Cette espace met à disposition une bibliographie par catégories :
- En premier lieu, vous trouverez les publications du CI3P sur le partenariat de soin avec le patient
- en second lieu apparait la bibliographie publiée sur le partenariat de soin en partenariat avec le patient selon le modèle de Montréal
- En troisième lieu vous est proposé une bibliographie conséquente sur l’implication des patients dont est issu le partenariat de soin avec le patient tels que développés par le Centre d’Innovation du partenariat avec les patients et le Public et le Centre d’Innovation du Partenariat avec les Patients et le Public.
Bibliographie produite par le CI3P et ses membres
Burel L. (2024). Le tandem partenariat médecin généraliste-patient partenaire : une expérience transformative. Thèse d’exercice de médecine, Faculté de médecine de Nice, Université Côte d’Azur.
Flora L. (2024). « 20 ans de démocratie sanitaire : état des lieux et impact de la pandémie ». Revue de la société française d’histoire des hôpitaux, pp. 41-46
Rubinstein S. (2024). « La place de l’usager en psychiatrie : l’exemple de l’hôpital Sainte-Marie de Nice (1860-1986) ». Revue de la société française d’histoire des hôpitaux, pp. 54-64.
Flora L., Grenier C., Ponsignon F.(dir.). (2024). « Experience in Health Innovation: Ephemeral Fashions or New Paradigm? – Crossed perspectives in the health ecosystem« , London :Editions Wiley.
Ravot M.,Flora L . (2024) A Brief History of Changes {in) the Medico-Social Sector over Recent Decades. Interview with Marielle Ravot in . « {Experience in Health Innovation: Ephemeral Fashions or New Paradigm? – Crossed perspectives in the health ecosystem} », London :Editions Wiley, pp 163-182.
Flora L, Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2024). Help with Prescribing Mobile Health Applications A Partnership Design in the Medico-Social Sector over Recent Decades. Interview with Marielle Ravot in . « {Experience in Health Innovation: Ephemeral Fashions or New Paradigm? – Crossed perspectives in the health ecosystem} », London :Editions Wiley, pp 227-237.
Flora L. (2023). « La question du patient et de ses données numériques dans un environnement de la santé en cours de digitalisation« . Le journal de la médecine légale, 2023/3, N° 3, pp 16-21.
Flora L., Darmon D., Darmoni S., Gorsjean J., Simon C., Hassanaly P., Dufour J.-C. (2023). « L’aide à la prescription d’application mobiles de santé : Une innovation dans et par la relation médecin patient », dans L’expérience dans l’Innovation en santé : modes éphémères ou nouveau paradigme ? – Regards croisés dans l’écosystème de la santé ». Londres : Iste.
Flora L., Casta C., Munck S., Fauré S., Gasperini F., Rubinstein S., Darmon D., Ravot M., Bouchez T. (2023). Attribuer un prix de thèse de médecine générale en partenariat avec les patients partenaires : une expérience démarche partenariale. Le partenariat de soin avec le patient: analyses : Université Côte d’azur, N°. 6 pp. 67-97.
Flora L. (2023). « Savoirs expérientiels en santé et expertises patients ». dans Troubles dans le monde du bénévolat, (Dir. Ferrand-Bechmann D.), Paris : Chroniques sociales, pp.60-67.
Lunel A., Flora L. (2023) » Avant propos. » Le Journal de droit de la santé et de l’assurance maladie, N° 36, p. 9.
Flora L. (2023). » La place des patients au 21ème siècle : l’exemple de l’implication des patients partenaires avec le CI3P dans l’environnement numérique. » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 10-18..
Rubinstein S. (2023). » L’e-santé mentale : miroir aux alouettes ou futur des soins psychiatriques ? » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 25-33. ( Ecouter l’émission sur la santé mentale et le numérique au sein duquel cet article et mentionner pour sa pertinence en cliquant ici)
Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2022). « Innover par l’aide à la décision dans la relation médecin-patient d’application mobiles : la recherche ApiAppS ». Le partenariat de soin avec le patient : analyses, Université Côte d’azur, N° 4, pp. 73-94.
Flora L., Koenig M.(2021). « La question du rétablissement et du patient partenaire », in Manuel de la psychiatrie » 4ème édition. (coord. Luc Mallet, Julien Guelfi, Frédéric Rouillon), Paris : Edition Elsevier Masson, pp. 779-782.
Bonardi C., Karcher B., Collazzo G., Barbaroux A., Balez E., Faure S., Halloy A., Flora L. (2021). « Partenariat avec les patients : les leçons d’une pandémie », Neuropsychologie, 13 (2), pp. 116-120.
Pomey M.-P., Clavel N., Normandin L. Del Grande C. Ghadiri D. P., Fernandez-McAuley I., Boivin A., Flora L., Janvier A., Karazivan P., Pelletier J.-F., Fernandez N., Paquette J. Dumez V. (2021) « Assessing and promoting partnership between patients and healthcare professionals : co-construction of the CADICEE tool for patients and their relatives » Health Expectations. Vol. 24, Issue 4, pp.1230-1241
Barchewitz M., Charels M., Flora L., Gueroult-Accolas, L., Honoré S., Allenet .B, Hache G.(2021). »Connaissances et représentations sur le partenariat patient : enquête auprès des pharmaciens. » Le Pharmacien Hospitalier et Clinicien. Volume 56, Issue 4, pp. 345-354
Pétré B., Louis G., Voz B., Berkesse A., Flora L. (2020). »Patient partenaire : de la pratique à la recherche. » Santé publique, Vol. 32, N° 4, Juillet-août, pp. 371-374
Faure S., Halloy A., Karcher B., Flora L., Colazzo G., Barbaroux A., Balez E., Bonardi C. (2020). « Polyphonies sur les enjeux du partenariat patient au temps du COVID-19, Revue de Neuropsychologie, Neurosciences Cognitives et Cliniques, V. 12, N° 2, Avril-mai-juin 2020, pp. 232-237.
Carayol-Ravot M. (2020). Covid-19 : crise sanitaire, confinement et maladies chroniques. Impact du confinement sur l’expérience patient et le partenariat entre patients et professionnels de santé. Mémoire de Master de santé publique. Université Aix Marseille.
Flora L., Darmon D. Benattar J.-M. (Coord.).(2019), Contribution à l’état de l’art : Retour sur le 1er colloque International en France sur le partenariat de soin avec le patient à partir des communications et écoévaluations. Centre d’Innovation du Partenariat avec les Patients et le Public (CI3P), Université côte d’azur.
Bibliographie sur le partenariat de soin avec les patients dans la recherche
Burel L. (2024). Le tandem de partenariat médecin généraliste-patient partenaire : une expérience transformatrice. Thèse d’exercice de médecine. Université côte d’azur.
Loughhead, M., Hodges, E., McIntyre, H., Procter, N., Barbara, A., Bickley, B., Martinez, L., Albrecht, L., Huber, L. (2024). Pathways for Strengthening Lived Experience Leadership for Transformative Systems Change : Reflections on Research and Collective Change Strategies. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(5), e70048. https://doi.org/10.1111/hex.70048
McPherson, A., Paudyal, V., Lowrie, R., Heath, H., Moir, J., Allen, N., Barnes, N., Hill, H., Araf, A., Lombard, C., Ross, S., Tearne, S., Jagpal, P., Cheed, V., Akhtar, S., Provan, G., Williamson, A., Mair, F. S. (2024). Patient and Public Involvement in Research Evaluating Integrated Care for People Experiencing Homelessness : Findings From the PHOENIx Community Pharmacy Pilot Randomised-Controlled Trial. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(5), e70070. https://doi.org/10.1111/hex.70070
Richards DP, Poirier S, Mohabir V, Proulx L, Robins S, Smith J. Reflections on patient engagement by patient partners: how it can go wrong. Res Involv Engagem. 2023 Jun 12;9(1):41. doi: 10.1186/s40900-023-00454-1. PMID: 37308922; PMCID: PMC10262483.
Dumez, V., L’Espérance, A. (2024). Beyond experiential knowledge: a classification of patient knowledge. Soc Theory Health (2024). https://doi.org/10.1057/s41285-024-00208-3
Côté, C.I. (2024). A critical and systematic literature review of epistemic justice applied to healthcare: recommendations for a patient partnership approach. Med Health Care and Philos. https://doi.org/10.1007/s11019-024-10210-1
Montiel C, Jackson M, Clovin T, Bogdanova E, Côté C, Descoteaux A, Wong C, Dumez V, Pomey MP, Hanna D. (2024). Patient Learning Pathway: Identifying Patient Competencies in Teledermatology for Effective Management of Dermatological Conditions. J Cutan Med Surg. 2024 Mar 19:12034754241238716.
Dhamanaskar R, Tripp L, Vanstone M, Canfield C, Levasseur MA, Abelson J. (2024). Patient partner perspectives on compensation: Insights from the Canadian Patient Partner Survey. Health Expect. Jan 15;27(1):e13971.doi: 10.1111/hex.13971.
Scholz B., Kirk L., Warner T., O’Brien L. , Kecskes Z., Mitchell I. (2024) From a Single Voice to Diversity: Reframing ‘Representation’ in Patient Engagement. Qualitative Health Research, doi/pdf/10.1177/10497323231221674
Pomey, M., Pelaez, S., Le Roux, E., Demers‐Payette, O., Sirois, M., Lochhead, L., Ganache, I., Normandin, L., L’Espérance, A., De Guise, M. (2024). How to mobilise users’ experiential knowledge in the evaluation of advanced technologies and practices in Quebec? The example of the permanent users’ and relatives’ panel. Health Expectations, 27(1), e13964. https://doi.org/10.1111/hex.13964
Blackburn, S., Clinch, M., de Wit, M., Moser, A., Primdahl, J., van Vliet, E., Walker, C., Stevenson, F. (2023). Series : Public engagement with research. Part 1 : The fundamentals of public engagement with research. The European Journal of General Practice, 29(1), 2232111. https://doi.org/10.1080/13814788.2023.2232111
Swaithes, L., Campbell, L., Anthierens, S., Skrybant, M., Schiphof, D., French, H., de Wit, M., Blackburn, S., Dziedzic, K. (2023). Series : Public engagement with research. Part 4 : Maximising the benefits of involving the public in research implementation. The European Journal of General Practice, 29(1), 2243037. https://doi.org/10.1080/13814788.2023.2243037
Sergent L. (2023). Patient pantin ou partenaire : une étude de la participation à l’hôpital pendant la crise Covid. Connexions, n° 118, pp.81-93
Zaratin, P., Khan, U., Graffigna, G. (2023). Comment on « Reflections on patient engagement by patient partners : How it can go wrong ». Research Involvement and Engagement, 9(1), 122. https://doi.org/10.1186/s40900-023-00534-2
Christiansen, M. G., Pappot, H., Hamilton, C., Lund-Jacobsen, T., Kristensen, A. W., Nordentoft, S., Høeg, B. L., Bidstrup, P., Nielsen, I. H., Ulstrup, J., Trip, A. K., Jarden, M., Piil, K. (2023). Patient Engagement in Research Scale (PEIRS-22) : Danish translation, applicability, and user experiences. Research Involvement and Engagement, 9(1), 115. https://doi.org/10.1186/s40900-023-00526-2
Harman, N. L., McGiveron, K., Tudur Smith, C., Williamson, P. R., Barrington, H. (2023). Opening up ideas : An advent calendar for patient and public engagement in clinical trials research. Research Involvement and Engagement, 9(1), 118. https://doi.org/10.1186/s40900-023-00530-6
Nohová, I., Andrews, J., Votan, B., Miller, A., Sehouli, J., Berger, R. (2023). Patient involvement in research within the Gynecological Cancer InterGroup : A call to action for a systematic approach : Results from a survey. Health Science Reports, 6(12), e1735. https://doi.org/10.1002/hsr2.1735
Røssvoll, T. B., Rosenvinge, J. H., Liabo, K., Hanssen, T. A., Pettersen, G. (2023). Patient and public involvement in health research from researchers’ perspective. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(6), 2525‑2531. https://doi.org/10.1111/hex.13853
Vanderhout, S., Richards, D. P., Butcher, N., Courtney, K., Nicholls, S. G., Fergusson, D. A., Potter, B. K., Bhalla, M., Nevins, P., Fox, G., Ly, V., Taljaard, M., Macarthur, C. (2023). Prevalence of patient partner authorship and acknowledgment in child health research publications : An umbrella review. Journal of Clinical Epidemiology, 164, 35‑44. https://doi.org/10.1016/j.jclinepi.2023.10.012
Chudyk A. M., Stoddard R., McCleary N., Duhamel T. A., Shimmin C., Hickes S., Schultz A. pancanadian conselors group patients and public (2023). Exploring patient and caregiver perceptions of the meaning of the patient partner role: a qualitative study Research Involvement Engagement 9 , 106 (2023). https://doi.org/10.1186/s40900-023-00511-9
Fox, G., Lalu, M. M., Sabloff, T., Nicholls, S. G., Smith, M., Stacey, D., Almoli, F., Fergusson, D. A. (2023). Recognizing patient partner contributions to health research : A systematic review of reported practices. Research Involvement and Engagement, 9(1), 80.
https://doi.org/10.1186/s40900-023-00488-5
Pogorzelski D., Wells J. L.J., Marvel D.; Palmer J., Mullins C. D., Medeiros M., Gallant J. L., Spicer E., Bergin P., Gitajn, I. L., Mullin D. S., Gaski G., Hymes R., Bzovsky S., Slobogean G. P., Sprague S. and the PREP-IT Investigators. (2023). Pragmatic design and inclusion of patient–partner representatives improves participant experience in clinical research.
Pogorzelski D., Wells J. L.J., Marvel D.; Palmer J., Mullins C. D., Medeiros M., Gallant J. L., Spicer E., Bergin P., Gitajn, I. L., Mullin D. S., Gaski G., Hymes R., Bzovsky S., Slobogean G. P., Sprague S. and the PREP-IT Investigators. (2023). Pragmatic design and inclusion of patient–partner representatives improves participant experience in clinical research.
Jackson M., Clovin T., Montiel C., Bogdanova E., Côté C., Descoteaux A., Wong C., Dumez V., Pomey M.-P (2023). Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept. journal Preproof: https://doi.org/10.1016/j.pecinn.2023.100223
Nielssen, I., Ahmed, S., Zelinsky, S., Dompe, B., Fairie, P., Santana, M. J. (2023). Co-building a training programme to facilitate patient, family and community partnership on research grants : A patient-oriented research project. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. https://doi.org/10.1111/hex.13763
Riches, L., Ridgway, L., Edwards, L. (2023). Co-learning commentary : A patient partner perspective in mental health care research. Research Involvement and Engagement, 9(1), 24. https://doi.org/10.1186/s40900-023-00435-4
Yous, M.-L., Ganann, R., Ploeg, J., Markle-Reid, M., Northwood, M., Fisher, K., Valaitis, R., Chambers, T., Montelpare, W., Légaré, F., Beleno, R., Gaudet, G., Giacometti, L., Levely, D., Lindsay, C., Morrison, A., Tang, F. (2023). Older adults’ experiences and perceived impacts of the Aging, Community and Health Research Unit-Community Partnership Program (ACHRU-CPP) for diabetes self-management in Canada : A qualitative descriptive study. BMJ Open, 13(4), e068694. https://doi.org/10.1136/bmjopen-2022-068694
Rubin, M. R. (2023). The Role of the Patient Partnership in Designing Research on Neuropsychiatric Issues in Hypoparathyroidism. Journal of the Endocrine Society, 7(7), bvad068. https://doi.org/10.1210/jendso/bvad068
Boivin A., Flora L., Dumez V., L’Espérance A., Berkesse A., Gauvin F.-P. (2017). « Transformer la santé en partenariat avec les patients et le public : historique, approche et impacts du “modèle de Montréal”», In « La participation des patients » « vol. 2017, Paris : Editions Dalloz, pp. 11-24.
Ghadiri D. P. S., Flora L., Pomey M.-P. (2017). « Le virage patient partenaire de soins au Québec. Reconfiguration de l’exercice du pouvoir médical et lutte pour de nouvelles subjectivités« . In « La participation des patients« , Paris : Editions Dalloz, pp. 25-36.
Boivin, A., F.-P. Gauvin, P. Lehoux, I. Marcoux, Néron A, G. Baril and M. Flon (2017). Que doit-on savoir sur l’aide médicale à mourir? Comprendre les besoins d’information et les enjeux du partenariat avec les patients, les proches aidants et les professionnels de la santé, Centre d’excellence sur le partenariat avec les patients et le public: 46.
Boivin, A., V. Dumez, C. Loignon, M.-P. Gagnon, P. L. Bush, I. Ganache, F. Laverdière, M. Fournier, M. Menear, J. Légaré and J. Caron-Malenfant (2015). Soutenir la recherche en partenariat avec les patients et le public: stratégie d’engagement pour l’Unité de SOUTIEN-SRAP Quebec: 22.
Flora L. (2014). « Des patients réflexifs, au potentiel de transformation des systèmes de santé. » dans l’ouvrage Les métiers de la santé face aux industries pharmaceutique, agroalimentaires et chimiques, (Dir. Scheffer P.), Paris : L’harmattan.
Bibliographie sur l’implication des patients dans et sur la recherche
Voz, B., Pétré, B., Orianne, J.-F. (2024). Improving the hospital or immunizing its organization ? Patient and public involvement at the service of quality. Frontiers in Sociology, 9, 1444955. https://doi.org/10.3389/fsoc.2024.1444955
Bauquier, C., Pannard, M., Andrin, A., Biaudet, J., Parnalland, S., Dabakuyo, S., Guillemin, F., Paret, G., Jacob, G., Préau, M. (2024). Fostering patients’ participation in oncology research by developing psychological empowerment and a sense of community. Journal of Epidemiology and Population Health, 72(6), 202781. https://doi.org/10.1016/j.jeph.2024.202781
Elonge, E., Cooke, C. E., Lee, M., Tang, V., Haynes, J.-A., Wang, S., Genuit, A., Isetts, B., Pellegrin, K., Mikami, J., Price, D., Brandt, N. (2024). Co-designing Medication Optimization Patient-Centered Outcomes Research With Older People and Caregivers as Research Partners. The Senior Care Pharmacist, 39(11), 425‑431. https://doi.org/10.4140/TCP.n.2024.425
Gaber, S. N., Guerrero, M., Rosenberg, L. (2024). Participatory research approaches in long-term care facilities for older adults : A meta-ethnography. International Journal of Qualitative Studies on Health and Well-Being, 19(1), 2431449. https://doi.org/10.1080/17482631.2024.2431449
Jackson-Perry, D., Cart-Richter, E., Haerry, D., Ahmeti, L., Bieri, A., Calmy, A., Ballif, M., Pasin, C., Notter, J., Amstutz, A. (2024). Patient and public involvement in HIV research : A mapping review and development of an online evidence map. Journal of the International AIDS Society, 27(11), e26385. https://doi.org/10.1002/jia2.26385
Johnson, E. E., Uteh, C. O., Belilios, E., Pearson, F. (2024). Reporting of Patient and Public Involvement in Technology Appraisal and Assessment Reports : A Rapid Scoping Review. The Patient. https://doi.org/10.1007/s40271-024-00721-7
Owrid, O., Richardson, L., Allan, S., Grant, A., Gogan, S., Hamilton, N., Yanga, F., Sirey, N., Syrett, S., Garety, P., Craig, T., Clancy, M., Pinfold, V., Miller, L., Ward, T., Edwards, C. (2024). « There’s no us vs. Them, it’s just us » : A creative approach to centring lived experience within the AVATAR2 trial. BMC Psychiatry, 24(1), 807. https://doi.org/10.1186/s12888-024-06268-z
Pyne, E., Joyce, R., Dwyer, C. P., Hynes, S. M. (2024). Evaluating public and patient involvement in interventional research-A newly developed checklist (EPPIIC). PloS One, 19(11), e0301314. https://doi.org/10.1371/journal.pone.0301314
Wallcook, S., Dohrn, I.-M., Dahlkvist, U., Domeij, Y., Green, K., Isaksson, G., Goliath, I. (2024). Outputs from a model of co-research with older care-experienced people in Sweden to advance eldercare services. Research Involvement and Engagement, 10(1), 121. https://doi.org/10.1186/s40900-024-00650-7
Ferguson, C., William, S., Allida, S. M., Fulcher, J., Jenkins, A. J., Lattimore, J.-D., Loch, L.-J., Keech, A. (2024). A co-design case study of the development of heart failure e-TIPS to support self-management. JMIR Cardio. https://doi.org/10.2196/57328
Fischer, A., Aguayo, G., Pinker, I., Oustric, P., Lachaise, T., Wilmes, P., Larché, J., Benoy, C., Fagherazzi, G. (2024). Co-design of a voice-based app to monitor long COVID symptoms with its end-users : A mixed-method study. Digital Health, 10, 20552076241272671. https://doi.org/10.1177/20552076241272671
Quilter, E. E. V., Downes, S., Deighan, M. T., Stuart, L., Charles, R., Tittensor, P., Junges, L., Kissack, P., Qureshi, Y., Kamaraj, A. K., Brigden, A. (2024). A Digital Intervention for Capturing the Real-Time Health Data Needed for Epilepsy Seizure Forecasting : Protocol for a Formative Co-Design and Usability Study (The ATMOSPHERE Study). JMIR Research Protocols, 13, e60129. https://doi.org/10.2196/60129
Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2024). Help with Prescribing Mobile Health Applications A Partnership Design. in « Experience in Health Innovation : Ephemeral Fashions or New Paradigm ? – Crossed perspectives in the health ecosystem« , London :Editions Wiley, pp 227-237.
da Cruz Peniche, P., de Morais Faria, C. D. C., Hall, P., Fingleton, C., McPhillips, L., Gaetz, R., Roche, A., McCann, L., O’Beaglaoich, P., Murphy, D., Hickey, J., Lennon, O. (2024). A scoping review of patient and public involvement in empirical stroke research. International Journal of Stroke : Official Journal of the International Stroke Society, 17474930241262638. https://doi.org/10.1177/17474930241262638
Peters, S., Guccione, L., Francis, J., Best, S., Tavender, E., Curran, J., Davies, K., Rowe, S., Palmer, V. J., Klaic, M. (2024). Evaluation of research co-design in health : A systematic overview of reviews and development of a framework. Implementation Science : IS, 19(1), 63. https://doi.org/10.1186/s13012-024-01394-4
Schilling, I., Gerhardus, A. (2024). Is this really Empowerment ? Enhancing our understanding of empowerment in patient and public involvement within clinical research. BMC Medical Research Methodology, 24(1), 205.
https://doi.org/10.1186/s12874-024-02323-1
Vervoort, J. P. M., Konijn, W. S., Jansen, D. E. M. C., Boersma, C., de Zeeuw, J., Ho-Dac-Pannekeet, M. M., Gansevoort, R. T., Messchendorp, A. L., Sanders, J. S. F., de Wildt-Liesveld, R. (2024). Patient engagement as a collaborative process in a large Dutch COVID-19 vaccination study (RECOVAC)—Insight into the contribution of patient engagement and learnings for the future. Research Involvement and Engagement, 10(1), 96. https://doi.org/10.1186/s40900-024-00622-x
Man, C., Liu, T., Yan, S., Xie, Q., Liu, H. (2024). Research status and hotspots of patient engagement : A bibliometric analysis. Patient Education and Counseling, 125, 108306. https://doi.org/10.1016/j.pec.2024.108306
Martin, G., Carman, K. (2024). Resources to facilitate patient engagement in research. BMJ (Clinical Research Ed.), 386, q1806. https://doi.org/10.1136/bmj.q1806
Payne, S. A., Sumerfield, M., Hughes, S. (2024). Opportunities and Challenges in Patient and Public Involvement and Engagement in Palliative Care Research. Journal of Palliative Medicine. https://doi.org/10.1089/jpm.2024.0276
Rabi, S., Patton, M., Santana, M.-J., Tang, K. L. (2024). Patient engagement in the development and implementation of navigation services : A scoping review protocol. BMJ Open, 14(8), e082666. https://doi.org/10.1136/bmjopen-2023-082666
Carroll, P., Smith, É., Dervan, A., McCarthy, C., Woods, I., Beirne, C., Harte, G., O’Flynn, D., Quinlan, J., O’Brien, F. J., Flood, M., Moriarty, F. (2024). The Development of Principles for Patient and Public Involvement (PPI) in Preclinical Spinal Cord Research : A Modified Delphi Study. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(4), e14130. https://doi.org/10.1111/hex.14130
Robert, G., Donetto, S., Masterson, D., Kjellström, S. (2024). Applying models of co-production in the context of health and wellbeing. A narrative review to guide future practice. International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care, mzae077. https://doi.org/10.1093/intqhc/mzae077
Padden-Modi, M., Rush, H., Abdel-Aty, H., Matheson, D., Millman, R., Williams, P., Tombal, B., James, N. (2024). How Can Participant Experience of Quality-of-Life Research Be Improved in Cancer Research : Views of the Patient and Public Involvement Representatives from the STAMPEDE2 Prostate Cancer Trial. European Urology Oncology, S2588-9311(24)00185-8. https://doi.org/10.1016/j.euo.2024.07.012
Martin G., Carman K. (2024). Resources to facilitate patient engagement in research. BMJ 2024;386:q1806
Griffiths, S., Robertson, M., Kaviraj, C., Davies, F., McDevitt, M., Richards, A., Russell, M. (2024). Reflections on co-production : Developing a dementia research funding application with a diverse lived experience group. Dementia (London, England), 23(5), 709‑723.
Keij, S. M., Lie, H. C., Laidsaar-Powell, R., Kunneman, M., de Boer, J. E., Moaddine, S., Stiggelbout, A. M., & Pieterse, A. H. (2024). Corrigendum to « Patient-related characteristics considered to affect patient involvement in shared decision making about treatment : A scoping review of the qualitative literature » Patient Education and Counseling 111 (2023) 107677. Patient Education and Counseling, 124, 108257.
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