruin, A., Getz, K. (2021). Patient Engagement Initiatives in Clinical Trials : Recent Trends and Implications. Therapeutic Innovation & Regulatory Science, 1‑7. https://doi.org/10.1007/s43441-021-00306-8

Schilling, I., Bleidorn, J., Ehrmann, U., Müller-Fries, E., Rathjen, K. I., & Saedler, K. (2021). Opportunities and challenges of active patient involvement in clinical research in Germany—From the perspectives of a patient representative, a clinical researcher and two staff members of research funding management. Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen163, 66‑75. https://doi.org/10.1016/j.zefq.2021.03.003

Zidaru, T., Morrow, E. M., & Stockley, R. (2021). Ensuring patient and public involvement in the transition to AI-assisted mental health care : A systematic scoping review and agenda for design justice. Health Expectations : An International Journal of Public Participation in Health Care and Health Policyhttps://doi.org/10.1111/hex.13299

Tremblay, D., Touati, N., Usher, S., Bilodeau, K., Pomey, M.-P., Lévesque, L. (2021). Patient participation in cancer network governance : A six-year case study. BMC Health Services Research21(1), 929. https://doi.org/10.1186/s12913-021-06834-1

Gross o., Gagnayre R. (2021).  » Diminuer les injustices épistémiques au moyen d’enseignement par et avec les patients : l’expérience pragmatiste de la faculté de médecine de Bobigny« . Revue Canadienne de bioéthique/Canadian Journal of Bioethics. Vol. 4, N°1, pp. 70-78.

Johnson, H., Davies, J. M., Leniz, J., Chukwusa, E., Markham, S., Sleeman, K. E. (2021). « Opportunities for public involvement in big data research in palliative and end-of-life care« . Palliative Medicine35(9), pp. 1724‑1726. 
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Grant, S., Armstrong, C., Khodyakov, D. (2021). Online Modified-Delphi : A Potential Method for Continuous Patient Engagement Across Stages of Clinical Practice Guideline Development. Journal of General Internal Medicine36(6), 1746‑1750. https://doi.org/10.1007/s11606-020-06514-6

Hamilton, C. B., Hoens, A. M., McKinnon, A. M., McQuitty, S., English, K., Hawke, L. D., Li, L. C. (2021). Shortening and validation of the Patient Engagement In Research Scale (PEIRS) for measuring meaningful patient and family caregiver engagement. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy24(3), 863‑879. https://doi.org/10.1111/hex.13227

Kearns, C., Eathorne, A., Semprini, A., Braithwaite, I., Beasley, R. (2021). « Public engagement with clinical research on social media; which visual medium works best ? A 5-year retrospective analysis ». Journal of Visual Communication in Medicine44(4), pp. 157‑165. https://doi.org/10.1080/17453054.2021.1950525

Kroese, K., Porter, K., Surridge, H., Tembo, D. (2021). « Challenges and solutions : Surveying researchers on what type of community engagement and involvement activities are feasible in low and middle income countries during the COVID-19 pandemic« . BMJ Open11(10), e052135. https://doi.org/10.1136/bmjopen-2021-052135

Jayes, M., Moulam, L., Meredith, S., Whittle, H., Lynch, Y., Goldbart, J., Judge, S., Webb, E., Meads, D., Hemsley, B., Murray, J. (2021). Making Public Involvement in Research More Inclusive of People With Complex Speech and Motor Disorders : The I-ASC Project. Qualitative Health Research31(7), 1260‑1274.
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Simon E., Arborio S., Halloy A., Hejeoka F. (2020). Les savoirs expérientiels en santé fondements épistémologiques et enjeux identitaires, Charenton le pont: FMSH

Hejoaka F., Halloy A., simon E., Arborio S. (2020). La fabrique des savoirs expérientiels : généalogie de la notion, jalons définitionnels et desccription en situation. in Les savoirs expérientiels en santé fondements épistémologiques et enjeux identitaires, Charenton le pont: FMSH, pp. 11-48.

Heloaka F., Halloy A., Simon E. (2020). Définir les savoirs expérientiels en santé: une revue de littérature en sciences humaines et sociales. In Les savoirs expérientiels en santé fondements épistémologiques et enjeux identitaires, Charenton le pont: FMSH, pp. 49-74.

Musso S. (2020). Professionnaliser l’ »expertise profane »? Retour sur un programme expérimental de formation de « médiateur de santé » entre 1999 et 2005 en France. In Les savoirs expérientiels en santé fondements épistémologiques et enjeux identitaires, Charenton le pont: FMSH, pp. 75-96.

Halabi I, Scholtes B, Voz B., Gillain N, Durieux N., Odero A., Baumann M., Ziegler O., Gagnayre R., Guillaume M., Bragard I., Pétré B. (2020). « « Patient participation” and related concepts: A scoping review on their dimensional composition ». Patient Education and Counseling. Vol. 103, Issue 1, , January 2020, pp. 5-14.

Lechopier N., Granier B. (2020).  » Patient expérience. Savoirs expérientiels et épistémologie de la formation médicale ». In, Éducation à la santé. Entre Savoir et Pouvoir, Paris : L’Harmattan.

Gardien E. (2020). « Pairjectivité : des savoirs expérientiels ni objectifs, ni subjectifs« .  Éducation et socialisation. Article en ligne.

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Implication des patients dans la santé numérique

Wale, J. L., Pomey, M.-P. (2023). Editorial : Where to from here : Advancing patient and public involvement in health technology assessment (HTA) following the COVID-19 pandemic. Frontiers in Medical Technology5, 1168278. https://doi.org/10.3389/fmedt.2023.1168278

Mbanza E.-C. (2022). « La participation des patients : défis et enjeux de la co-innovation en santé connectée ». Le partenariat de soin avec le patient : analyses : Université Côte d’azur, N°4, pp. 39-72

Flora L., Darmon D., Darmoni S., Gorsjean J., Simon C., Hassanaly P., Dufour J.-C. (2022). « Innover par l’aide à la décision dans la relation médecin-patient d’application mobiles : la recherche ApiAppS ». Le partenariat de soin avec le patient : analyses : Université Côte d’azur, N° 4, pp. 73-94.

Banerjee S., Alsop P., Jones L., Cardinal R. N. (2022). Patient and public involvement to build trust in artificial intelligence : A framework, tools, and case studiesPatterns (New York, N.Y.)3(6), 100506. 

Pinho-Gomes A.-C., Stone J., Shaw T., Heath A., Cowl J., Norburn L., Thomas V., Scott S. (2022). Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development : A scoping review. International Journal of Technology Assessment in Health Care38(1), e46. 

Adamson P. C. (2022). My Patient Portal, Annals of Internal Medicine, https://doi.org/10.7326/M22-0544

Harrington K., Craven M.-P. , Wilson M. L. , Landowska A. (2022). «  Perceptions of Cognitive Training Games and Assessment Technologies for Dementia: Acceptability Study With Patient and Public Involvement Workshops ». JMIR Serious Games 2022;10(2):e32489, doi: 10.2196/32489

Osmanlliu E., Paquette J., Grenier AD., J., Rodriguez Duarte M.A., Bédard S., De Marcellis-Warin N., Zhegu M., Régis, C., Bouthillier M.-E., Lewis P. et al.(2022) Fantastic perspectives and where to find them: involving patients and citizens in digital health researchRes Involv Engagem 8, 37 . https://doi.org/10.1186/s40900-022-00374-6

Osmanlliu E., Paquette J., Rodriguez Duarte M.A., Bédard S., De Marcellis-Warin N., Zhegu M., Régis, C., Bouthillier M.-E., Grenier A.-D., Lewis P. et al. (2022). Public Perspectives on Exposure Notification Apps: A Patient and
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Bouabida K., Malas K., Talbot A., Desrosiers ME., Lavoie F., Lebouché B., Taghizadeh N., Normandin L., Vialaron C., Fortin O., Lessard D., Pomey M-P. (2022) Healthcare professionals’ perspectives on the use of remote patient-monitoring platforms during the COVID-19 pandemic: a cross-sectional study. publication à J. Pers. Med. https://www.mdpi.com/2075-4426/12/4/529.

De Groot K., Douma J., Paans W., Francke, A. L. (2022). Patient participation in electronic nursing documentation : An interview study among home-care patientsHealth Expectations : An International Journal of Public Participation in Health Care and Health Policyhttps://doi.org/10.1111/hex.13492

Khanijahani A., Akinci N., Quitiquit E. (2022). A Systematic Review of the Role of Telemedicine in Blood Pressure Control : Focus on Patient Engagement. Current Hypertension Reports, 1‑12. https://doi.org/10.1007/s11906-022-01186-5

Fritz B. A., Ramsey B., Taylor D., Shoup J. P., Schmidt J. M., Guinn M., Maddox T. M. (2022). « Association of Race and Neighborhood Disadvantage with Patient Engagement in a Home-Based COVID-19 Remote Monitoring Program« . Journal of General Internal Medicine37(4), pp. 838‑846. 
https://doi.org/10.1007/s11606-021-07207-4

Idris M. Y., Korin M., Araya F., Chowdhury S., Medina P., Cruz L., Hawkins T.-R., Brown H., Claudio L. (2022). « Including the Public in Public eHealth : The Need for Community Participation in the Development of State-Sponsored COVID-19-Related Mobile Apps« . JMIR MHealth and UHealth10(3), e30872. https://doi.org/10.2196/30872

Lee C. (2022). « Leveraging App Technologies to Boost Patient Engagement ». Compendium of Continuing Education in Dentistry (Jamesburg, N.J. : 1995)43(3), pp. 124‑125.

Smithson M., McLeod M. C., Theiss L., Shao C., Kennedy G., Hollis R., Chu D. I., Hardiman K. M. (2022). « Ileostomy Patients Using Patient Engagement Technology Experience Decreased Length of Stay« . Journal of Gastrointestinal Surgery : Official Journal of the Society for Surgery of the Alimentary Tract26(3), pp. 635‑642. https://doi.org/10.1007/s11605-021-05158-z

Diehl T. M., Barrett J. R., Van Doorn R., Cherney Stafford L. M., Hanlon B. M., Weber S. M., Voils C. I., Abbott D. E. (2022). « Promoting patient engagement during care transitions after surgery using mobile technology : Lessons learned from the MobiMD pilot study« . Surgeryhttps://doi.org/10.1016/j.surg.2021.12.018

Luderer H., Chiodo L., Wilson A., Brezing C., Martinez S., Xiong X., Gerwien R., Imbert B., Deeg M., Maricich Y., Campbell A. (2022). « Patient Engagement With a Game-Based Digital Therapeutic for the Treatment of Opioid Use Disorder : Protocol for a Randomized Controlled Open-Label, Decentralized Trial« . JMIR Research Protocols11(1), e32759. https://doi.org/10.2196/32759

Knowles S. E., Allen D., Donnelly A., Flynn J., Gallacher K., Lewis A., McCorkle G., Mistry M., Walkington P., Brunton L. (2022). « Participatory codesign of patient involvement in a Learning Health System : How can data-driven care be patient-driven care? » Health Expectations : An International Journal of Public Participation in Health Care and Health Policy25(1), pp.103‑115. https://doi.org/10.1111/hex.13345

Wu, D., An, J., Yu, P., Lin, H., Ma, L., Duan, H., Deng, N. (2021). Patterns for Patient Engagement with the Hypertension Management and Effects of Electronic Health Care Provider Follow-up on These Patterns : Cluster Analysis. Journal of Medical Internet Research23(9), e25630. https://doi.org/10.2196/25630

Aalam A., Osman K., Martini A. (2021). « Telehealth adoption and patient engagement » in A Practical Guide to Emergency Telehealth, Neal Sikka edition, Oxford, pp. 39-50

Bidonde J., Vanstone M., Schwartz L., Abelson J. (2021).  » An institutional ethnographic analysis of public and patient engagement activities at a national health technology assessment agency« . International Journal of Technology Assessment in Health Care, 37, e37, pp.17. https://doi.org/10.1017/S0266462321000088

Lampa E., Sonnentheil B., Tökés A., Warner, G. (2021). What has the COVID-19 pandemic taught us about conducting patient and public involvement remotely ? Insights from a series of digital meeting observationsResearch Involvement and Engagement7(1), 73. 

Smithson M., McLeod M. C., Theiss L., Shao C., Kennedy G., Hollis R., Chu D. I., Hardiman K. M. (2021). Ileostomy Patients Using Patient Engagement Technology Experience Decreased Length of Stay. Journal of Gastrointestinal Surgery : Official Journal of the Society for Surgery of the Alimentary Tracthttps://doi.org/10.1007/s11605-021-05158-z

Weber J.-C. (2018). Expérience, expertise, expérimentation. in Du malade passif au patient expert! Paris: édition de santé, pp. 173-185