patient cochercheur

Cette espace met à disposition une bibliographie par catégories :

• En premier lieu, vous trouverez les publications du CI3P sur le partenariat de soin avec le patient
• en second lieu apparait la bibliographie publiée sur le partenariat de soin en partenariat avec le patient selon le modèle de Montréal
• En troisième lieu vous est proposé une bibliographie conséquente sur l’implication des patients dont est issu le partenariat de soin avec le patient tels que développés par le Centre d’Innovation du partenariat avec les patients et le Public et le Centre d’Innovation du Partenariat avec les Patients et le Public.

Bibliographie produite par le CI3P et ses membres

Flora L. (2024). « 20 ans de démocratie sanitaire : état des lieux et impact de la pandémie ». Revue de la société française d’histoire des hôpitaux, pp. 41-46

Rubinstein S. (2024). « La place de l’usager en psychiatrie : l’exemple de l’hôpital Sainte-Marie de Nice (1860-1986) ».  Revue de la société française d’histoire des hôpitaux, pp. 54-64.

Flora L., Grenier C., Ponsignon F.(dir.). (2024). « Experience in Health Innovation: Ephemeral Fashions or New Paradigm? – Crossed perspectives in the health ecosystem« , London :Editions Wiley.

Ravot M.,Flora L . (2024) A Brief History of Changes {in) the Medico-Social Sector over Recent Decades. Interview with Marielle Ravot in . « {Experience in Health Innovation: Ephemeral Fashions or New Paradigm? – Crossed perspectives in the health ecosystem} », London :Editions Wiley, pp 163-182.

Flora L, Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2024). Help with Prescribing Mobile Health Applications A Partnership Design in the Medico-Social Sector over Recent Decades. Interview with Marielle Ravot in . « {Experience in Health Innovation: Ephemeral Fashions or New Paradigm? – Crossed perspectives in the health ecosystem} », London :Editions Wiley, pp 227-237.

 Flora L. (2023). « La question du patient et de ses données numériques dans un environnement de la santé en cours de digitalisation« . Le journal de la médecine légale, 2023/3, N° 3, pp 16-21.

 Flora L., Darmon D., Darmoni S., Gorsjean J., Simon C., Hassanaly P., Dufour J.-C. (2023). « L’aide à la prescription d’application mobiles de santé : Une innovation dans et par la relation médecin patient », dans L’expérience dans l’Innovation en santé : modes éphémères ou nouveau paradigme ? – Regards croisés dans l’écosystème de la santé ». Londres : Iste.

Flora L., Casta C., Munck S., Fauré S., Gasperini F., Rubinstein S., Darmon D., Ravot M., Bouchez T. (2023). Attribuer un prix de thèse de médecine générale en partenariat avec les patients partenaires : une expérience démarche partenariale. Le partenariat de soin avec le patient: analyses : Université Côte d’azur, N°. 6 pp. 67-97.

Flora L. (2023). « Savoirs expérientiels en santé et expertises patients ». dans Troubles dans le monde du bénévolat, (Dir. Ferrand-Bechmann D.), Paris : Chroniques sociales, pp.60-67.

 Lunel A., Flora L. (2023) » Avant propos. » Le Journal de droit de la santé et de l’assurance maladie, N° 36, p. 9.

Flora L. (2023).  » La place des patients au 21ème siècle : l’exemple de l’implication des patients partenaires avec le CI3P dans l’environnement numérique. » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 10-18..

Rubinstein S. (2023).  » L’e-santé mentale : miroir aux alouettes ou futur des soins psychiatriques ? » Le Journal de droit de la santé et de l’assurance maladie, N°36, pp. 25-33. ( Ecouter l’émission sur la santé mentale et le numérique au sein duquel cet article et mentionner pour sa pertinence en cliquant ici)

Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2022). « Innover par l’aide à la décision dans la relation médecin-patient d’application mobiles : la recherche ApiAppS ». Le partenariat de soin avec le patient : analyses, Université Côte d’azur, N° 4, pp. 73-94.

Flora L., Koenig M.(2021). « La question du rétablissement et du patient partenaire », in Manuel de la psychiatrie » 4ème édition. (coord. Luc Mallet, Julien Guelfi, Frédéric Rouillon), Paris : Edition Elsevier Masson, pp. 779-782.

Bonardi C., Karcher B., Collazzo G., Barbaroux A., Balez E., Faure S., Halloy A., Flora L. (2021). « Partenariat avec les patients : les leçons d’une pandémie », Neuropsychologie, 13 (2), pp. 116-120.

Pomey M.-P., Clavel N., Normandin L. Del Grande C. Ghadiri D. P., Fernandez-McAuley I., Boivin A., Flora L., Janvier A., Karazivan P., Pelletier J.-F., Fernandez N., Paquette J. Dumez V. (2021) « Assessing and promoting partnership between patients and healthcare professionals : co-construction of the CADICEE tool for patients and their relatives » Health Expectations. Vol. 24, Issue 4, pp.1230-1241

Barchewitz M., Charels M., Flora L., Gueroult-Accolas, L., Honoré S., Allenet .B, Hache G.(2021). »Connaissances et représentations sur le partenariat patient : enquête auprès des pharmaciens. » Le Pharmacien Hospitalier et Clinicien. Volume 56, Issue 4, pp. 345-354

Pétré B., Louis G., Voz B., Berkesse A., Flora L. (2020). »Patient partenaire : de la pratique à la recherche. » Santé publique, Vol. 32, N° 4, Juillet-août, pp. 371-374

Faure S., Halloy A., Karcher B., Flora L., Colazzo G., Barbaroux A., Balez E., Bonardi C. (2020). « Polyphonies sur les enjeux du partenariat patient au temps du COVID-19, Revue de Neuropsychologie, Neurosciences Cognitives et Cliniques, V. 12, N° 2, Avril-mai-juin 2020, pp. 232-237.

Carayol-Ravot M. (2020). Covid-19 : crise sanitaire, confinement et maladies chroniques. Impact du confinement sur l’expérience patient et le partenariat entre patients et professionnels de santé. Mémoire de Master de santé publique. Université Aix Marseille.

Flora L., Darmon D. Benattar J.-M. (Coord.).(2019), Contribution à l’état de l’art : Retour sur le 1er colloque International en France sur le partenariat de soin avec le patient à partir des communications et écoévaluations. Centre d’Innovation du Partenariat avec les Patients et le Public (CI3P), Université côte d’azur.

Bibliographie sur le partenariat de soin avec les patients dans la recherche

Burel L. (2024). Le tandem de partenariat médecin généraliste-patient partenaire : une expérience transformatrice. Thèse d’exercice de médecine. Université côte d’azur.

Loughhead, M., Hodges, E., McIntyre, H., Procter, N., Barbara, A., Bickley, B., Martinez, L., Albrecht, L., Huber, L. (2024). Pathways for Strengthening Lived Experience Leadership for Transformative Systems Change : Reflections on Research and Collective Change Strategies. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(5), e70048. https://doi.org/10.1111/hex.70048

McPherson, A., Paudyal, V., Lowrie, R., Heath, H., Moir, J., Allen, N., Barnes, N., Hill, H., Araf, A., Lombard, C., Ross, S., Tearne, S., Jagpal, P., Cheed, V., Akhtar, S., Provan, G., Williamson, A., Mair, F. S. (2024). Patient and Public Involvement in Research Evaluating Integrated Care for People Experiencing Homelessness : Findings From the PHOENIx Community Pharmacy Pilot  Randomised-Controlled Trial. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(5), e70070. https://doi.org/10.1111/hex.70070

Richards DP, Poirier S, Mohabir V, Proulx L, Robins S, Smith J. Reflections on patient engagement by patient partners: how it can go wrong. Res Involv Engagem. 2023 Jun 12;9(1):41. doi: 10.1186/s40900-023-00454-1. PMID: 37308922; PMCID: PMC10262483.

Dumez, V., L’Espérance, A. (2024). Beyond experiential knowledge: a classification of patient knowledge. Soc Theory Health (2024). https://doi.org/10.1057/s41285-024-00208-3

Côté, C.I. (2024). A critical and systematic literature review of epistemic justice applied to healthcare: recommendations for a patient partnership approach. Med Health Care and Philos. https://doi.org/10.1007/s11019-024-10210-1

Montiel C, Jackson M, Clovin T, Bogdanova E, Côté C, Descoteaux A, Wong C, Dumez V, Pomey MP, Hanna D. (2024). Patient Learning Pathway: Identifying Patient Competencies in Teledermatology for Effective Management of Dermatological Conditions. J Cutan Med Surg. 2024 Mar 19:12034754241238716.

Dhamanaskar R, Tripp L, Vanstone M, Canfield C, Levasseur MA, Abelson J. (2024). Patient partner perspectives on compensation: Insights from the Canadian Patient Partner Survey. Health Expect. Jan 15;27(1):e13971.doi: 10.1111/hex.13971.

Scholz B., Kirk L., Warner T., O’Brien L. , Kecskes Z.,  Mitchell I. (2024) From a Single Voice to Diversity: Reframing ‘Representation’ in Patient Engagement. Qualitative Health Research, doi/pdf/10.1177/10497323231221674

Pomey, M., Pelaez, S., Le Roux, E., Demers‐Payette, O., Sirois, M., Lochhead, L., Ganache, I., Normandin, L., L’Espérance, A., De Guise, M. (2024). How to mobilise users’ experiential knowledge in the evaluation of advanced technologies and practices in Quebec? The example of the permanent users’ and relatives’ panel. Health Expectations, 27(1), e13964. https://doi.org/10.1111/hex.13964

Blackburn, S., Clinch, M., de Wit, M., Moser, A., Primdahl, J., van Vliet, E., Walker, C., Stevenson, F. (2023). Series : Public engagement with research. Part 1 : The fundamentals of public engagement with research. The European Journal of General Practice, 29(1), 2232111. https://doi.org/10.1080/13814788.2023.2232111

Swaithes, L., Campbell, L., Anthierens, S., Skrybant, M., Schiphof, D., French, H., de Wit, M., Blackburn, S., Dziedzic, K. (2023). Series : Public engagement with research. Part 4 : Maximising the benefits of involving the public in research implementation. The European Journal of General Practice, 29(1), 2243037. https://doi.org/10.1080/13814788.2023.2243037

Sergent L. (2023). Patient pantin ou partenaire : une étude de la participation à l’hôpital pendant la crise Covid. Connexions, n° 118, pp.81-93

Zaratin, P., Khan, U., Graffigna, G. (2023). Comment on « Reflections on patient engagement by patient partners : How it can go wrong ». Research Involvement and Engagement, 9(1), 122. https://doi.org/10.1186/s40900-023-00534-2

Christiansen, M. G., Pappot, H., Hamilton, C., Lund-Jacobsen, T., Kristensen, A. W., Nordentoft, S., Høeg, B. L., Bidstrup, P., Nielsen, I. H., Ulstrup, J., Trip, A. K., Jarden, M., Piil, K. (2023). Patient Engagement in Research Scale (PEIRS-22) : Danish translation, applicability, and user experiences. Research Involvement and Engagement, 9(1), 115. https://doi.org/10.1186/s40900-023-00526-2

Harman, N. L., McGiveron, K., Tudur Smith, C., Williamson, P. R., Barrington, H. (2023). Opening up ideas : An advent calendar for patient and public engagement in clinical trials research. Research Involvement and Engagement, 9(1), 118. https://doi.org/10.1186/s40900-023-00530-6

Nohová, I., Andrews, J., Votan, B., Miller, A., Sehouli, J., Berger, R. (2023). Patient involvement in research within the Gynecological Cancer InterGroup : A call to action for a systematic approach : Results from a survey. Health Science Reports, 6(12), e1735. https://doi.org/10.1002/hsr2.1735

Røssvoll, T. B., Rosenvinge, J. H., Liabo, K., Hanssen, T. A., Pettersen, G. (2023). Patient and public involvement in health research from researchers’ perspective. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 26(6), 2525‑2531. https://doi.org/10.1111/hex.13853

Vanderhout, S., Richards, D. P., Butcher, N., Courtney, K., Nicholls, S. G., Fergusson, D. A., Potter, B. K., Bhalla, M., Nevins, P., Fox, G., Ly, V., Taljaard, M., Macarthur, C. (2023). Prevalence of patient partner authorship and acknowledgment in child health research publications : An umbrella review. Journal of Clinical Epidemiology, 164, 35‑44. https://doi.org/10.1016/j.jclinepi.2023.10.012

Chudyk A. M., Stoddard R., McCleary N., Duhamel T. A., Shimmin C., Hickes S., Schultz A. pancanadian conselors group patients and public (2023). Exploring patient and caregiver perceptions of the meaning of the patient partner role: a qualitative study  Research Involvement Engagement 9 , 106 (2023). https://doi.org/10.1186/s40900-023-00511-9

Fox, G., Lalu, M. M., Sabloff, T., Nicholls, S. G., Smith, M., Stacey, D., Almoli, F., Fergusson, D. A. (2023). Recognizing patient partner contributions to health research : A systematic review of reported practices. Research Involvement and Engagement, 9(1), 80.
https://doi.org/10.1186/s40900-023-00488-5

Pogorzelski D., Wells J. L.J., Marvel D.; Palmer J., Mullins C. D., Medeiros M., Gallant J. L., Spicer E., Bergin P., Gitajn, I. L., Mullin D. S., Gaski G., Hymes R., Bzovsky S., Slobogean G. P., Sprague S.  and the PREP-IT Investigators. (2023). Pragmatic design and inclusion of patient–partner representatives improves participant experience in clinical research.

Pogorzelski D., Wells J. L.J., Marvel D.; Palmer J., Mullins C. D., Medeiros M., Gallant J. L., Spicer E., Bergin P., Gitajn, I. L., Mullin D. S., Gaski G., Hymes R., Bzovsky S., Slobogean G. P., Sprague S.  and the PREP-IT Investigators. (2023). Pragmatic design and inclusion of patient–partner representatives improves participant experience in clinical research.

Jackson M., Clovin T., Montiel C., Bogdanova E., Côté C., Descoteaux A., Wong C., Dumez V., Pomey M.-P (2023). Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept. journal Preproof: https://doi.org/10.1016/j.pecinn.2023.100223

Nielssen, I., Ahmed, S., Zelinsky, S., Dompe, B., Fairie, P., Santana, M. J. (2023). Co-building a training programme to facilitate patient, family and community partnership on research grants : A patient-oriented research project. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. https://doi.org/10.1111/hex.13763

Riches, L., Ridgway, L., Edwards, L. (2023). Co-learning commentary : A patient partner perspective in mental health care research. Research Involvement and Engagement, 9(1), 24. https://doi.org/10.1186/s40900-023-00435-4  

Yous, M.-L., Ganann, R., Ploeg, J., Markle-Reid, M., Northwood, M., Fisher, K., Valaitis, R., Chambers, T., Montelpare, W., Légaré, F., Beleno, R., Gaudet, G., Giacometti, L., Levely, D., Lindsay, C., Morrison, A., Tang, F. (2023). Older adults’ experiences and perceived impacts of the Aging, Community and Health Research Unit-Community Partnership Program (ACHRU-CPP) for diabetes  self-management in Canada : A qualitative descriptive study. BMJ Open, 13(4), e068694. https://doi.org/10.1136/bmjopen-2022-068694  

Rubin, M. R. (2023). The Role of the Patient Partnership in Designing Research on Neuropsychiatric Issues in Hypoparathyroidism. Journal of the Endocrine Society, 7(7), bvad068.  https://doi.org/10.1210/jendso/bvad068  

Boivin A., Flora L., Dumez V., L’Espérance A., Berkesse A., Gauvin F.-P. (2017). « Transformer la santé en partenariat avec les patients et le public : historique, approche et impacts du “modèle de Montréal”», In « La participation des patients » « vol. 2017, Paris : Editions Dalloz, pp. 11-24.

Ghadiri D. P. S., Flora L., Pomey M.-P. (2017). « Le virage patient partenaire de soins au Québec. Reconfiguration de l’exercice du pouvoir médical et lutte pour de nouvelles subjectivités« . In « La participation des patients« , Paris : Editions Dalloz, pp. 25-36.

Boivin, A., F.-P. Gauvin, P. Lehoux, I. Marcoux, Néron A, G. Baril and M. Flon (2017). Que doit-on savoir sur l’aide médicale à mourir? Comprendre les besoins d’information et les enjeux du partenariat avec les patients, les proches aidants et les professionnels de la santé, Centre d’excellence sur le partenariat avec les patients et le public: 46.

Boivin, A., V. Dumez, C. Loignon, M.-P. Gagnon, P. L. Bush, I. Ganache, F. Laverdière, M. Fournier, M. Menear, J. Légaré and J. Caron-Malenfant (2015). Soutenir la recherche en partenariat avec les patients et le public: stratégie d’engagement pour l’Unité de SOUTIEN-SRAP Quebec: 22.

Flora L. (2014). « Des patients réflexifs, au potentiel de transformation des systèmes de santé. » dans l’ouvrage Les métiers de la santé face aux industries pharmaceutique, agroalimentaires et chimiques, (Dir. Scheffer P.), Paris : L’harmattan.

Bibliographie sur l’implication des patients dans et sur la recherche

Ferguson, C., William, S., Allida, S. M., Fulcher, J., Jenkins, A. J., Lattimore, J.-D., Loch, L.-J., Keech, A. (2024). A co-design case study of the development of heart failure e-TIPS to support self-management. JMIR Cardio. https://doi.org/10.2196/57328

Fischer, A., Aguayo, G., Pinker, I., Oustric, P., Lachaise, T., Wilmes, P., Larché, J., Benoy, C., Fagherazzi, G. (2024). Co-design of a voice-based app to monitor long COVID symptoms with its end-users : A mixed-method study. Digital Health, 10, 20552076241272671. https://doi.org/10.1177/20552076241272671

Quilter, E. E. V., Downes, S., Deighan, M. T., Stuart, L., Charles, R., Tittensor, P., Junges, L., Kissack, P., Qureshi, Y., Kamaraj, A. K., Brigden, A. (2024). A Digital Intervention for Capturing the Real-Time Health Data Needed for Epilepsy Seizure Forecasting : Protocol for a Formative Co-Design and Usability  Study (The ATMOSPHERE Study). JMIR Research Protocols, 13, e60129. https://doi.org/10.2196/60129

Flora L., Darmon D., Darmoni S., Grosjean J., Simon C., Hassanaly P., Dufour J.-C. (2024). Help with Prescribing Mobile Health Applications A Partnership Design. in « Experience in Health Innovation : Ephemeral Fashions or New Paradigm ? – Crossed perspectives in the health ecosystem« , London :Editions Wiley, pp 227-237.

da Cruz Peniche, P., de Morais Faria, C. D. C., Hall, P., Fingleton, C., McPhillips, L., Gaetz, R., Roche, A., McCann, L., O’Beaglaoich, P., Murphy, D., Hickey, J., Lennon, O. (2024). A scoping review of patient and public involvement in empirical stroke research. International Journal of Stroke : Official Journal of the International Stroke Society, 17474930241262638. https://doi.org/10.1177/17474930241262638

Peters, S., Guccione, L., Francis, J., Best, S., Tavender, E., Curran, J., Davies, K., Rowe, S., Palmer, V. J., Klaic, M. (2024). Evaluation of research co-design in health : A systematic overview of reviews and development of a framework. Implementation Science : IS, 19(1), 63. https://doi.org/10.1186/s13012-024-01394-4

Schilling, I., Gerhardus, A. (2024). Is this really Empowerment ? Enhancing our understanding of empowerment in patient and public involvement within clinical research. BMC Medical Research Methodology, 24(1), 205.
 https://doi.org/10.1186/s12874-024-02323-1

Vervoort, J. P. M., Konijn, W. S., Jansen, D. E. M. C., Boersma, C., de Zeeuw, J., Ho-Dac-Pannekeet, M. M., Gansevoort, R. T., Messchendorp, A. L., Sanders, J. S. F., de Wildt-Liesveld, R. (2024). Patient engagement as a collaborative process in a large Dutch COVID-19 vaccination study (RECOVAC)—Insight into the contribution of patient engagement  and learnings for the future. Research Involvement and Engagement, 10(1), 96. https://doi.org/10.1186/s40900-024-00622-x

Man, C., Liu, T., Yan, S., Xie, Q., Liu, H. (2024). Research status and hotspots of patient engagement : A bibliometric analysis. Patient Education and Counseling, 125, 108306. https://doi.org/10.1016/j.pec.2024.108306

Martin, G., Carman, K. (2024). Resources to facilitate patient engagement in research. BMJ (Clinical Research Ed.), 386, q1806. https://doi.org/10.1136/bmj.q1806

Payne, S. A., Sumerfield, M., Hughes, S. (2024). Opportunities and Challenges in Patient and Public Involvement and Engagement in Palliative Care Research. Journal of Palliative Medicine. https://doi.org/10.1089/jpm.2024.0276

Rabi, S., Patton, M., Santana, M.-J., Tang, K. L. (2024). Patient engagement in the development and implementation of navigation services : A scoping review protocol. BMJ Open, 14(8), e082666. https://doi.org/10.1136/bmjopen-2023-082666

Carroll, P., Smith, É., Dervan, A., McCarthy, C., Woods, I., Beirne, C., Harte, G., O’Flynn, D., Quinlan, J., O’Brien, F. J., Flood, M., Moriarty, F. (2024). The Development of Principles for Patient and Public Involvement (PPI) in Preclinical Spinal Cord Research : A Modified Delphi Study. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(4), e14130. https://doi.org/10.1111/hex.14130

Robert, G., Donetto, S., Masterson, D., Kjellström, S. (2024). Applying models of co-production in the context of health and wellbeing. A narrative review to guide future practice. International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care, mzae077. https://doi.org/10.1093/intqhc/mzae077

Padden-Modi, M., Rush, H., Abdel-Aty, H., Matheson, D., Millman, R., Williams, P., Tombal, B., James, N. (2024). How Can Participant Experience of Quality-of-Life Research Be Improved in Cancer Research : Views of the Patient and Public Involvement Representatives from the  STAMPEDE2 Prostate Cancer Trial. European Urology Oncology, S2588-9311(24)00185-8. https://doi.org/10.1016/j.euo.2024.07.012

Martin G., Carman K. (2024). Resources to facilitate patient engagement in research.  BMJ 2024;386:q1806

Griffiths, S., Robertson, M., Kaviraj, C., Davies, F., McDevitt, M., Richards, A.,  Russell, M. (2024). Reflections on co-production : Developing a dementia research funding application with a diverse lived experience group. Dementia (London, England), 23(5), 709‑723. 

Keij, S. M., Lie, H. C., Laidsaar-Powell, R., Kunneman, M., de Boer, J. E., Moaddine, S., Stiggelbout, A. M., & Pieterse, A. H. (2024). Corrigendum to « Patient-related characteristics considered to affect patient involvement in shared decision making about treatment : A scoping review of the  qualitative literature » Patient Education and Counseling 111 (2023) 107677. Patient Education and Counseling, 124, 108257. 

Marshall, D. A., Suryaprakash, N., Lavallee, D. C., McCarron, T. L., Zelinsky, S., Barker, K. L., MacKean, G., Santana, M. Dubois, H., Manser, T., Häbel, H., Härgestam, M., Creutzfeldt, J. (2024). Exploring differences in patient participation in simulated emergency cases in co-located and distributed rural emergency teams—An observational study with a  randomized cross-over design. BMC Emergency Medicine, 24(1), 118. 

J., Moayyedi, P., Bryan, S. (2024). Studying How Patient Engagement Influences Research : A Mixed Methods Study. The Patient, 17(4), 379‑395. 

Mattingly, T. J. 2nd, Baquet, C. R., Lance, F., Medeiros, M., Mullins, C. D. (2024). Community-Academic Partnerships for Health Research : An Iterative and Transparent Process of Patient Engagement Before the Research Begins. Ethnicity & Disease, 34(2), 53‑59. 

Sides, T. L., Jensen, A. C., Argust, M. M., Amundson, E. C., Thomas, G. R., Keller, R., Mahaffey, M., Krebs, E. E. (2024). Experiences and lessons learned from a patient-engagement service established by a national research consortium in the U.S. Veterans Health Administration. Learning Health Systems, 8(3), e10421.

Silvera G. A., Haun C., Natarajan V. (2024). Foundational Patient Experience: Analyzing 10 Years of Patient Experience Research. Patient Experience Journal (PXJ);11(2):107–114

Foster, A., Caunt, S., Schofield, H., Glerum-Brooks, K., Begum, S., Gleeson, P., Prestwich, G., Baird, W. (2024). Evaluating a grant development public involvement funding scheme : A qualitative document analysis. Research Involvement and Engagement, 10(1), 57. https://doi.org/10.1186/s40900-024-00588-w

Eberl, M., Cruickshank, S. M. (2024). A culture shift to support public involvement and engagement in research. The Journal of Experimental Medicine, 221(6). https://doi.org/10.1084/jem.20240268

Palm, M. E., Evans, D., Staniszewska, S., Brady, L.-M., Hanley, B., Sainsbury, K., Stewart, D., Wray, P. (2024). Public involvement in UK health and care research 1995-2020 : Reflections from a witness seminar. Research Involvement and Engagement, 10(1), 65. https://doi.org/10.1186/s40900-024-00598-8

Rodriguez, A., Shambhunath, S., Wijesiri, T. I. D., Biazus-Dalcin, C., Mc Goldrick, N. (2024). Co-design of health educational materials with people experiencing homelessness and support workers : A scoping review. Frontiers in Oral Health, 5, 1355349. https://doi.org/10.3389/froh.2024.1355349

Visser, M., ’t Hart, N., de Mul, M., Weggelaar-Jansen, A. M. (2024). The Perspectives of Healthcare Professionals and Managers on Patient Involvement in Care Pathway Development : A Discourse Analysis. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(3), e14101. https://doi.org/10.1111/hex.14101

Alrayshouni, Z., Dayekh, A., El-Tassi, A., Pakai, A. (2024). Rationalizing the Influence of Co-Design on Distress, Clinical Decision-Making and Disease Self-Management of Cancer Patients-as-Partners : A Quasi-Experimental  Study. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(3), e14113. https://doi.org/10.1111/hex.14113

Beresford, C. J., Rahman, M., Gray, Y., Ramshaw, S., Gelling, L., Baron, S.,  Dominey, J. (2024). Embedding Public Involvement in a PhD Research Project With People Affected by Advanced Liver Disease. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(3), e14097. https://doi.org/10.1111/hex.14097

de Alcântara Mendes, J. A., Lucassen, M., Adams, A., Martin, L., Aicardi, C., Woodcock, R., Nielsen, E., Townsend, E., Jirotka, M. (2024). Patient and Public Involvement (PPI) and Responsible Research and Innovation (RRI) approaches in mental health projects involving young people : A scoping  review protocol. Research Involvement and Engagement, 10(1), 60. https://doi.org/10.1186/s40900-024-00591-1

Lammons, W., Nobility, L., Markham, S., Saloniki, E.-C. (2024). PPIE in a technical research study : Using public involvement to refine the concept and understanding and move towards a multidimensional concept of  disability. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(3), e14072. https://doi.org/10.1111/hex.14072

Peniche, P., de Morais Faria, C. D. C., Hall, P., Fingleton, C., McPhillips, L., Gaetz, R., Roche, A., McCann, L., O’Beaglaoich, P., Murphy, D., Hickey, J.,  Lennon, O. (2024). A Scoping Review of Patient and Public Involvement (PPI) in Empirical Stroke Research. International Journal of Stroke : Official Journal of the International Stroke Society,17474930241262638.
https://doi.org/10.1177/17474930241262638

Brown, P., Singh, H., Su, E., Sirisegaram, L., Munce, S. E. P., Eaton, A. D., Zhabokritsky, A., McKinlay, S., Kokorelias, K. M. (2024). Understanding the use of co-design methods for research involving older adults living with HIV: A scoping review protocol. PloS One, 19(5), e0303580. 
https://doi.org/10.1371/journal.pone.0303580

Benz, C., Scott-Jeffs, W., McKercher, K. A., Welsh, M., Norman, R., Hendrie, D., Locantro, M., Robinson, S. (2024). Community-based participatory-research through co-design : Supporting collaboration from all sides of disability. Research Involvement and Engagement, 10(1), 47. https://doi.org/10.1186/s40900-024-00573-3

Moult, A., Aries, A., Bailey, P., Paskins, Z. (2024). Reflecting on activities which support public involvement within an evaluation of public involvement reports from facilities funded by the national institute for  health and care research : A co-produced commentary. Research Involvement and Engagement, 10(1), 46. https://doi.org/10.1186/s40900-024-00579-x

Doughty, J., Preston, J., Paisi, M., Hudson, A., Burns, F., Porter, S. R., Watt, R. G. (2024). Embedding patient and public involvement into a doctoral study : Developing a point-of-care HIV testing intervention for dental settings. Frontiers in Oral Health, 5, 1359132.
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Eberl, M., Cruickshank, S. M. (2024). A culture shift to support public involvement and engagement in research. The Journal of Experimental Medicine, 221(6). https://doi.org/10.1084/jem.20240268

Haroutounian, S., Holzer, K. J., Kerns, R. D., Veasley, C., Dworkin, R. H., Turk, D. C., Carman, K. L., Chambers, C. T., Cowan, P., Edwards, R. R., Eisenach, J. C., Farrar, J. T., Ferguson, M., Forsythe, L. P., Freeman, R., Gewandter, J. S., Gilron, I., Goertz, C., Grol-Prokopczyk, H., … Vollert, J. (2024). Patient engagement in designing, conducting, and disseminating clinical pain research : IMMPACT recommended considerations. Pain, 165(5), 1013‑1028. 
https://doi.org/10.1097/j.pain.0000000000003121

Phillips, O. R., Harries, C., Leonardi-Bee, J., Knight, H., Sherar, L. B., Varela-Mato, V., Morling, J. R. (2024). What are the strengths and limitations to utilising creative methods in public and patient involvement in health and social care research ? A qualitative  systematic review. Research Involvement and Engagement, 10(1), 48. https://doi.org/10.1186/s40900-024-00580-4

wska, M., Kelly, C., Gunn, B., Meiksin, R., Scott, R. H., Palmer, M. J., Wellings, K., Lohr, P. A., French, R. S., N/A, T. S. S. T. (2024). Patient and public involvement in abortion research : Reflections from the Shaping Abortion for Change (SACHA) Study. BMJ Sexual & Reproductive Health, 50(2), 142‑145. https://doi.org/10.1136/bmjsrh-2023-202018

Carroll, P., Dervan, A., McCarthy, C., Woods, I., Beirne, C., Harte, G., O’Flynn, D., O’Connor, C., McGuire, T., Leahy, L. M., Gonzalez, J. G., Stasiewicz, M., Maughan, J., Quinlan, J., Smith, É., Moriarty, F., O’Brien, F. J., Flood, M. (2024). The role of Patient and public involvement (PPI) in pre-clinical spinal cord research : An interview study. PloS One, 19(4), e0301626. https://doi.org/10.1371/journal.pone.0301626

Elsolh, K., Li, A., Hu, M., Seleq, S., Neary, E., Gimpaya, N., Scaffidi, M. A., Kishibe, T., Khan, R., Grover, S. C. (2024). Patient and Public Involvement in Inflammatory Bowel Disease Research-A Scoping Review. Journal of the Canadian Association of Gastroenterology, 7(2), 137‑148. https://doi.org/10.1093/jcag/gwad054

Erwin, J., Burns, L., Devalia, U., Witton, R., Shawe, J., Wheat, H., Axford, N., Doughty, J., Kaddour, S., Nelder, A., Brocklehurst, P., Boswell, S., Paisi, M. (2024). Co-production of health and social science research with vulnerable children and young people : A rapid review. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(2), e13991. https://doi.org/10.1111/hex.13991

Hammoud, S., Alsabek, L., Rogers, L., McAuliffe, E. (2024). Systematic review on the frequency and quality of reporting patient and public involvement in patient safety research. BMC Health Services Research, 24(1), 532. https://doi.org/10.1186/s12913-024-11021-z

Hilton, A., Megson, M., Aryankhesal, A., Blake, J., Rook, G., Irvine, A., Um, J., Killett, A., Maidment, I., Loke, Y., van Horik, J., Fox, C. (2024). What really is nontokenistic fully inclusive patient and public involvement/engagement in research? Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(2), e14012. https://doi.org/10.1111/hex.14012

Hough, K., Grasmeder, M., Parsons, H., Jones, W. B., Smith, S., Satchwell, C., Hobday, I., Taylor, S., Newman, T. (2024). Patient and public involvement and engagement (PPIE) : How valuable and how hard ? An evaluation of ALL_EARS@UoS PPIE group, 18 months on. Research Involvement and Engagement, 10(1), 38. https://doi.org/10.1186/s40900-024-00567-1

Janssens, N., Van Wilder, L., Van Hecke, A., Van Hoorenbeeck, K., Vanden Wyngaert, K., De Smedt, D., Goossens, E. (2024). COCCOS study : Developing a transition program for adolescents with chronic conditions using Experience-Based Co-Design. A study protocol. PloS One, 19(4), e0298571. https://doi.org/10.1371/journal.pone.0298571

Karlsson, A. W., Kragh-Sørensen, A., Børgesen, K., Behrens, K. E., Andersen, T., Maglekær, K. M., Rothmann, M. J., Ketelaar, M., Petersen, E. N., Janssens, A. (2024). Wider institutional research cultures and their influence on patient and public involvement and engagement in health research—An institutional ethnography. Social Science & Medicine (1982), 347, 116773.
https://doi.org/10.1016/j.socscimed.2024.116773

Marshall, D. A., Suryaprakash, N., Bryan, S., Barker, K. L., MacKean, G., Zelinsky, S., McCarron, T. L., Santana, M. J., Moayyedi, P., Lavallee, D. C. (2024). Measuring the Impact of Patient Engagement in Health Research : An Exploratory Study Using Multiple Survey Tools. Journal of the Canadian Association of Gastroenterology, 7(2),177‑187. 
https://doi.org/10.1093/jcag/gwad045

Piil, K., Johannessen, K. B., Pappot, H. (2024). Strategies for meaningful patient and public involvement in neuro-oncological research. Neuro-Oncology Practice, 11(2), 109‑110. https://doi.org/10.1093/nop/npad080

Prasun, M. A., Hubbell, A., Rathman, L., & Stamp, K. D. (2024). The Heart Failure Patient Foundation Position Statement on Research and Patient Involvement. Heart & Lung : The Journal of Critical Care, S0147-9563(24)00057-8. https://doi.org/10.1016/j.hrtlng.2024.04.005

Shakhnenko, I., Husson, O., Chuter, D., van der Graaf, W. (2024). Elements of successful patient involvement in clinical cancer trials : A review of the literature. ESMO Open, 9(4), 102947. https://doi.org/10.1016/j.esmoop.2024.102947

Sutton, L., Labriola, M., Bognanno, T., Moneer, S., Ghith, J., Rodriguez, G., Moore, L., Evuarherhe, O., Morgans, A. K. (2024). Patient engagement in designing and publishing research in prostate cancer : A scoping review. Future Oncology (London, England). https://doi.org/10.2217/fon-2023-0543

Zhou, Q., He, H., Li, Q., Zhao, J., Wang, L., Luo, Z., Wang, X., Chen, Y. (2024). Patient and public involvement (PPI) in systematic reviews : Frequency, determinants, stages, barriers, and dissemination. Journal of Clinical Epidemiology, 111356. https://doi.org/10.1016/j.jclinepi.2024.111356

O’Reilly S, Whiston A, Corbett E, O’Mahony A., Manning M., Boland P., Robinson K., Galvin R., Allardyce J., Butler M., Bradley J.,  Salsberg J., O’Connor M., Pond P., Murphy E., Glynn L.,  Cunningham N., Hennessy E., Hays S. (2024). Development and evaluation of a stroke research Public Patient Involvement Panel [version 1; peer review: awaiting peer review]. HRB Open Res7:22 https://doi.org/10.12688/hrbopenres.13838.1

Marshall, D.A., Suryaprakash, N., Lavallee, D.C. McCarron T. L.,  Zelinsky S., Barker K. L., MacKaean G., Santana M. J., Moayyedi P., Bryan S. (2024). Studying How Patient Engagement Influences Research: A Mixed Methods Study. Patient. https://doi.org/10.1007/s40271-024-00685-8

Waltz, M., Flatt, M. A., Juengst, E. T., Conley, J. M., Cadigan, R. J. (2024). Public participation in human genome editing research governance : What do scientists think? Journal of Community Genetics. https://doi.org/10.1007/s12687-024-00701-2

Hu, W. (2024). Imagining the model citizen : A comparison between public understanding of science, public engagement in science, and citizen science. Public Understanding of Science (Bristol, England), 9636625241227081. https://doi.org/10.1177/09636625241227081

Scholz, B., Stewart, S., Pamoso, A., Gordon, S., Happell, B., Utomo, B. (2024). The importance of going beyond consumer or patient involvement to lived experience leadership. International Journal of Mental Health Nursing, 33(1), 1‑4. https://doi.org/10.1111/inm.13282

Areia, M., Dias, L. P., Matos, P., Figueiredo, D., Neves, A. L., da Costa, E. D., Loureiro, C. C., Boechat, J. L., Reis, A. B., Simões, P., Taborda-Barata, L., Fonseca, J. A., Sá-Sousa, A., Jácome, C. (2024). Public involvement in chronic respiratory diseases research : A qualitative study of patients’, carers’ and citizens’ perspectives. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(1), e13917. https://doi.org/10.1111/hex.13917

Blaylock, R., Lewandowska, M., Kelly, C., Gunn, B., Meiksin, R., Scott, R. H., Palmer, M. J., Wellings, K., Lohr, P. A., French, R. S., N/A, T. S. S. T. (2024). Patient and public involvement in abortion research : Reflections from the Shaping Abortion for Change (SACHA) Study. BMJ Sexual & Reproductive Health, bmjsrh-2023-202018. https://doi.org/10.1136/bmjsrh-2023-202018

Chudyk, A. M., Stoddard, R., Duhamel, T. A., Schultz, A. S. H. (2024). Future directions for patient engagement in research : A participatory workshop with Canadian patient partners and academic researchers. Health Research Policy and Systems, 22(1), 24. https://doi.org/10.1186/s12961-024-01106-w

Dawes, P., Arru, P., Corry, R., McDermott, J. H., Garlick, J., Guest, H., Howlett, E., Jackson, I., James, R., Keane, A., Murray, C., Newman, W., Visram, A., Munro, K. J. (2024). Patient and public involvement in hearing research : Opportunities, impact and reflections with case studies from the Manchester Centre for Audiology and  Deafness. International Journal of Audiology, 63(2), 146‑154. 
https://doi.org/10.1080/14992027.2022.2155881

Di Lorito, C., Griffiths, S., Poole, M., Kaviraj, C., Robertson, M., Cutler, N., Wilcock, J. (2024). Patient and public involvement and engagement with underserved communities in dementia research : Reporting on a partnership to co-design a website for  postdiagnostic dementia support. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(1), e13992. https://doi.org/10.1111/hex.13992

Kehoe, M., Whitehead, R., de Boer, K., Meyer, D., Hopkins, L., Nedeljkovic, M. (2024). A qualitative evaluation of a co-design process involving young people at risk of suicide. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy, 27(1), e13986. 
https://doi.org/10.1111/hex.13986

Mitchell, S., Turner, N., Fryer, K., Beng, J., Ogden, M. E., Watson, M., Gardiner, C., Bayly, J., Sleeman, K. E., Evans, C. J. (2024). A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research. Research Involvement and Engagement, 10(1), 19. 
https://doi.org/10.1186/s40900-023-00525-3

Totzeck, C., van der Meer, A. S., Christiansen, H., Durlach, F., Li Sanchez, K., Schneider, S. (2024). Systematic Review : Patient and Public Involvement of Children and Young People in Mental Health Research. Clinical Child and Family Psychology Review. https://doi.org/10.1007/s10567-024-00470-x

Zirnsak, T.-M., Ng, A. H., Brasier, C., Gray, R. (2024). Public involvement in Australian clinical trials : A systematic review. Clinical Trials (London, England), 17407745231224533.
 https://doi.org/10.1177/17407745231224533

Zogas, A., Sitter, K. E., Barker, A. M., Fix, G. M., Khanna, A., Herbst, A. N., Vimalananda, V. G. (2024). Strategies for engaging patients in co-design of an intervention. Patient Education and Counseling, 123, 108191. https://doi.org/10.1016/j.pec.2024.108191

Mitchell, S., Turner, N., Fryer, K., Beng J. , Ogden M. E. , Watson M. ,Gardiner C. , Bayly J. , Sleeman K. E. Catherine, Evans C. J.  (2024). A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research . Res Involv Engagem 10, 19. https://doi.org/10.1186/s40900-023-00525-3

Ede, J., Clarete, M., Taylor, I., Taylor, C., Kent, B., Watkinson, P., Endacott, R. (2024). Patient and public involvement and engagement (PPIE) in research : The Golden Thread. Nursing in Critical Care, 29(1), 10‑13. https://doi.org/10.1111/nicc.12921

Feldmann, L. K., Roudini, J., Kühn, A. A., Habets, J. G. V. (2023). Improving naturalistic neuroscience with patient engagement strategies. Frontiers in Human Neuroscience, 17, 1325154. 
https://doi.org/10.3389/fnhum.2023.1325154

Furlong, P., Dugar, A., White, M. (2024). Patient engagement in clinical trial design for rare neuromuscular disorders : Impact on the DELIVER and ACHIEVE clinical trials. Research Involvement and Engagement, 10(1), 1. https://doi.org/10.1186/s40900-023-00535-1

Roquette, C., Crisóstomo, S., Milagre, T., Ribeiro, R. S., Pedro, A. R., Valente, A. (2024). Patient organisations’ views, motivations and experiences on patient involvement in cancer research : A pilot study in Portugal. BMJ Open, 14(1), e077444. https://doi.org/10.1136/bmjopen-2023-077444

Ryf, C., Hofstetter, L., Clack, L., Hincapié, C. A. (2024). Involving patients and clinicians in the development of a randomised clinical trial protocol to assess spinal manual therapy versus nerve root injection for  patients with lumbar radiculopathy : A patient and public involvement project to  inform the SALuBRITY trial design. Research Involvement and Engagement, 10(1), 8.
https://doi.org/10.1186/s40900-023-00536-0

Scholz, B., Kirk, L., Warner, T., O’Brien, L., Kecskes, Z., Mitchell, I. (2024). From a Single Voice to Diversity : Reframing « Representation » in Patient Engagement. Qualitative Health Research, 10497323231221674. https://doi.org/10.1177/10497323231221674

Woolf, B., Vinson, A. H. (2024). Cultural health capital and patient partner recruitment into healthcare improvement work. Social Science & Medicine (1982), 341, 116500.
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Areia M., Dias L. P., Matos P., Figueiredo D., Neves A. L., da Costa  E. D.; Loureiro, Boechat J. L., Reis A. B., Simões P., Taborda-Barata L., Fonseca J. A., Sousa A. S. ; Jácome C. (2023). Public involvement in chronic respiratory diseases research: A qualitative study of patients’, carers’ and citizens’ perspectives. Health Expectations. 2023;27:e13917. https://doi.org/10.1111/hex.13917

Westerink, H. J., Oirbans, T., Garvelink, M. M., van Uden-Kraan, C. F., Zouitni, O., Bart, H. A. J., van der Wees, P. J., van der Nat, P. B. (2023). Barriers and facilitators of meaningful patient participation at the collective level in healthcare organizations : A systematic review. Health Policy (Amsterdam, Netherlands), 138, 104946. https://doi.org/10.1016/j.healthpol.2023.104946

Ali, A. Z., Wright, B., Curran, J. A., Newton, A. S. (2023). Review : Patient engagement in child, adolescent, and youth mental health care research—A scoping review. Child and Adolescent Mental Health, 28(4), 524‑535. https://doi.org/10.1111/camh.12615

Honap, S., Buisson, A., Danese, S., Beaugerie, L., Peyrin-Biroulet, L. (2023). Patient and Public Involvement in Research : Lessons for Inflammatory Bowel Disease. Journal of Crohn’s & Colitis, 17(11), 1882‑1891. https://doi.org/10.1093/ecco-jcc/jjad090

Huml, R. A., Collyar, D., Antonijevic, Z., Beckman, R. A., Quek, R. G. W., Ye, J. (2023). Aiding the Adoption of Master Protocols by Optimizing Patient Engagement. Therapeutic Innovation & Regulatory Science, 57(6), 1136‑1147. https://doi.org/10.1007/s43441-023-00570-w

Kroll, T., Escorpizo, R. (2023). Editorial : Patient and public involvement in disability and rehabilitation research. Frontiers in Rehabilitation Sciences, 4, 1307386. https://doi.org/10.3389/fresc.2023.1307386

Moult, A., Baker, D., Aries, A., Bailey, P., Blackburn, S., Kingstone, T., Lwembe, S., Paskins, Z. (2023). Using the UK standards for public involvement to evaluate the public involvement sections of annual reports from NIHR managed research centres. Research Involvement and Engagement, 9(1), 109. https://doi.org/10.1186/s40900-023-00517-3

Pellegrini, M., Chakravorty, S., Del Mar Manu Pereira, M., Gulbis, B., Gilmour-Hamilton, C., Hayes, S., de Montalembert, M., Inusa, B. P. D., Colombatti, R., Roy, N. B. (2023). Sickle cell disease : Embedding patient participation into an international conference can transform the role of lived experience. Orphanet Journal of Rare Diseases, 18(1), 341. https://doi.org/10.1186/s13023-023-02951-8

Worboys, H. M., Broomfield, J., Smith, A., Stannard, R., Tyrer, F., Vounzoulaki, E., Czyznikowska, B., Grewal-Santini, G., Greenwood, J., Gray, L. J. (2023). Incorporation of patient and public involvement in s

Kemper, S., Bongers, M., Kupper, F., De Vries, M., Timen, A. (2023). Preferences for public engagement in decision-making regarding four COVID-19 non-pharmaceutical interventions in the Netherlands : A survey study. PloS One, 18(10), e0292119. https://doi.org/10.1371/journal.pone.0292119

OTA International: The Open Access Journal of Orthopaedic Trauma 6(4):, December 2023. | DOI: 10.1097/OI9.0000000000000287

Aas, S. N., Distefano, M. B., Pettersen, I., Gravrok, B., Nordvoll, L. Y., Bjaastad, J. F., Grimsgaard, S. (2023). Patient and public involvement in health research in Norway : A survey among researchers and patient organisations. Research Involvement and Engagement, 9(1), 48. https://doi.org/10.1186/s40900-023-00458-x

Aiyegbusi, O. L., McMullan, C., Hughes, S. E., Turner, G. M., Subramanian, A., Hotham, R., Davies, E. H., Frost, C., Alder, Y., Agyen, L., Buckland, L., Camaradou, J., Chong, A., Jeyes, F., Kumar, S., Matthews, K. L., Moore, P., Ormerod, J., Price, G., Saibnt-Cricq M., Stabton D., Walker A., Haroon S., Denniston A. K. Calvert, M. J. and TLC group (2023). Considerations for patient and public involvement and engagement in health research. Nature Medicine. https://doi.org/10.1038/s41591-023-02445-x

Auwal, F. I., Copeland, C., Clark, E. J., Naraynassamy, C., McClelland, G. R. (2023). A systematic review of models of patient engagement in the development and life cycle management of medicines. Drug Discovery Today, 28(9), 103702. https://doi.org/10.1016/j.drudis.2023.103702

Bacchini, F. (2023). Family reflections : Prematurity and the power of parent involvement in research. Pediatric Research. https://doi.org/10.1038/s41390-023-02727-7

Bhardwaj, T., Santulli, R. B. (2023). Developing a Novel Advance Planning Tool for Dementia Patient Participation in Scientific Research. The Journal of Clinical Ethics, 34(2), 138‑147. https://doi.org/10.1086/724312

Chen, R. C., Krebill, H., Kennedy, T., Douglas, S., Neufeld, K. L., Welch, D. R., Jernigan, C., Kimminau, K. S., Johnston, K., Hughes, J., Jensen, R. A. (2023). A community engagement training program for basic and translational cancer researchers. Cancer Causes & Control : CCC. 
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Conley, J. M., Cadigan, R. J., Davis, A. M., Juengst, E. T., Kuczynski, K., Major, R., Stancil, H., Villa-Palomino, J., Waltz, M., Henderson, G. E. (2023). The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research. The American Journal of Bioethics : AJOB, 23(7), 9‑16. https://doi.org/10.1080/15265161.2023.2207502

Milne, R., Aidid, U., Atutornu, J., Bircan, T., Boraschi, D., Costa, A., Henriques, S., Patch, C., Middleton, A. (2023). What Difference Can Public Engagement in Genome Editing Make, and for Whom? The American Journal of Bioethics : AJOB, 23(7), 58‑60. https://doi.org/10.1080/15265161.2023.2207545

Rebeiro Gruhl K., Lacarte S., Boucher M. (2023). Mainstream Integration of Mental Health Peer Support in Canada: A Mixed Method Study. Canadian Journal of Community Mental Health. 2 June 2023 https://doi.org/10.7870/cjcmh-2023-007

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Loubière, S., Loundou, A., Auquier, P., Tinland, A. (2023). Psychiatric advance directives facilitated by peer workers among people with mental illness: Economic evaluation of a randomized controlled trial (DAiP study). Epidemiology and Psychiatric Sciences, 32, E27. doi:10.1017/S2045796023000197

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